Research reports
The Hospice to Home Project
The development of a model of care for an integrated hospice to home service in Cornwall and the Isles of Scilly.
(Jo Frost, CHSW, Antonia Beringer, UWE, University of the West of England)
The Spectrum of Children's Palliative Care Needs
Introductory Leaflet
(Shaw K L , Brook L, Randall D, The University of Birmingham, 2012)
The Spectrum of Children's Palliative Care Needs Framework
A prognosis based framework for children and young people who have palliative care needs.
(Shaw K L , Brook L, Randall D, The University of Birmingham, 2012)
Vulnerability Factors
Vulnerability factors considered for acceptance of children with Cerebral Palsy or other staticneurological conditions to Children's Hospice services.
(Harrop, E and Brombley, K, 2012)
Helen and Douglas House Hospices
The 24/7 Project
The 24/7 project investigated the need for and potential benefits of a 24/7 specialist children's palliative care telephone advice service in the South West. This report proposes how this could be provided across the region, in collaboration with existing services.
The proposed service development supports the strategic vision of Children's Hospice South West (CHSW), “to be recognised regionally and nationally as a progressive centre of excellence in the care of children who are expected to die before adulthood and their families”, and would also help to meet current gaps in the service, identified in the Palliative Care Services Review (Craft and Killen, 2007), which result in unplanned attendances to Emergency Departments and inappropriate hospital admissions. Planning end of life care for a child at home is often impossible without access to specialist advice.
