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Leo's story

Naomi and Rhodri from Portishead, North Somerset, welcomed...

Naomi had a smooth pregnancy, and routine scans detected no abnormalities. However, just a few hours after Dylan’s birth, Naomi noticed a change in his skin...
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Daisy's Story

To mark the first anniversary since Daisy’s death, the...

In April 2024, 9 year old Daisy died from Rett Syndrome. Rett Syndrome is a neurological condition which most often strikes previously healthy girls between...
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Ivy's Story

Ivy’s second home is Little Harbour

Emily and Alex are from Trewoon in Cornwall, and their first-born daughter Ivy is 4 years old. Emily tells us her story, and explains how Little Harbour has...
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Ottie's story

Ottie, from Wells in Somerset, was only 5 when she passed...

Ottie was first diagnosed just 3 weeks before her fourth birthday, and 6 weeks after the UK entered its first lockdown in 2020. After her diagnosis, Ottie was...
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Grace's Story

You wouldn’t believe the excitement when Grace finds out we...

Grace is a happy 4-year-old girl, who is full of smiles and has a knack of making everyone she meets smile too. But Grace has had to overcome so much in her...
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Nancy's Story

Nancy is 11 years old and has Rett Syndrome, a rare genetic...

Nancy has a younger brother, Teddy, who is 4, and an older sister, Kitty, who is 14. She is non-verbal, is not mobile and can’t use her hands purposefully. She...
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