Read the latest news

Why not sign up to our email newsletters and be the first to find out about our events, campaigns and news.

Back to newsroom


CHSW Newsroom RSS Feed
Children’s Hospice South West to Open Shop in St Ives
21 March 2017

Retail shop interiorThe Retail Team at Children’s Hospice South West (CHSW) is excited to announce they will be opening a new shop at Tregenna Place, St Ives on Thursday 30th March at 10.30am.

CHSW’s Co-Founder and Chief Executive, Eddie Farwell MBE will be conducting the official opening. The new shop will have something for everyone with a range of goods on offer, including women’s, men’s and children’s clothing and accessories, as well as children’s toys and games and homewares. 

Chris Judd Head of Retail at CHSW said: ‘We are really looking forward to opening the new shop in St Ives and being at the heart of the community. However you are able to support us in the store, whether that’s shopping with us or by dropping off donations, you’ll be helping to support our Little Harbour hospice in St Austell which offers care to families from all across Cornwall.’ 

CHSW is also on the hunt for some enthusiastic volunteers to help run the new shop. There’s a variety of tasks that volunteers can get involved with from processing stock received from donations, to window displays, dressing mannequins and processing payments. It’s a great way to meet other people and really help to make a difference in the local community. 

For anyone interested in finding out more about volunteering, the shop will be hosting Volunteer Open Days on 22nd and 23rd March from 10.30am - 3.30pm. It’s a great informal opportunity to meet members of the shop team and find out more about how you can help to support the charity. 

Alternatively, if you are unable to attend the open days you can email volunteer@chsw.org.uk or call Stephanie Robey on 01271 313 319. Stock donations to the new shop are very welcome and items can be dropped off at the shop from Monday 20th March, or alternatively to arrange collections of large items, call 01726 871 800.

Source: Children's Hospice South West

 

Children’s Hospice architect, Grant Elliott, looks back at Charlton Farm 10 years on
21 March 2017

The LHC team has selected Children’s Hospice South West as its Charity of the Year.

Throughout 2017 the team will be coming up with creative ideas to raise vital funds for CHSW, with whom LHC have worked closely with on a number of projects, including its Charlton Farm hospice which celebrates its 10th anniversary this year.

Following the selection of CHSW as our Charity of the Year, Associate Grant Elliott reflected on LHC’s journey with the charity to date.

“I first met Eddie and Jill Farwell, founders of Children’s Hospice South West, when LHC were chosen to work on the charity’s first hospice, Little Bridge House in Fremington near Barnstaple.

“The project proved to be a great success in providing much needed solace for local families coping with a child’s terminal illness. Both Eddie and Jill had cared for their two children who had died several years earlier.

“However, Fremington was only the beginning. Eddie and Jill wanted to ensure that no family had to travel for longer than two hours within the South West to access hospice services for their children. So began the search for a second site in the Bristol area.

“When they came across Charlton Farm, Jill was taken with its tranquil charm, leading them to buy the site on impulse despite it having no planning approval in place. Their cause drew support from councillors and planning officials alike and the site, which in other circumstances may not have received consent due to its location in Bristol’s green belt, was granted permission.

“Situated on the Wraxhall Estate, Charlton Farm stands in the grounds of Grade II listed Charlton House and encompasses a number of heritage farm buildings including a two-storey farmhouse, hexagonal buttery, collection of stone barns and the listed Victorian dairy.

“As a result, the plans drawn up by myself and Lloyd Brewer were sensitive to the historic character of the existing buildings; restoring them through the application of traditional techniques as well as minimising visual impact on the surrounding area by putting a sedum roof in place on elements of new building work.

“Inside, the buildings were adapted to provide a comfortable and enjoyable experience for the children and their families, including a messy play and sensory area designed with the help of children from the charity’s Fremington hospice.

“Both Lloyd and I also left a personal creative mark on the building, with Lloyd having designed a mosaic in the spa area and my own stained-glass window features in one of the site’s barns.

“Working alongside Eddie and Jill on both these projects was truly inspiring and their vision to provide these beautiful spaces for children and families in such tough times definitely made a lasting impression on me, so when it came to selecting our charity of the year, Children’s Hospice South West was an easy choice for me and I’m looking forward to seeing how our team comes together to fundraise for this brilliant organisation.”  Author Grant Elliott

Children’s Hospice South West now has three hospices across the South West, providing accommodation for terminally ill children and their families as well as counselling and bereavement service, ensuring parents, siblings and others affected by a child’s illness are given as much support as possible.

To read our case study on Charlton Farm click here. To keep up to date with LHC’s fundraising efforts throughout 2017 follow us on Twitter or like us on Facebook.

Source: LHC Architecture

Savills helps celebrate 10th Birthday of Bath’s children’s hospice
16 March 2017

Bath-based real estate services provider, Savills, has announced its continued commitment to supporting local charity, Children’s Hospice South West (CHSW) by sponsoring its Celebration Evening at the Roman Baths on May 4th.

CHSW’s Charlton Farm children’s hospice, located in North Somerset, is the only provider of palliative, respite, end-of -life care and bereavement care for Bath families and their life-limited children, 24 hours a day, 365 days a year. In 2017 Charlton Farm is celebrating 10 years since it opens its doors to local families.Savills

Luke Brady, Head of Office and Head of Savills Residential for the Southern Region, said ‘It is a privilege to be given the opportunity to sponsor the Children’s Hospice South West Celebration Evening. Savills in Bath have had a long-standing association with this incredible organisation and have been proud to have taken part in numerous fundraising activities and sponsorships.’

Charlton Farm currently supports 204 life-limited children, 152 bereaved families and around 580 siblings from Bath, West Wiltshire, South Gloucestershire, Bristol and Mid & North Somerset. 

Bath mum Kate Parsons, whose son Max died at the hospice said, ‘As soon as we walked in to Charlton Farm we knew it was the place where we wanted to say goodbye and spend our last precious days with our special boy as a family. Since Max passed away, Charlton Farm has become our second home and we’re always welcome back.’ 

CHSW Corporate Fundraiser Kate Fisher said, ‘Without the support of companies such as Savills, we could not provide such as valuable service to families such as Kate’s. Our mission is to make the most of short and precious lives and allow families to make precious memories with their children who are not expected to reach adulthood.’  

Source: Children's Hospice South West

 

Donation presented to children’s hospice by The Caroline Thorpe Children’s Fund
16 March 2017

On Tuesday 28th February, representatives from The Caroline Thorpe Children's Fund visited Children’s Hospice South West’s Little Bridge House children’s hospice in Barnstaple and were given a guided tour of the residence by Co-Founder and CEO, Eddie Farwell and Ann Juby, Trusts & Grants Fundraiser.Cheque Presentation photo

The Caroline Thorpe Children's Fund provides grants and financial assistance for children in need in the North Devon area. The Fund was established after Caroline Thorpe was tragically killed in a car accident in 1970 leaving a young son, Rupert.

Grants have been regularly given by the Fund to the children's ward at North Devon District Hospital (NDDH) and to families with seriously ill children. Trustees Richard Prowse, the Countess of Arran and Gillian Barnes presented Eddie Farwell with a cheque for £11,748.

CHSW helps and supports children who are living with life-limiting or life-threatening conditions which mean that sadly they will not reach adulthood. It is the only organisation in the South West to provide vital hospice care to these children and their families.

On receiving the cheque, Eddie Farwell, Co-Founder and Chief Executive for the hospice said: ‘We are extremely grateful to the Trustees of the Caroline Thorpe Children’s Fund for their generous donation and incredible support of Children’s Hospice South West over many years. The costs of providing the special care offered at Little Bridge House are met almost entirely by voluntary donations. Support such as this is vital to ensure that we can continue to make the most of short and precious lives well into the future.’

The trustees are now in the processes of closing the Fund and distributing the remaining capital. Richard Prowse said, ‘It seems appropriate that the remaining monies be divided between CHSW and the Caroline Thorpe Children's Ward NDDH. We hope that this is a fitting way of marking Caroline’s memory and respecting the wishes of her son Rupert and her late husband, Jeremy.’

Source: Children's Hospice South West

 

A brutal charity challenge!
02 March 2017

Phill Edwards, Paul Dennett, Olly Slym and Marc ThomasStarting on 26th May, three friends from Bristol are taking on a brutal challenge; the Bristol Brutal 320 Ultra Tri to be exact, for local children’s charity, Children’s Hospice South West (CHSW).

Prompted by Paul Dennett from Emersons Green who wanted to take on a challenge in the year he turns 40, Marc Thomas and Phill Edwards from Bradley Stoke will join Paul in covering 320 miles over 3 days. They will be completing this Ultra Tri, devised by Paul, on the streets and surrounding areas of Bristol.

Paul said, ‘During the event we will be looking for some volunteers to help adjudicate times and distances as we are going to try and complete the event under Ultraman rules; taking no longer than 12 hours per day.’

The Bristol Brutal looks like this: Day 1 will consist of a 6.2 mile swim and 90 mile cycle. Day 2 will be a 171.4 mile cycle. And Day 3 will see the men running 52.4 miles; equivalent of a double marathon!

The guys have decided to take on this heroic challenge in aid of CHSW’s Charlton Farm, Bristol’s only dedicated children’s hospice, based just outside of the city. Paul said, ‘I wanted to do something to help Charlton Farm as it is a very special place which supported my friend Jim whose son Jack died at the hospice.’ 

Bereaved dad Jim from Bristol said, ‘Without the children’s hospice I don’t know what my family and I would have done. Since the death of my beautiful boy Jack, we still get support from the hospice. Even though we are a bereaved family we still visit and they are still on the end of the phone.’

Olly Slym, CHSW Community Fundraiser, said ‘It’s a huge challenge that Paul and his friends are undertaking – one marathon is enough for most people, let alone two marathons after all the swimming and cycling! But the guys have been inspired by talking to Jim and their visit to Charlton Farm and they know just how valuable the hospice is for families who are facing the unimaginable.’

Paul said, ‘For the final 5k of the double marathon on the Sunday we are going to be holding an event called the Bristol Brutal Family 5k as we want as many family and friends to join us and complete the end of the event with us.’

If you’d like to support Paul, Marc and Phill, join their Facebook event to keep up to date with their progress or you can donate to their fundraising page at www.justgiving.com/fundraising/Bristolbrutal320.

Source: Children's Hospice South West

 

Charlton Farm children’s hospice celebrates its 10th Birthday
07 February 2017

Derelict Charlton Farm buildingOver 25 years ago, from their own experiences of caring for their own life-limited children, Eddie and Jill Farwell had an idea to create a children’s hospice serving families in the South West offering help and support to children who are living with life-limiting or life-threatening conditions and their families.

The Farwell’s vision was realised and CHSW’s Little Bridge House in Devon was opened in 1995 but very quickly became oversubscribed, which led to the demand for a second hospice in the region. A decision was made in 2002 to launch The Babe Appeal with the aim of raising £11million to build and equip Charlton Farm located in Wraxall, just outside Bristol. The late Dick King-Smith gave permission for CHSW to use his story of The Sheep Pig as inspiration for the Appeal and became Charlton Farm’s mascot. 

Jill led the Turf Cutting Ceremony at Charlton Farm in Spring 2004. Tragically, Jill died later that year and Eddie gave up his work in order to fully commit to Children’s Hospice South West and took over as CEO. The eight-bed Charlton Farm opened its doors to families in April 2007.

Charlton Farm offers a wealth of services – all of which are free to families – including short breaks offering medical care 365 days a year, respite, holistic care including music therapy, emergency stays, a dedicated sibling service, end of life care and bereavement support. Charlton Farm currently supports 204 life-limited children, 152 bereaved families and around 580 siblings (current & bereaved), and will continue to help hundreds more families from South Gloucestershire, Bristol, Bath, West Wiltshire and Mid and North Somerset for many years to come. 

The Toller familyClare Toller of Weston-super-Mare describes how she felt when she first visited Charlton Farm having spent 10 days in hospital with her newborn son Grayson.

“Whilst I was at the hospital I longed and longed to just do the simple things with Grayson. I wanted to lie on a bed with him and hold him so close I could feel his breath on my face. So the first night at the hospice this is what I did....all night. Within minutes of arriving I was able to have my very first cuddle with him and hold him close to me like a normal baby; he finally felt like he was mine.

“As we sat in his beautiful room we got to know him all over again and were almost as if it was our first day with him, just like it should be after babies are born. The hospice staff where there to help with the tube feeds throughout the night and to answer any questions or concerns I had.”

Whilst the affected child receives expert medical care on a one to one basis siblings are entertained both at the hospice and on trips out by the Sibling Team, which is also on hand to offer emotional support.

The Care Team allow parents to take a break from the relentless medical duties of administering medication, giving feeds and checking their child minute by minute. This care is handed over allowing parents time to relax, get a full night’s sleep and enjoy some quality time both as a couple and as a family.

Families can be supported by Charlton Farm from diagnosis right through bereavement and beyond. Support following bereavement is offered by the hospice for as long as a family wants and often their relationship with Charlton Farm is one of many years.

Clare says, “We still receive lots of support from the hospice. They have become almost like family to us now and we are grateful for all that they have done for our family. We don't know where we would be without them. Because of Charlton Farm we all have some fantastic memories that will last a lifetime that we could not have achieved if we had been anywhere else.  And for that I am eternally grateful.  I class myself as being very privileged to have been able to go to the most magical and special place.” 

How to get involved

There are many ways to get involved in CHSW and fundraise for Charlton Farm during its 10th Birthday. Here are some ideas:

1. Book a seat or table at CHSW’s Glitter Ball at Ashton Gate Stadium on Saturday 7th October.
2. Skydive on 10th September with 10 others!
3. Come on a tour of Charlton Farm. Bookings being taking for people to look around the hospice each month.
4. Take part in the brand new Bubble Rush in Keynsham on 2nd September.
5. Nominate your boss to take part in Bristol’s first Jail & Bail fundraiser.
6. Sign up for the Great Bristol 10K and run for CHSW!
7. Volunteer 10 hours of your time– there are a range of opportunities available to help CHSW from shops to events.
8. Give a one-off £10 donation during the 10th Birthday.
9. Donate 10 items to a CHSW shop or give 10% of the sale of your eBay items.
10. Take part in non-school uniform day on Wednesday 26th April – Charlton Farm’s official birthday.

For more information, visit www.chsw.org.uk/ten.

An army of support

Refurbished Charlton FarmCHSW Friends Groups, made up of a team of dedicated supporters who work tirelessly to raise awareness and funds, form a vital part of the charity’s ‘army of support’. One example of a long-standing support group is the Weston Friends Group, who is known to go above and beyond to enable Charlton Farm to provide support for local families.

The Group first became involved in fundraising having visited CHSW’s first hospice, Little Bridge House. The Groups is made up of 15 people, many of whom have been members for more than 10 years and became involved with CHSW as they wanted to help fundraise for such a worthwhile cause. 

Judy Hodgson, Treasurer, said, “I read an article in the local news which mentioned the building of the children’s hospice in Wraxall and I decided I would like to help fundraise. Knowing that we as a group help towards the financial running of Charlton Farm and thereby help the families is very rewarding.”

Pam Airey, Former Chairperson, said “My husband Brian and I attended the turf cutting ceremony at Charlton Farm and we remember burying the memory box. There was a band playing and we remember seeing Jill, Eddie and Dick King-Smith!” The Group hold an annual dinner, quiz evenings, casino night, concerts, as well as organise buckets collections and volunteering. 

Group member, Di Monks, said “I like being part of the Weston Group as it’s always a challenge thinking of news ways to raise money!” The Weston Friends Group meets every month and would be delighted to welcome new members. Please contact Ruth Chappell on ruthchappell@talktalk.net if this is something you would like to do. 

Source: Children's Hospice South West

 

Children’s Hospice South West welcomes new Chair of Trustees
23 January 2017

Eddie Farwell and David TurnerFollowing the retirement of The Venerable Trevor Lloyd in December, Children’s Hospice South West (CHSW) is delighted to announce a new Chairman for its Board of Trustees.  

David Turner, partner at Kitsons Solicitors in Exeter, has now been appointed in the role and took up the post on 2nd January 2017. David’s relationship with CHSW began ten years ago when he was quiz master for a number of South West business community quizzes aimed at raising funds and awareness of the charity.  

He was also a former president of the Devon and Somerset Law Society and selected CHSW as his presidential charity. In 2014, David joined CHSW’s Board of Trustees and is his new role he will oversee all Trustee activity.

Commenting on his appointment, David said: ‘As a long term supporter of Children’s Hospice South West, to now become the Chairman of the Board of Trustees is an absolute privilege. Although Trevor’s shoes will be difficult to fill as he was involved with CHSW from its inception, I am really looking forward to developing the role and working even more closely with this much-loved charity.’

Eddie Farwell, Chief Executive and co-founder of CHSW said: ‘I am delighted that David has accepted this new role. David has been involved with CHSW for many years and I know that he is completely committed to the work that we do and will do his utmost to support us in our mission to make the most of short and precious lives.’

David commenced the role in January 2017 and will work closely the charity and its followers. Children’s Hospice South West has three hospices in Devon, Cornwall and Somerset offering respite and care services to life-limited children and their families across the region.

It costs £9.8million each year to provide this support, which is met almost entirely from voluntary donations. For more information on its range of services and fundraising events, see www.chsw.org.uk

Source: Children's Hospice South West

 

Best foot forward for StarTrek 2017 and the 25th anniversary of the charity night walk
20 January 2017

The Rotary StarTrek challenge marks its 25th anniversary in March – would you like to be part of it?

The StarTrek night walk across Exmoor is celebrating its 25th anniversary this March – and there is still time to enter your own team. The annual orienteering challenge organised by the Rotary clubs of Ilfracombe returns on the weekend of March 4-5.

This year Devon Air Ambulance is its third chosen charity, in addition to its longstanding support for North Devon Hospice and Children’s Hospice South West.

It invites teams of four to six people to find their way overnight around a challenging eight or 16 mile course on Exmoor – with the location a closely guarded secret until the last minute.

It is hugely popular with those taking part and there is still time for companies, organisations or groups of friends to enter a team. Since it began StarTrek has raised more than £800,000, divided between the hospices and its chosen charity as well as local good causes.

Close support for trekkers is provided on the night by marshals, Raynet-assisted search and rescue and St John Ambulance, as well as plenty of volunteers, who will provide a fresh hot breakfast when they finish.

StarTrek chairman Paul Williams said: “We really would like to make the 25th year a memorable one and would encourage as many walkers as possible to join us. An army of volunteers are on hand to help with the catering, providing hot food and drinks all night. An army of volunteers are on hand to help with the catering, providing hot food and drinks all night.

“It’s a walk on Exmoor and yes it’s challenging, but talk to anybody who has done it and they will tell you what a good experience it is.”

Paul said they were keen to see some new blood taking part in the walk this year and would also like to hear from anyone who can help out as a volunteer, with a variety of roles and skills needed.

For information and details on how to sign up, go to www.rotary-startrek.org.uk or if you can help as a volunteer, call Paul on 01271 855510.

Source: North Devon Gazette

 

Bubble Rush is coming to Devon this summer, here's how to take part
10 January 2017

The green bubble station at Bubble RushCut-price "early bird" tickets have now gone on sale for Devon's spectacular summer "Bubble Rush". Children's Hospice South West (CHSW) is organising the 5km sponsored fun run around Newnham Park in June.

Runners have to pass through different coloured bubble stations along the way while helping raise funds for the children's charity.

Bubble Rush will take place on Saturday, June 3, and CHSW is offering an early bird discount of 20% to the first 500 people who sign up. Once these places are taken there will then be a 10% discount running until February 19.

The whole family can take part in the event, there are no age restrictions however buggies and wheelchairs are not permitted as there is some uneven ground along the course.

Events fundraiser Kiley Tellam said "We are really excited to be able to bring such a fun event to Plymouth for people to get involved in and all to help raise funds for the vital care and support we offer local children and families.
"Places are flying out fast so if you want to be in with the chance of getting one of the early bird discounted places you need to get signed up soon."

CHSW supports life limited children and families across their South West with its three children's hospices – Little Bridge House in Barnstaple, Charlton Farm near Bristol and Little Harbour in St Austell which supports children from Cornwall and Plymouth.

Families can have short stays at the hospices as well as respite, emergency stays and CHSW also offers end of life care and bereavement support. The charity runs the only children's hospices in the area which are a lifeline to families facing unimaginable circumstances.

To sign up to Bubble Rush simply visit www.chsw.org.uk/bubble

Registration costs £22.50 for adults, £12.50 for children and 2 years and under are free. Family tickets are available for two adults and two children for £63. The early bird discount is applied at the checkout.

Source: Express and Echo, Plymouth Herald

 

Chair of Trustees Retires from Children's Hospice South West
30 December 2016

It is with great sadness that at the end of this year we say farewell to our Chair of Trustees Trevor Lloyd who is retiring from the post on the 1 January 2017. Trevor has been Chair of Trustees since the founding of the charity 25 years ago. Trevor has been a tremendous support to Eddie and his late wife Jill Farwell both in the early days of setting up the charity, throughout Jill’s administration and latterly during Eddie's time as CEO after Jill’s death.

We would like to share a message with you all from Trevor Lloyd:

I had the privilege of being part of the original tiny project group with whom Jill and Eddie shared their vision; I chaired the first meeting of the Trustees in 1991, and have chaired most meetings of the trustees, executive committee and board since then as we have seen that vision turn into reality and develop into something greater than we had imagined. It has been an exciting and humbling journey – humbling because of the love, openness and resilience of dying children and their families, the sheer generosity of ordinary people in the South West, and the gifts, inspiration and capacity for hard work of our colleagues and staff. We owe a lot to one another for the sense of companionship and support on the journey.

We would like to extend to Trevor our warmest wishes and greatest thanks for all that he has contributed to CHSW over the past 25 years. His wisdom and leadership will be sorely missed.

We wish you a wonderful and relaxing retirement.

Source: Children's Hospice South West

 

Tallulah from Tresmeer donates 12th birthday presents to Children’s Hospice South West
28 December 2016

Tallulah Thomas from Tresmeer, near Launceston, recently celebrated her 12th birthday and decided that she would donate the presents given to her from her friends to Children’s Hospice South West.

Tallulah visited CHSW’s Little Harbour children’s hospice in St Austell recently to drop off her birthday presents, where they will be given to the poorly children cared for at the hospice, as well as their siblings, this Christmas.

Tallulah knows all too well the work of hospices, as her dad was cared for by North Devon Hospice and sadly died in 2009. Following this, Tallulah has a strong awareness of the work of hospices and decided that she would like to support a children’s hospice and help other children of her age.

The presents have been gratefully received by the care team at Little Harbour, who said: “This is such a kind and generous gesture from Tallulah, and we are so grateful. Thank you so much for thinking of the families that we support at this time of year, they will be so pleased.”

CHSW has three children’s hospices across the South West, including Little Harbour in St Austell. The charity supports children with life limiting and life threatening illnesses, who sadly will not live into adulthood.

The hospices offer short breaks, respite, palliative care, emergency stays, as well as end of life care and bereavement support for as long as the family want.

Source: Cornish & Devon Post

 

North Devon’s Light Up a Life appeal is a success
23 December 2016

Thank you for helping to light up lives at North Devon Hospice and Children’s Hospice South West this Christmas. Our Light Up a Life appeal has been a fantastic success this year by raising £37,500 for Children’s Hospice South West and North Devon Hospice.

To mark its 20th year, the appeal was launched with some stunning sand art at Saunton Sands created by Martin Artman and his 
friends. Special services around North Devon have given people the opportunity to reflect and celebrate the lives of loved ones and make a donation to the appeal.

Emma Perry, senior community fundraiser at Children’s Hospice South West’s Little Bridge House hospice in Fremington, said: “In our 25th anniversary year, the Light Up a Life appeal has been even more poignant for us.

“Christmas is such a magical time for our families and our care team go out of their way to create a home-from-home atmosphere.

“It is thanks to the incredible generosity of the local community that we can continue to offer this respite care and make the most of short and precious lives.”

Both hospices thanked the Gazette, Morrisons and all those who had sponsored the appeal.

Editor Andy Keeble said: “This appeal shows the fantastic community spirit in North Devon and once again people have taken it to their hearts. We would like to thank everyone for their amazing generosity and support for such good causes.”

Source: North Devon Gazette

 

A special visit from Bristol City FC to Children’s Hospice South West
21 December 2016

Players and staff from Bristol City FC made a special visit to Children’s Hospice South West (CHSW) today. 

The Club has been working in partnership with the charity for the past two seasons and have so far raised over £56,000 for the charity, whose Charlton Farm hospice is located just down the road from the Football Club’s training ground in Failand.

During the visit two children who are huge fans of the team were given the opportunity to be mascots at forthcoming matches. Throughout the afternoon, players and staff played games, gave out presents and even got creative in the hospice’s messy-play room! 

Steve Allen, Adam Baker, Frank Fielding, Donna Venables and Scott Murray have been key drivers of the partnership with CHSW along with the new ambassadors, Aaron Wilbraham, Korey Smith, Mark Little and Joe Bryan. Captain Aaron Wilbraham said: “The lads are really forthcoming and want to help the families at the hospice and bring as much awareness of charity as they can.”

Olly Slym, Community Fundraiser at CHSW said: “It’s been a great partnership – the Club has been incredibly generous donating memorabilia and providing collections on match days. More importantly, the entire Bristol City team have provided experiences to our children which they will remember forever – whether it is becoming mascots, visiting the players during training sessions, or coming to Charlton Farm as they have done today.” 

At the beginning of 2017, Bristol City’s FA Cup match against Fleetwood Town will be dedicated to raising awareness of CHSW with bucket collections taking place around Ashton Gate Stadium. 

Source: Children's Hospice South West

 

Sandy Hill's Fundraising Success
16 December 2016

Sandy Hill AcademyPupils and staff from Sandy Hill Academy in St Austell have been busy fundraising and Children’s Hospice South West (CHSW) has been the lucky beneficiary.

In November, Senior Community Fundraiser for CHSW Sarah Stott visited the school and told the pupils and their teachers all about the work of the charity and how it supports local children with life limiting illnesses and their families. 

On Monday 7th November the school organised a day of fundraising activities and managed to raise a fantastic £694 from a raffle, cake sale and also a sponsored run. The children ran around the playground and covered the distance of Lands End to John O’Groats, all dressed in brightly coloured clothes – it was quite a sight to behold on a Monday morning in the winter!

Sarah Stott from CHSW commented on the enthusiasm of the pupils in their fundraising; “It was so lovely to see such an enthusiastic bunch of children, and of course staff too, all wanting to raise vital funds for our Little Harbour hospice. Seeing children fundraise for other children is always heart-warming and we are so grateful to all the pupils, teachers and parents who helped raise such a fantastic donation.”

Natasha Gutridge from Sandy Hill Academy said, “We were overwhelmed by the support from our parents, staff and children with our fundraising day. Children’s Hospice South West helps so many local families, we were proud to be able to raise money for their charity.”

Source: Children's Hospice South West

 

Reg Varney paintings raise £3000 for Children's Hospice South West
05 December 2016

Reg VarneyChildren’s Hospice South West has received a very generous donation of £3,000 as a result of an auction of paintings by the former ‘On the Buses’ star, Reg Varney.

The paintings were very kindly donated by Reg Varney’s daughter to Children’s Hospice South West and the auction was facilitated by the Fairlynch Museum in Budleigh Salterton.

Josh Allan, Community Fundraiser at the charity’s Little Bridge House hospice in North Devon said: ‘We cannot thank Reg Varney’s family enough for not only donating the paintings to Fairlynch Museum for the auction to take place but also choosing Children’s Hospice South West as the beneficiaries.’

Source: Children's Hospice South West

Children’s Hospice South West has a Very Merry Christmas Concert
10 November 2016

Woolhanger Christmas ConcertThe bonfires have now been put out, the fireworks fizzled and the pumpkins packed away for another year and Christmas is now well and truly coming. So why not start your Festive Season with ‘A Very Merry Christmas Concert’ full of Christmas cheer, festive songs, mulled wine and mince pies, plus a very special Christmas guest!

This is a perfect Christmas evening for the whole family to enjoy. The concert is set in the beautiful music room at Woolhanger Manor overlooking the stunning surroundings of Exmoor National Park and is in support of Children’s Hospice South West

Now in its third year, the concert brings a very festive start to December. This year the concert features performances from local cappella choir, Vocal Accord, who have a fresh and dynamic sound showcasing both traditional and contemporary songs. Vocal Accord will be joined by local shanty group, Anchors Aweigh.

This Motley crew will provide a very unique sound for Christmas. Both choirs are pleased to be supported by the wonderful young voices of Orchard Vale School Choir and collectively will fill the room with Christmas spirit.

The evening provides entertainment, refreshments, raffle and Christmas stalls. Doors open at 6:30pm with the concert from 7pm.

Tickets are available from Little Bridge House, 01271 325 270, prices are as follows; adults: £12.00, children: £5.00, family ticket (2 adults/2 children): £32.00

Source: Children's Hospice South West

 

Why taking part in Santas on the Run is so important
10 November 2016

Symonds familyIn amongst the thousands of people who take part in Santas on the Run in Bristol are some very special families. They are families supported by the work of Children’s Hospice South West’s Charlton Farm – the region’s only children’s hospice – and the beneficiary charity of this incredible festive fun run.

Anna Symonds of Weston-super-Mare says why the whole family will be taking part in the event in Bristol Harbourside on Sunday 11 December. ‘The reason we are taking part in such a great cause is because Charlton Farm has been a great help to us.

‘We go to Charlton Farm for respite care as our youngest son Nicholas was diagnosed with a heart condition when I was 18 weeks pregnant. Whilst pregnant I was told that he would not make it to adulthood. 

‘We were told about Charlton Farm and at first we were a little scared but after visiting the hospice we were put at ease and felt so at home. Charlton Farm is great for Nicholas as well as our other son, Thomas, who had open heart surgery at 5 months old. Our children have such big smiles when we say they are going to Charlton Farm!  

‘The care team are so supportive, they listen to us and spend one-on-one time with both Thomas and Nicholas. I really don’t know how we would cope if we did not have the respite care.  We play, we swim, we do activities and have days out. Nothing is too much trouble for the staff who take such amazing care of us all.  

We are taking part in Santas on the Run as we want to try and raise as much money as we can for the hospice.  I would encourage everyone to take part to help the lives of such poorly children. They are so amazing and we cannot thank them enough. They really do make a big difference, not only to the children, but the whole family. To us Charlton Farm staff are our extended family and we could not go on this journey without them.’ 

Help support families like the Symonds family by taking part in our Santas on the Run events.

Source: Children's Hospice South West

 

Ditch the socks this year and buy a unique Abseil gift experience instead!
07 November 2016

Buy an Abseil experience!If socks and shower gels aren’t going to impress a loved one this Christmas, why not buy them a unique Abseil gift experience instead? It’s certainly a present with a difference and it’s also supporting your local children’s hospice at the same time.

Abseiling down 220ft of gushing water is an exciting and exhilarating challenge and would certainly suit the adrenaline junkie in your life!

Children’s Hospice South West’s Abseil takes place at the stunning Canonteign Falls in Dartmoor, reputably the highest waterfall in England, in July 2017. 

There are three dates to choose from - 14, 15 and 16 July 2017 – and the event takes place with full supervision and all equipment provided.  The minimum age is 14 and it’s open to people with all abilities, as long as they can make the climb to the top, and the stunning location also makes it a great day out for family and spectators too.

There’s an early bird discount on prices until January 5 2017, so you can treat someone to this fantastic experience for just £36.00.

If you would like to make someone’s Christmas this year, simply contact Jayne at abseil@chsw.org.uk, or call 01271 325 270. 

Or for more information on the event, visit www.chsw.org.uk/abseil

Source: Children's Hospice South West

 

Bristol City FC and Children’s Hospice South West
19 October 2016

Bristol City Football ClubWhen Steve Allen, Frank Fielding and Donna Venables first walked through the doors of Children’s Hospice South West (CHSW) with an idea of raising funds for CHSW’s Charlton Farm hospice we could never have predicated what would ensue.

Over a year later, more than £50,000 has been raised through memorabilia auctions, bucket collections and a charity Golf Day, as well as through donations from BCFC partners including PGA South West, BCFC Supporters Group and Physique Management Company.

Members of Bristol City FC came to the hospice during our Open Days to see for themselves how their fundraising would benefit the children and families we support. Last Christmas the entire BCFC team visited Charlton Farm and presented us with a specialist trampoline which enables children with restricted movement to receive Rebound Therapy.

During this visit the players, coaches, and wider support team chatted with families and the care team, played table football with the children and even sang with the choir! Some incredible memories were created that our families still talk about today and will treasure forever.

The Club has welcomed CHSW children and families to visit them at their training ground in Failand, just minutes away from Charlton Farm; invited them to be mascots on match days and given away tickets for families to watch matches. At the beginning of 2016 their match against Middlesbrough was dedicated to raising awareness of CHSW and its 25th Anniversary year and saw the players warming up in signed CHSW t-shirts which were later auctioned, raising yet more funds for us. 

We cannot thank the Club enough for helping us make the most of short and precious lives as well as raising the profile of the charity within Bristol and the surrounding area through TV coverage, in the local press and on social media.

A special mention must go to the following that have been fundamental in the success of the partnership: Steve Allen, Adam Baker, Frank Fielding, Donna Venables and Scott Murray.

Source: Children's Hospice South West

 

Tree to be Planted in Memory of Shirley
07 October 2016

St Austell and District SoroptomistsThe St Austell and District Soroptomists recently held a ceremony to plant a tree in memory of one of their members; Shirley Rosevear who died on 24th December 2014.

The tree was planted in the grounds of Little Harbour – the children’s hospice at Porthpean run by Children’s Hospice South West (CHSW). It was decided that this would be the perfect location for the tree as Shirley and her husband Howard donated the land to the charity to build the hospice on over five years ago, the tree allowing her legacy to live on.

CHSW has also been the President of the Soroptomists’ Nominated Charity of the Year since April 2015. Over the years the group has donated £2500 to the cause that supports children with life limiting or life threatening illnesses who sadly will not live into adulthood.

Eddie Farwell, Co-Founder and Chief Executive of CHSW said “We were enormously honoured when the St Austell and District Soroptomists asked us to plant a tree in memory of Shirley Rosevear.  It will enhance the grounds at Little Harbour and is a most fitting way of holding Shirley, who was a wonderfully kind lady, in our memories.

It was through the generosity of Howard and Shirley, donating the land where Little Harbour now stands, that enables us to care for the many life-limited children and their families that live in Cornwall and the surrounding areas.

We were delighted to be selected as the Soroptomists’ Nominated Charity of the Year and would like to thank them for their support, generosity and for arranging this fitting tribute to Shirley.” 

Wendy Plaice, joint president of the Soroptimists with Sue Curr said “Shirley joined the Soroptimists in 1981 and was club President in 92/93, the year we went to St James Palace to receive an award from the Queen. She was a valued and active member of the club. A delightful, friendly lady, she was instrumental in bringing many new members into the club including her own daughter. We are to delighted that Little Harbour is allowing us to plant this tree in her memory.”

Since Little Harbour opened to families in December 2011 the specialist care team is now supporting over 85 families with children with life limiting or life threatening illnesses and well over 100 siblings.

Throughout 2016 CHSW has been celebrating the 25th Anniversary since its founding by Eddie Farwell and his Late wife Jill, making it a poignant year for Shirley’s tree to be planted.

Source: Children's Hospice South West

Kitty French: Why I work with children in palliative care
04 October 2016

Kitty French in Little Harbour's sensory gardenIt has been a dream of mine to work as a nurse since I was a child. I have always loved caring for people and meeting people from all walks of life. I wanted a job that was challenging and rewarding every day.

Working with children with life limiting illness is something that I have always enjoyed doing but before I started my training I thought palliative care was only provided at hospital or in the home and I wasn’t sure I had enough experience to do the role and build strong relationships with families.

It was after an elective placement at the Children’s Trust that I knew palliative care was something I wanted to do, because I wanted to provide holistic care.

When working within the NHS I felt I could never give families my time, due to pressures and being so busy. Now, working at Children's Hospice South West, it is so lovely to sit and chat with a family for an hour or two and know I am giving families my full attention and that I don’t have to rush off. The relationships I am able to build with the families are really important and play an essential part in being able to understand each and every family I work with.

When I left the NHS I was concerned I would lose all my acute nursing skills, however I have gained so many new skills and I’m learning every day. As well as attending regular study days and internal training, I work alongside our practice educator on shifts to get signed off on various nursing skills, such working with ventilated children, end of life care and children with tracheostomy. 

Every day is different. I’m looking after different children and always learning. The most surprising thing about the nursing skills needed is for this role is the adaptability: being able to react quickly to different situations.

We are like a big family. We all support each other and really pull together as a team during difficult times at work. Being new to the team, I had no previous experience of palliative care before coming to work here; I felt completely supported from all team members when I first cared for a child at end of life and worked alongside experienced members of the team. Thanks to this support I was able to provide the best possible care for this child and family during their final few days.

It is a privilege to work with these families and be able to look after and support them holistically. Working closely with a family is rewarding and special.

When a family leaves after a stay at the hospice and they say thank you for the care you have provided, it means such a lot for me to know that we have given a family a restful stay. You’re allowing privacy for the family; taking away the everyday stresses from them and enabling them to concentrate on their child. Knowing you’re making the time special for families and helping them make memories to treasure is so important.

You’ll never regret gaining these skills and opportunities working in this environment and you should definitely go for it! I am sure in most professions it is definitely not every day you can say you love your job, but I do.

Source: Nursing Times

 

£25,000 Pledged in the Moonlight
03 October 2016

Moonlight Memory WalkSaturday night saw the streets of Falmouth lit up with lights, feather boas and purple tutus as 400 ladies walked a 5 mile route around the town raising funds for Children’s Hospice South West (CHSW) at the Moonlight Memory Walk.

£25,000 was pledged on the evening by the women who had all raised sponsorship for their walk which they were doing in memory of their loved ones.

As the ladies gathered on the Moor before the walk stories were shared, photos were taken and entertainment was enjoyed from Pirate FM and local singer Jamie Hewett.

Before the walk began at 10pm there was a special Memory Ceremony where poems were read by CHSW staff, Jamie Hewett sang a special rendition of Oasis’ Half the World Away and there was a minutes applause in memory of the walkers loved ones with the walkers’ decorated candle bags creating a beautiful backdrop.

CHSW is celebrating its 25th Anniversary throughout 2016 and there were various silver references throughout the evening including 6 silver balloons that were given out to 6 ladies who have walked every Moonlight Memory Walk since the event began 7 years ago.

Women came from all over Cornwall to take part as well as further afield including one lady, Laura-Beth Henry who travelled 19 hours from Vermont to take part with her cousins from Falmouth and London who were walking in memory of her sister. Laura-Beth, Jocelyn Sietzman, Rachel Brown and daughter Rosie Brown raised over £1300 in sponsorship in memory of their sister and cousin Debbie who died at the age of 48 from Leukemia in 2014.

Reflecting on the evening Kiley Tellam, Events Fundraiser for CHSW said “We were overwhelmed with the amount of ladies that wanted to take part this year and each of their inspiring stories, it was an emotional evening but a very special night for so many people. It feels very fitting that the ladies pledged to raise £25,000 in CHSW’s 25th Anniversary year, these funds are vital to CHSW. I would like to thank everyone who helped make this event such a success, we really are so grateful.”

Thanks go to Fugro GeoServices for their overall sponsorship of the event, Media Partners Pirate FM & The Packet, singer Jamie Hewett, Official Photographer Sian Hewett as well as every one of the volunteer marshals who walked and were stationed along the route.

Thanks are also extended to Flanaghans Food Bar for providing free tea and coffee to the walkers, Fal Fire Protection for their support vehicles, Right Response Training for First Aid Cover, Driveline for the use of their van, Prima Bakeries for their late night delivery of pasties, Ian Stringer from Stringers Gym for his warm up and finally Burts Chips and Costa Coffee for their donations of snacks for the goody bags.

Source: Children's Hospice South West

 

Constantine School's phizz-whizzing fancy dress for Roald Dahl centenary
26 September 2016

It was a gloriumptious day for the children of Constantine School on Friday who dressed up as their favourite Roald Dahl characters to celebrate the author's 100th birthday.

The school was filled with Twits, witches, Oompa-Loompas and even a not-so-giant peach, as the children pulled out all the stops to create some whoopsy-whiffling costumes, and spent all day on a special squibbling task - otherwise known as writing.

The beloved author was actually born on September 13, but the school decided to hold the event last week, allowing children time to create their costumes and wear them in for a £1 donation to the Children's Hospice South West, a charity chosen by the children of the school council.

The children spent most of the day on a whole school writing task, which gave them the opportunity to design their own book character.

Georgia Paine, year six teacher and school literacy co-ordinator, said: "We come together as a whole school about twice a term for a whole school writing task.

"There are not a lot of activities today, just dressing up to celebrate Roald Dahl's 100th birthday.

"The children are having a good day, they were so excited this morning when they were all guessing each others characters. They love dressing up."

Source: Falmouth Packet

 

Chance to help ‘brighten lives’ by volunteering at Children’s Hospice shop in Bath
22 September 2016

When you volunteer at the Children’s Hospice South West (CHSW) shop in Oldfield Park, Bath, you’ll be helping to brighten the lives of life-limited children from the area who are supported by CHSW’s Charlton Farm hospice.

From 26th September – 1st October 2016 each CHSW store is welcoming people to pop in and find out about how they can brighten lives by volunteering.

Volunteers are always surprised at the different things there are able to do when volunteering in a CHSW shop.

From being on the shop floor with customers, to being behind the scenes discovering the interesting items that are donated, to creating window displays or being a van drivers’ assistant on the road.

One CHSW volunteer said: “It’s like being one big family, I’ve met so many people and coming in to volunteer in the shop is the part of the week I look forward to most.”

Volunteers choose when and for how long they volunteer and it fits around their lives.

Each CHSW shop needs an average of 100 volunteer hours each week to keep the doors open and continue to raise funds for its three hospices across the South West.

Even an hour a week would help the charity with the expert care and support they provide for over 400 families throughout the region.

If volunteers are looking for further training and development, CHSW also offers NVQs and work experience. This is an ideal way to gain experience and develop skills to use into the future.

Drop in to your local CHSW shop between 26th September – 1st October to have a friendly chat about what volunteering involves.  You can contact CHSW on 01271 313319 or via volunteer@chsw.org.uk.

Source: Bath Echo

 

Gold Star Awards 2016: Bristol mum stays strong for daughters after watching her child die
22 September 2016

To be forced to watch one child slowly die is an unbearable pain no parent should ever have to experience. But to have two daughters diagnosed with a terminal condition seems an incredibly cruel twist of fate.

Amazingly Abida Ahmed, from Lockleaze, is battling through the horrific trauma; yet she manages to care for herself, her three other children, and even cooks for her friends and neighbours on a regular basis.

When her daughter Hadiya was six months old she was diagnosed with a rare brain condition called GA-1, which affected proteins in her body.

The devastating illness caused her motor function to gradually deteriorate, to the extent that she would cry every time her mum visited her at Bristol Children's Hospital - because it was one of the only emotions she could show.

By the end of her life she was even unable to shed a tear, which her mother Abida said was the darkest point. Hadiya died three years ago, aged 11, following several years in hospital where her condition slowly deteriorated.

But tragically, doctors discovered at birth her little sister Mariam had the same genetic illness. While it restricts all her movements, Mariam – now six – can still talk and eat.

"Although she is wheelchair bound, she is doing very well," said Abida. "Amazingly she can speak two languages. She loves puzzles – even though they can take her hours. She is so determined."

But Mariam requires constant care - to wash, dress, and eat – which Abida admits is challenging and tiring.
Despite this, she is careful to look after herself – going jogging early each day before her family wake, and cooking healthy meals – to ensure she stays fit and well.

"As a parent of a child with special needs it is very easy to forget about yourself, but it's crucial that I don't, because I can't afford to get ill," she explained.

A keen cook, she regularly offers up food to her neighbours, as it makes her feel "satisfied and happy."

"They love my pilau rice, and I think it's good to share food," she said.

Naturally, losing Hadiya and coping with Mariam's illness has had a major impact on her whole family. Her daughter Hufsa, now 10 years old, found it particularly traumatic to say goodbye to her sister when she passed away in 2013.

"She seemed to go backwards for a long time," said Abida. "She went into herself, lost all her confidence and developed problems with her speech."

Despite her own grief and the daily challenge of caring for another ill child, Abida did everything she could to help Hufsa, even travelling to London to attend a parenting course to help children face their fears and regain their confidence after a trauma.

"I worked really hard because it is so important to me that Hufsa is still able to lead a normal and happy life," she said.

"Now, three years on, she has got her confidence back is one of the happiest children you could meet. I never worry about education, or studies – to me the most important thing is that my children are happy. If they smile, then I feel proud."

Since her daughters' diagnosis, Abida says some of the highlights of her life have been spent at South West Hospice, at Charlton Farm.

The family is allowed 15 days a year, which Abida treasures as some of the rare times she is allowed to relax and read a book.

"I can't believe it if I have a cup of tea there I don't need to clear it away," said Abida. "For me that is unbelievable – a dream.

"It's a really lovely place, it has a very homely environment. I can spend time with my husband and take my other children to the park which I can never do otherwise.

"I feel very lucky to have it – the staff are so lovely and helpful. I like to pray and have quiet time when I'm there."

The Gold Star Awards

The Bristol Post Gold Star Awards celebrate Bristol's most inspiring citizens, honouring incredible acts bravery, selfless service to communities, and achievements in the face of adversity.

This year, our winners will be honoured at a glittering ceremony at the Bristol Marriott City Centre hotel on November 29, in association with First West of England.

Entries are open until October 3. If you want to nominate someone for a Bristol Post Gold Star award, email hollythatcherbnm@gmail.com, call 0117 934 3338 or enter online at Bristolpost.co.uk/Goldstar.


Source: Bristol Post

 

Mums' big thank you to the hospice charity that has brought families together
22 September 2016

Two mums say a hospice charity's efforts to help their families has made them best friends. Naomi Grosvenor and Samantha Horn will be doing their bit to pay the children's charity back next week.

Children's Hospice South West (CHSW) has helped them and their families live happy lives with their children Ethan and Lewis, who both have life-limiting medical conditions.

The two friends, brought together by the charity's help, have organised Barnfest2016 at the Martson Inn, Marston Magna on October 1 in aid of CHSW.

Naomi, 30, from Yeovil and Samantha 31, from Marston Magna met when both their families were receiving help from CHSW, based at Charlton Farm in North Somerset.

Lewis Horn-Considine is seven years old, and was born with open-lipped schizencephaly — a fluid–filled cleft in the brain. He also has Cerebral palsy, hydrocephalus and many other medical conditions including Precocious Puberty, which means his body is growing faster than it should be. Lewis is registered blind.

Naomi's son Ethan, 6, has a rare genetic disorder called ARX which means he cannot sit up, walk or talk. At ten days old he had to have a permanent shunt inserted to drain the fluid from his brain to his stomach.

CHSW helps the families out by providing 14 days a year of respite care, the maximum that can be provided, to Naomi and Samantha's families.

The two families get the help in three or four day breaks, which they all look forward to. CHSW also helps with counselling and support for the whole family.

Naomi said: "Ethan is really happy. He eye-points at things and is developing neck strength and tummy strength and is walking around with a frame.

"The Hospice respite care means that I can get complete rest and we can all spend the time we want as a family – take a jacuzzi for instance.

"He's looked after by nurses and has all his very complex needs taken care of and is given all his fluids and medicines. You get a chance to recharge your batteries and get that breather you need to carry on. The hospice has been a massive support.

"Samantha and I tend to do a lot of visits to the hospice together and we can do normal mum things like have a glass of wine, chill out and chat – things we don't get much chance to do otherwise. We get to be mums. Without the hospice we wouldn't survive."

As well as the breaks the charity helps the families by signposting help provides end of life care for the children. Naomi's partner Steve Aldridge and his daughter Dakota also get support from the Hospice.

"The hospice's help means you don't need to worry about what you will do when it probably happens. Without them we would struggle to carry on."

Samantha and Lewis get lots of help from the hospice as do her two older children Daniel, 13 and Scott, 10 and her partner Frazer Considine.

Samantha works as a carer in the community for Somerset Care.

"Charlton Farm is our lifeline," she said. "They are so good. We can get emergency respite care when we need it, as well as the 14 nights a year. They provide end-of-life care counsellors and provide sibling workers for Daniel and Scott, who do so much as young carers. They've taken on a lot of the responsibility of having a disabled brother to look after.

"The hospice gives them the chance to have what a child needs. Daniel's up first every morning, feeds the dogs, fills the dishwasher and helps us hoover the house. They'll both make breakfast and bring us a cup of tea if they find we've been up all night with Lewis and are worn out on the sofa.

"They get rewarded with game-time at home – they can't play on computers or consoles during the week but get four or five hours at the weekend."

The hospice organises sibling days out for Daniel and Scott – days out without all the worries and stresses of everyday life, and has helped them create memory boxes.

"The Hospice gives them the break they need. Their schools have been really understanding and let them have time off in term time so they can come with us to Charlton Farm."

Lewis has to be watched constantly as his body cannot regulate his temperature and can have fits – he is hooked up to a monitor which provides pre warning of a seizure as part of an attempt to wean him off one kind of medication.

He loves going for walks and swimming and really enjoys his time at Fiveways School where the teachers have learned how to communicate with Lewis using musical cues.

"These help him realise what's going to happen next as he can't see. The holidays are the most difficult time as he doesn't get those cues and can get upset," said Samantha.

But we wouldn't change him for the world. He's opened so many doors for us all and opened our eyes to whole world of disability. Before Lewis if you saw someone walking down the street muttering to themselves, you'd just assume they were on drugs or something – now we don't make assumptions like that, you don't stare at people – we'll go up and talk to them and ask that person if they are OK.

"CHSW has helped make a huge network of long-lasting really strong friendships for us. We get together for coffee mornings at Wetherspoons and really support each other.

While Naomi has already organised events to benefit CHSW Samantha has been more involved with providing help by going into schools and talking to children about the hospice and life with Lewis.

"A lot of people don't know about CHSW. It's not really on people's radar," said Samantha.

Their event, Barnfest 2016, is being held on Saturday October 1 at the Marston Inn, Marston Magna. A children's event, admission £5 per family starts at 1pm.

Attractions inside will include a bouncy castle, Bugfest, children's tent, an ice cream van, cakes, hot food and raffles plus much more, so dig deep and have fun.

In the evening there will be more entertainment, with a show from Stevie P and a karaoke and disco.

Admission to the evening event is £3 per person, or an all day family ticket for both events is £10.

Source: Somerset Live

 

Children’s palliative care nurses needed to bridge care gap
19 September 2016

Nurse, Amanda Williams and mumThere are more than 50,000 children and young people in the UK who are expected to have short lives and the number is rising. These children have complex and unpredictable health conditions and rely on qualified children’s nurses with the right skills to provide palliative care and symptom management. Yet there is currently a shortage of children’s palliative care nurses and this is already having a negative impact on the care provided to children and families.

Two thirds of voluntary services surveyed by UK charity Together for Short Lives reported that a shortage in nurses is resulting in a reduced offer of care to families: closing beds, reducing respite or affecting the continuity of care.

Nurse vacancy rates in children’s palliative care voluntary sector is currently 10%, higher than the NHS nurse vacancy rate (7%). And the charity’s annual vacancy surveys show the negative impact on services is increasing year on year - in 2014 43% of respondents said they reduced the service offered to families as a result of vacancies, in 2015 this had increased to 65% reporting their vacancies were affecting the amount of care they can offer to families.

This week (19 Sep) Together for Short Lives launches You Can Be That Nurse, a campaign to encourage nurses to work in the sector and help bridge the care gap. The campaign launches with a film featuring three nurses at different stages of their career in hospice, home and hospital.

The film tackles some of the taboos around children’s palliative care by highlighting how rewarding these nursing roles can be; building strong relationships with families and providing holistic care right from the point of diagnosis through to end of life and beyond.

As part of the campaign, the charity is also asking the UK’s governments and healthcare workforce planners to take action to bring the average nursing vacancy rate among voluntary sector children’s palliative care organisations to less than 10% and closer to the NHS nurse vacancy rate.

The charity would like the Council of Deans to encourage university nurse training faculties to adopt our recognised best practice curricula for children’s palliative care nurse training.

Barbara Gelb, CEO of Together for Short Lives said:  “The number of children who may need palliative care is rising yet children’s palliative care is facing a shortage of qualified nurses to provide care and support for this most vulnerable group of people. And it’s worrying that over a quarter of nurses at voluntary sector children’s palliative care providers are over 50 years, with many able to retire at 55; it’s vital we increase the number of qualified children’s palliative care nurses to bridge this care gap and future-proof care provision for seriously ill children and families.

“We need to encourage more nurses to join a brilliantly committed, intelligent and hard working group of children’s palliative care nurses who are dedicating their skills and passion to caring for and supporting children, young people and their families.”

Gillian Dickson, Workforce and Development Manager said: “Our You Can Be That Nurse campaign is about shining a light on the experiences of those working in this field and the wonderful opportunity a nursing career in this sector can bring. Government, healthcare workforce planners and universities also have an important role in making sure enough nurses are trained with the skills and competencies to care for seriously ill children.

“The nurses I meet working in children’s palliative care are extraordinary people. The varied nature of their role and the opportunity to provide holistic care to the child and their family make this one of the most rewarding roles in nursing.

“You can join them.  You can be that nurse.”

Please share on social media with #YouCanBeThatNurse

 

Source: Together for Short Lives

 

Children’s hospice event raises £1,644
18 September 2016

Wellington Friends Group of Children’s Hospice South West held a coffee morning to celebrate 25 years of the hospice and 15 years of the Wellington Friends Group in Jane and Terry Dickins’ garden on Saturday (Sept 11).

A large number of friends and supporters enjoyed a relaxing coffee and biscuits and spent generously on a wide range of stalls. The group would also like to thank the many local traders who gave plants and prizes.

The committee was delighted with the final profit of £1,644 and wishes to thank everyone who contributed.

In the picture (from left) are Janet Hagley, Wendy Pollard, Pam Marks, Jane Dickins, Vera Rowlandson, Freda Parkinson and Marcia Paul.

Source: Wellington Today

 

Lottery raises £1m for children’s hospice
17 September 2016

Lottery raises over £1million for charityA charity lottery has raised more than £1million to support children with life-limiting conditions in North Somerset. Children’s Hospice South West’s Raise a Smile lottery has been selling tickets at 27 shops across the region.

Participants can buy a ticket at Nailsea and Portishead shops and check on the results to see if they have won.
It costs £1 to play and there are 14 cash prizes with a top prize of £1,000, plus a rollover which can grow to a maximum of £10,000.

Money raised from the lottery will help support nearly 200 families who use the hospice at Charlton Farm in Wraxall.
Anyone interested in playing regularly can sign up online at www.chsw.org.uk/lottery

The charity is celebrating its 25th anniversary this year. The hospice was set up by Eddie and Jill Farwell whose children Katie and Tom suffered from a rare degenerative disorder.

The couple had to travel five hours to reach their nearest hospice in Oxford so they decided to set one up in the South West. Little Bridge House, in North Devon, was the first hospice to be opened in September 1995.

More than 60 families began using it and it quickly became over subscribed. Charlton Farm in Wraxall was opened in 2007 and Little Harbour in Cornwall opened four years later.

The creation of three hospices meant the Farwells had achieved their goal, that no family in the South West should have to travel more than an hour-and-a-half to reach their nearest children’s hospice.

The charity relies on donations and they can be offered at www.chsw.org.uk

Source: North Somerset Times

 

Brean walkers raise over £1,200 for Children’s Hospice South West
16 September 2016

Brean TrekathonOver 40 walkers from across the Burnham-On-Sea area have taken part in a new fundraising walk in Brean, raising £1,200 for charity.

The 2016 Brean Trekathon, supporting Children’s Hospice South West, was held in the village on Sunday September 11th.

The family-friendly sponsored walk started at Brean Leisure Park and three distances were offered: the longest route followed a trail along the bean to Brean Cove, then over Brean Down to enjoy the fabulous views on the walk to Brean Fort and then return (7.5 miles total).

Those that didn’t fancy the hilly Brean Down section turned around at Brean Cove (5 miles total). There was also a toddler-friendly 1mile beach walk.

“We had a good turnout for the first year and thank everyone who came along, took part and enjoyed walking along our lovely coastline.” said organiser Mike Barsby.

Source: Burnham-On-Sea

 

Rugby legend Regan to star at charity dinner
16 September 2016

Mark ReganA world-cup-winning rugby union legend is set to share stories from his international career and discuss the dark arts of the front row at a charity dinner in Congresbury next month.

Former Bristol, Bath and England hooker Mark Regan will host a three-course meal on October 28 at Cadbury House, in Frost Hill, before taking to the stage alongside Somerset County Cricket Club star Peter Trego, who will act as master of ceremonies.

The event begins at 6.30pm with the opening of the bar and dinner is due to be served at 8pm.

The former British and Irish Lions tourist will be supporting charities Children’s Hospice South West and Weston Hospicecare at the event, with an auction set to excite memorabilia collectors.

Regan was a favourite with fans throughout his career and was famed for his passion and commitment on the pitch.
Ronnie, as he is affectionately known by fans, accumulated an impressive 46 caps for England, and was part of the victorious Lions team in 1997.

He reached the pinnacle of the sport in 2003, lifting the Rugby World Cup after Jonny Wilkinson’s immortal drop goal edged England to victory over the Aussies in Sydney.

Tickets for this must-see event for rugby fans are priced £49, and can be purchased from 01934 834343 or by emailing info@cadburyhouse.com

Source: Weston Mercury

 

Rob successfully swims the Channel!
15 September 2016

Rob Russell channel swimIt took 15 hours and 47 minutes in challenging conditions, but on Thursday 1st September Rob Russell swam the English Channel, with many of his friends and colleagues tracking his progress in real-time via a tracking app!

Since 1875, when the first person completed the swim only approximately 2,000 people have ever successfully completed the crossing and there is only a 10% success rate.

Rob, from Clapton-in-Gordano, left from Shakespeare Beach, Dover at 8.30am on Thursday 1st Sept and arrived on a French Beach near Wissant at around 1.30am on Friday 2nd Sept. As the crow flies, the distance is 21 miles, however, because of the tides Rob actually covered between 40-45 miles.

Kylie Gallagher, Community Fundraiser at CHSW, said ‘What Rob has achieved is simply incredible. It’s been a life-long dream of his to achieve this and he has had tremendous support particularly during the challenge when so many people where tracking his progress and willing him to keep going. I’d like to say a huge thank you on behalf of CHSW for his fundraising, which has exceeded £15,000!’

Rob said, ‘I am truly humbled, amazed and dumbfounded at level of support and just a great reminder of a fantastic network of family and friends! The fact that about 40 people were tracking me kept me going! Thank you everyone for all your amazing messages, support and donations for a great charity, Children’s Hospice South West.’

You can still show your support for Rob by visiting his fundraising page.

Source: Children's Hospice South West

 

Charity warns of shortage of nurses in children’s palliative care
13 September 2016

Amanda WilliamsA worrying shortage of nurses working in children’s palliative care is having a negative impact on care, a charity has warned Nursing Times ahead of a new drive to promote the specialty.

Together for Short Lives is preparing to launch a campaign to promote children’s palliative care as a rewarding career to nurses and nursing students.

Its latest warning on staffing follows research that showed an ongoing average nursing vacancy rate of 10% among voluntary sector children’s palliative care organisations, with a knock-on for care.

A survey by the charity year found two thirds of hospices and community services reported nursing vacancies had affected the care they could offer families, with some even forced to close beds.

Others said vacancies meant they were able to offer less respite care, while lack of permanent staff and reliance on bank and agency nurses harmed continuity of care and meant less time for training.

Gillian Dickson, the charity’s workforce and development manager, said the organisation’s research had focused on voluntary sector organisations but staffing shortages in children’s palliative care went wider than that.

“We know that in the UK there are more than 49,000 children with life-limiting conditions. These children are cared for in primary care, in the community by the NHS, in hospitals, in specialist centres and also in hospices and other voluntary organisations,” she said.

“The sort of recruitment problems we’ve measured in hospices point to a shortage of children’s nurses throughout,” said Ms Dickson.

Nurse Amanda Williams doing messy playShe said factors that may deter qualified nurses from entering the sector included the fact it may mean leaving the NHS – although nurses can take their NHS pension with them – and differences in terms and conditions. Other concerns include losing skills and training opportunities.

These are among issues touched on in a short film specially created for the charity’s forthcoming #YouCanBeThatNurse campaign, which features three nurses at different stages of their careers who have chosen to work in children’s palliative care.

Ms Dickson hoped fellow nurses would be able to identify with the three, who speak passionately about how much they love their jobs.

“There is a worry sometimes among qualified nurses that they may move out of the NHS and lose nursing skills but it was quite the opposite for the nurses in our film,” said Ms Dickson. “They were really able to develop their nursing skills.
“Across the NHS and voluntary sector, there can also be a perception that working with children who are very poorly could be sad and we hope to dispel some of that anxiety,” she said.

“We want to get the message across that this can be for any qualified children’s nurses and any student thinking of what they might do with their registration as a nurse should consider a career in palliative care, because they will find it incredibly uplifting with the chance to keep their skills levels really high and opportunities for progression,” she added.

As well as promoting children’s palliative nursing as a career, the charity also wants to see more nurses trained to ensure services can cope with significant increases in the number of children with complex, life-limiting conditions.

Ms Dickson said it was vital workforce planning took account of the fact much care happens outside the NHS.
“There are about 1,500 nurses working outside the NHS in children’s palliative care but when it comes to planning for future workforce these nurses are often not included in the numbers,” she said.

The film will be shared at a strategic level with bodies including NHS England and Health Education England and Together for Short Lives is working with universities to encourage them to feature it on the curriculum of children’s nursing courses.

Nurse, Amanda Williams and mumChildren’s nurse Amanda Williams, a team leader at Children’s Hospice South West, is one of the nurses featured in the film.

“We need to recruit more nurses in this area and I felt it was really important,” she told Nursing Times.

Ms Williams said she knew she wanted a career in children’s palliative care, having worked in the community looking after children at home.

“I think some people are put off by the fact you are looking after a dying child and can’t make them better,” she said.
“But there is no other sector I would work in, because being part of that journey is such an amazing experience with its own rewards and challenges.

“The toughest bit of the job is working with somebody right at the end of their life – it is emotionally challenging more than anything,” she said. “But being there for the family at that time is so rewarding, it’s unbelievable.”

Ms Williams urged students and other nurses simply to “give it a try”. “It is a very different kind of job because you’re very one to one and it is different every day,” she said.

“One day you could be looking after someone at the end of life or doing a bereavement weekend, and another you could be making memories in a Jacuzzi or taking a child out for a trip. It is a very varied role and not doom and gloom all the time – it’s actually a lot of fun,” she said.

She noted that her clinical skills had increased as a result of working with children with complex health conditions and another bonus was support from fellow staff. “You get so much support from the team compared to in a hospital,” she said.

Source: Nursing Times

 

Rover Academy donate to Children's Hospice
12 September 2016

Bristol RoversAs part of the Academy's commitment to supporting Children’s Hospice South West over 170 Bristol Rovers Academy players, family members and staff took part in the Rainbow Run over the summer. 

It was a great day with all enjoying the event and also taking great pride in raising funds for such a valuable cause. 
 
In addition boys from the academy and their families conducted a bucket collection at our first team fixture against Oxford United. Having set an initial target of raising £2000 the combined total including Rainbow Run entry fees, sponsorship and the bucket collection is an amazing £9106.47. 

Academy Head of Coaching and Children's Hospice South West ambassador Paul Hughes said 'We are delighted with the amount raised and its a credit to the efforts of all of our academy staff, players, families and the club as a whole in particular Keith Brookman and our ambassadors Lee Brown, Adam Tutton and Lewis Ellington. 

As well as supporting the Children's Hospice its been great to see our boys develop their social responsibility and consider what a great opportunity they have to help others.  

We are looking forward to showing our continued support to the Children's Hospice South West and see our boys further develop as young men with the values you would expect of this great family football club. 

Source: Bristol Rovers

 

Sharp's Brewery's annual Big Swim
08 September 2016

Sharp's Big SwimThe Sharp’s Brewery Big Swim took place on Sunday 28 August at Port Isaac.

There were four swims: The Little Swim at Port Isaac for the youngsters, The Not So Serious Swim and The Serious Swim, both from Port Gaverne to Port Isaac, and The Super Serious Swim from Port Quin to Port Isaac.

Organised by Sarah Coates the event raised money for Cornish charities and was accompanied by a party atmosphere. After the swimming the party continued until midnight on The Platt in Port Isaac with music from local bands and musicians.

James Nicholls, Sharp’s Brewery’s senior brand manager said, “We are proud of our home here in Cornwall and sponsoring the Big Swim enables us to be at the heart of our community.

We in Cornwall are great at supporting local charities and this year all money raised will go to Little Harbour Children’s Hospice South West, the Air Ambulance, Port Isaac RNLI Lifeboat Station, Port Isaac Coastguard and the National Lobster Hatchery.”

Source: North Cornwall Advertisers

 

The vital role of sensory therapy
08 September 2016

Many of the children visiting Children’s Hospice South West’s three hospices have conditions that affect their senses. This might mean having little or no sight, hearing or ability to speak.

The charity is creative in providing the children with a wide range of stimulating sensory opportunities and experiences that they can enjoy during their stays.

Each hospice provides sensory rooms and gardens, music therapy sessions and a messy play area for imaginative arts and crafts. This multi-sensory stimulation plays a vital role in meeting specialised therapeutic needs for the children who use the services.

The highly equipped sensory rooms in each hospice provide a relaxing, gentle and calming environment which reaches out to all of their senses and are a firm favourite with many children and their parents alike!

The light stimulation equipment can create an atmosphere that is magical and offers the opportunity for a child to utilise their visual abilities by interacting with different beams and sources of light.

Different sounds can be created using tactile materials, shakers and music and a bubble tube can be captivating as well as interesting to touch and listen to.

Music therapy sessions at CHSW open up wonderful possibilities for engagement and interaction with the children. It offers a space in which children can communicate and express themselves, through words if they are able to, but also in non-verbal ways through vocalisation, body language and facial expressions.

Music therapist at Children’s Hospice South West, Ceridwen Rees said: “Music plays a huge part in all of our lives. There is rarely a big life event that doesn't have music at the very centre of it. Music can express so much of what we are feeling and this is where the concept of music therapy is born.

The child is at the heart of every session, and my role is to respond to them and the sounds they offer, mainly through improvisation; with singing and a wide range of musical instruments, from drums to keyboard, from guitar to all manner of percussion instruments. I also use music technology in order to enable the young people to express something of who they are.”

She explains “Some children find that music relaxes them if they are distressed, others will awaken from quite a deep slumber and be energised by it.

Children may choose to make up a song about how they are feeling, others will simply sit quietly with me in the therapeutic space, a place where there is no expectation to perform or do anything other than just be, and to spend time away from all the medical interventions they have to face on a daily basis.

The sessions can be tailored to the individual needs of each child, but we also enjoy many family-based music sessions as well where we might explore the sights, sounds, textures and vibrations of places that you and I take for granted, but which are so difficult to access with the children; such as the beach.”

Find out about our 25th Anniversary

Source: Children's Hospice South West

 

Portishead Rotary presents generous cheque to Children’s Hospice
08 September 2016

Portishead Rotary On Monday 5th September Portishead Rotary Club presented a cheque for £5,000 to Children’s Hospice South West’s Charlton Farm hospice in Wraxall.

The money was raised following a record breaking 20th annual Swimathon at Parish Wharf Leisure Centre, Portishead on 19th March 2016 in which 94 teams took part from Portishead and surrounding districts, raising over £16,000. 

Cheques have also been presented to local primary schools to support activity programmes as well as to local Guides, Brownies, Scouts, Cubs and other organisations.

Mollie Young, the Swimathon co-ordinator said ‘we are so proud of our local community who support us year on year and we are humbled by the commitment given in raising much needed funds for so many deserving causes. We are delighted that we can help in the inspiring work that goes on at CHSW and hope that our donation will go some way in helping those in need who receive such quality of care’.

Kylie Gallagher, Community Fundraiser for CHSW said, ‘We are delighted to have been awarded this funding and would like to say a huge ‘thank you’ to Portishead Rotary and the community who have been so generous’. 

Source: Children's Hospice South West

 

Lottery Tickets now available in your local shop
31 August 2016

Single Lottery tickets available in shops

It's now even easier to play the Children's Hospice South West's 'Raise a Smile' lottery with single lottery tickets now available to buy in all 27 shops.

You can simply purchase a ticket next time you are shopping and then keep a check on the Lottery results to see if you are a winner! They make a great gift idea to put into a card or just play to see if you can win it yourself.

There are 14 possible cash prizes with a top prize of £1000, plus a rollover which can grow to a maximum of £10,000!

Money raised from the ticket sales will help to support nearly 500 families at the charity’s three hospices in Devon, Cornwall and Somerset. 

Find your nearest shop

Legendary Grand Tour passes through North Devon
30 August 2016

Mini Grand TourTowns and villages came to life yesterday (Monday) as hundreds of minis took part in the annual Legendary Grand Tour.
From Pokemon-inspired wagons to balloon clad cars, the minis did not disappoint as they gathered in Victoria Park.

It was part of the last day of the Legendary Grand Tour, now in its 21st year, for Children’s Hospice South West.

On Saturday the minis gathered at Northam Burrows before taking on the ‘kebab run’ around the area. They cruised through Westward Ho!, Northam and Appledore before arriving at The Big Sheep.

There was a free day held there for all mini enthusiasts, with fun going on in the play area until 10pm. Then on Sunday they fomed up along Westward Ho! promenade, taking their tour out to Hartland, Clovelly and Woolsery.

They also passed through Stibbs Cross, Langtree and Taddiport before finishing the day at Dartington Crystal. And yesterday, for the final day, the minis parked up in Victoria Park in Bideford.

They enjoyed music from Bideford Youth Pipe Band before driving through Instow, Landkey, Lynton, Combe Martin and Ilfracombe.

The big finale saw the minis line up along Ilfracombe sea front for a prize giving and raffle.

People lined the streets with deck chairs and flags to watch the now iconic tour come through, which sometimes trailed for over a mile.

And the mini owners got into the full swing too, with costumes ranging from Bishops and brides to Scooby Do and hippies.

Source: North Devon Gazette

 

Weston-super-Mare girls’ brigade raises hospice cash
30 August 2016

A Weston girls’ group raised funds for Children’s Hospice South West (CHSW) by selling teddies and turning their adventures into stories.

The 1st Weston Girls’ Brigade presented the hospice, which is based at Charlton Farm in Wraxall, with a cheque for more than £200 after they sold 25 teddy bears as part of their fundraising efforts.

A spokesman for the Weston brigade said: “As part of a challenge for Children’s Hospice South West’s 25th anniversary, the girls were given 25 teddy bears to take away to do some fundraising.

“The girls managed to sell all the bears in one morning and asked the people buying them to write a short story about the teddy’s adventure.

“When the stories were returned, the girls made them into books, which again they sold – increasing the amount further.

“Several books were also presented to the hospice so the families staying with them could also enjoy the adventures.”

Source: Weston Mercury

 

Women Joining Together to Walk in Memory & Celebration
26 August 2016

Cowboy hats fancy dress at MoonlightThere is just 1 month to go before Falmouth will be filled with women, donning their purple t-shirts and walking through the town in memory of their loved ones at this year’s Moonlight Memory Walk.

The 5 mile sponsored walk organised by Children’s Hospice South West (CHSW) will be raising vital funds to support local families who use CHSW’s Little Harbour hospice in St Austell for short breaks, respite and end of life care for their children. The hospice is used by families all across Cornwall, from Penzance to Plymouth and the surrounding areas, who have children with life limiting or life threatening conditions who sadly won’t live to adulthood.

The Moonlight Memory Walk is not only a special night because of the fantastic amount of money that is raised but it is a poignant evening as everyone walks with the names of their loved ones on their backs and their decorated candle bags, adorned with names, photos and messages of love, light up the Moor at the start and end of the walk.

Although an emotional event the evening is filled with camaraderie, friendship and celebration as women share stories along the route, make new friends and light up the streets of Falmouth as they start walking at 10pm. 

To register, simply visit www.chsw.org.uk/moonlight to guarantee your place, it costs just £12 to enter and then women are encouraged to raise as much money as possible in sponsorship, any ladies over the age of 14 can take part. 

If any men would like to  be involved in the event there are plenty of volunteering and marshalling opportunities please just get in touch with Kiley Tellam on 01726 871 800 or email moonlight@chsw.org.uk  

Source: Children's Hospice South West

 

Truro shop's fresh new look is attracting more customers
26 August 2016
Your Truro Children's Hospice South West shop is benefitting from its fresh, modern new look.

One of the charity's first shops, originally opened in 2004, the Victoria Square shop in Truro has had a much needed update to our new look style store.

"'The bright and fresh shop has created a much nicer shop experience." says shop manager, Rob. "Customers have told us how much better it is than the dark, outdated-looking shop before. Our volunteers love being part of the new look too. We've had more people coming in to see the new style and they also now can see how they are helping to support our Little Harbour hospice."

Whether you shop with usvolunteer or donate items you'll be helping making a difference to short and precious lives. Thank you for supporting us.

See Truro shop's details

 

Truro shop new look

 

 

 

CHSW Truro shop interiorCHSW Truro shop window display

 

Torrington boxers complete uphill challenge for Children's Hospice South West
26 August 2016

Boxers from TorringtonBoxers from Torrington braved bad weather and managed 123 laps of one the town's steepest hills in a mammoth eight-hour challenge to raise money for terminally ill children.

The Torrington Police Amateur Boxing Club raised more than £1,000 for Children's Hospice South West by running up and down Mill Street for eight straight hours.

Participants started the challenge on Saturday, August 20, at 8am and didn't finish until 4pm. The charity challengers ran down the hill and back up again 123 times without stopping or walking.

Boxing coach Wayne Hill came up with the idea and would like to thank everyone who helped make the challenge a success.

He said: "I had the idea in my head for some time but it's not something you can spring on people as it needs lots of thought and some decent training.

"When I told boxing club members what I was expecting there was a bit of colourful language but I knew it was the challenge they needed and they didn't let me down, enthusiastically running up and down in the wind and rain.

"I would like to take this opportunity to thank all those involved and all of those people who generously gave donations."

Most people ran around five laps each but Jake Wright completed the most with 11 laps run.

The length of Mill Street is 0.44 miles, so one lap is not far off a mile. Collectively members ran more than 100 miles.

A variety of members from the club participated including juniors, men, women, mums, dads and also some members of Torrington Running Club donated money and ran some laps.

Support for the challenge was "overwhelming" with drivers stopping their cars in the street to donate and local businesses sending donations in.

Boxing club chairman Shaun Kenneally thanked the community for the support. "Well done to everyone who took part and particular thanks to Wayne for coming up with the idea for such a good cause," he said.

"The support from the Torrington community was truly outstanding both in terms of encouragement and donations. It helped a gruelling challenge seem ever so slightly easier."

Source: North Devon Journal

 

Fire fighters' charity walk from Okehampton to Lynton in full gear raises thousands for charity
24 August 2016

Firefighters from OkehamptonTwo cheques for £4,693 from Okehampton Fire Station have been presented to the Children’s Hospice South West and the Fire Fighters’ Charity following a 24-hour sponsored 83-mile walk Okehampton to Lynton in which the Okehampton crew wore full breathing apparatus.

The firefighters stopped at fire stations along the way including North Tawton and Hatherleigh during their challengeThe cheque was presented at Okehampton Fire Station last Friday night.

Fire Station officer Ian Donovan is pictured with Becky Webber from the Children’s Hospice, Steve Widnell from the Firefighters’ Charity and the chief fire officer of Devon and Somerset Fire and Rescue Service Lee Howell plus supporters and firefighters.

Source: Okehampton Today

 

Charles Green fun day in aid of Children’s Hospice South West
19 August 2016

The annual Charles Green fun day was held in Clevedon at the weekend and the usual mix of games and inflatables were available for people to enjoy.

The event at Clevedon United Football Club, and named after a former member, was in aid of Children’s Hospice South West again this year.

To increase the fundraising total further, an auction was held for a one-night stay at Walton Castle too.

Live music, a veterans’ football match and more meant Sunday’s event again proved an excellent fundraiser for the charity, thanks to the club’s efforts.

Source: North Somerset Times

 

Kaleb's Thumbprint raising funds for Children's Hospice South West
19 August 2016

Open Days School VisitFamily fundraising group Kaleb’s Thumbprint will be holding a garage sale, cream tea and prize raffle to raise money for Children’s Hospice South West (CHSW).

Kaleb’s Thumbprint will be holding its first of many fundraising events at North Tawton Youth and Community Centre, this Saturday (August 20).The event will take place from 2pm to 4pm and all money raised will go towards Children’s Hospice South West.

Local man Luke Compton sadly lost his 18-month-old son Kaleb last year because of a life-limiting condition. After Kaleb sadly passed away, Luke and his family from North Tawton have made it their mission to raise funds for CHSW — the charity who supported them through Kaleb’s condition.

The Compton family recently founded Kaleb’s Thumbprint, which is a family run group dedicated to raising funds and awareness.

Luke said: ‘We hope that everyone in North Tawton will join us to help raise as many funds as possible for CHSW.

‘We wanted to raise funds for the charity because of its work with life-limited children and their families and we hope the event will be a great success.’

CHSW cares for children with life-limiting conditions and their families. The care it offers is wide ranging, CHSW provides respite and short breaks, emergency care, palliative care as well as end of life care.

However, it costs over £8-million to run CHSW’s three hospices in Devon, Cornwall and Somerset, so fundraising for the charity is imperative because of the vital care and support it gives to children and their families across the South West.

For more information about Kaleb’s Thumbprint, contact the Kaleb’s Thumbprint team on kalebsthumbprint@outlook.com or visit the Facebook page ‘Kaleb’s Thumbprint’ or on the Twitter account @KalebThumbprint.

Source: Okehampton Today

Impact Rugby tournament raises more than £20k
18 August 2016

Impact RugbyImpact Rugby women's tournament raises vital funds for local children's charities over the weekend. 

Impact Charity Rugby is in its fourth year and has already raised more than £20,000 for Jessie May Trust and Children's Hospice South West this year alone. 

Formed in 2012, by two Bristol Barbarians rugby players, Bob Barnes and Olly Slym, Impact Charity Rugby has raised over £75,000 during the last three seasons for local charities. 

Impact Charity Rugby is a scheme where around 30 participants, who have either never played rugby or been out of the game for a while, take part in a 10-week training programme.

The players trained their rugby skills and fitness twice a week and competed in a full match last weekend (Saturday, August 13th). 

"Impact Day was incredible and I would like to thank all the spectators and volunteers for making it such a wonderful occasion," said organiser Olly Slym.  

"The sun was shining on the 700 plus spectators as we raised over £20k for two wonderful charities.

"A big thanks needs to go to the girls and head coach, Pete Reakes, who committed so much to the 10-week program both physically and mentally."For them to get the win at the end was just the cherry on the cake."

The program has grown considerably with coverage and support from ITV's ‘Surprise Surprise’ show, England Rugby, Ben Cohen and former England head coach Stuart Lancaster.

Source: Bristol Rugby

 

Impact Charity needs you!
18 August 2016

Impact Rugby charityBristol boys, Olly Slym and Bob Barnes are no strangers to charity fundraising. Four years ago they initiated a rugby training program aimed at introducing more members to their rugby club, which they called the Impact Charity Rugby Team. This culminated in a match that year-on-year has raised thousands of pounds for local causes. Today, they have taken their ‘Impact’ brand to a new level and are aiming to raise £100k in one year for four local charities.

Impact Charity Team 2017 is a fundraising initiative with the aim of raising funds collectively for Children’s Hospice South West (CHSW), Great Western Air Ambulance (GWAA), The Jessie May Trust and The Darren Wright Foundation.

Olly said, “The idea of Impact Charity 2017 is to bring together 100 people with each person pledging to raise £1000 throughout the year in a variety of ways. The fundraising begins in January with a Big Quiz and ends with a Christmas Ball in December. Each month there’s a different event for people to get involved with; there really is something for everyone.”

Kylie Gallagher, Community Fundraiser at CHSW said, “Olly & Bob have come up with a wonderful way for people to come together and make a difference to four fantastic local charities. CHSW’s Charlton Farm hospice supports approximately 200 families who have children with life-limiting or life-threatening conditions as well as over 55 bereaved families. The Impact Charity Team will bring much needed and funds and awareness of CHSW to ensure it can continue to help local families who desperately need our services.”

Faith Tutton from Filton whose daughter Sophie is supported by two of the beneficiary charities said, “Sophie's condition means that she needs constant care. She is fed through a tube, is unable to move for herself and needs 40 doses of medication each and every day. Looking after her requires me to be her full-time nurse.

“Both Jessie May and Charlton Farm take away the nursing duties for a short while, and let me enjoy just being her Mum. Her life may be short, but we need to make the absolute most of it, and cherish every moment. Charlton Farm and Jessie May give us the opportunity to do that.”

If you’d like to be part of Impact Charity Team 2017, visit the Facebook page or email 2017teamimpact@gmail.com.

Source: Children's Hospice South West

 

Amazing city couple buy brand new car for charity in memory of their grandson
16 August 2016

A couple who have raised thousands of pounds in memory of their grandson have handed over the keys for a brand new car to a charity that helps other sick children.

Dave Whitfield and his wife Paula, who own Squire's Guest House on the Hoe, have put all their efforts into fundraising since they lost their grandson to a nerve-wasting disease in 2011.

Ethan Hague, described as a "beautiful angel", was just two years old when he died at his home in Plymstock after a long battle against the devastating condition Tay-Sachs.

Since then his family have been fundraising for Children's Hospice South West (CHSW), which supported Ethan through his battle with the incurable genetic disease.

Dave, Paula and their daughter, Ethan's mum – Nicola Hague – decided this donation would start a fund for a new vehicle at Little Bridge House, CHSW's children's hospice in Barnstaple, to help transport children, especially siblings, on days out as well as in-between their homes and the hospice.

Following a substantial donation from another bereaved family who were also supported by CHSW, this has made it possible for the charity to buy a seven-seater vehicle for use by the care and sibling team at Little Bridge House.

Dave, aged 58, said it is "a wonderful feeling" for the family to have bought this car.

Dave and Paula organise a memorial dinner in memory of Ethan every year and in March the event was held at the Holiday Inn, Plymouth.

Almost £10,000 was raised at the black tie event through ticket sales as well as a raffle and auction. The money, which was split, saw £1,500 donated to the charity Teddies for Loving Care and the remaining £8,500 donated to CHSW.

The family has decided to continue their fundraising for CHSW and will be starting a fund for the upkeep of the car and future purchases of a new vehicle when required.

Dave said: "To be able to have purchased this car in Ethan's memory and keep it on the road and when the time comes be able to buy a new one is a wonderful feeling.

"We have always received a fantastic amount of support from businesses, friends and family. The Holiday Inn management and staff have always been very helpful and they are giving us a donation at the Summer Party.

"My wife Paula and Holiday Inn manager, Richard Newbury, recently parachuted from 15,000 feet to help with our fundraising."

On Saturday, August 20 the fundraising will continue at their summer party fundraiser, also being held at the Holiday Inn. Tickets are £25 and the night will run from 7.30pm – 1am and will include a disco, music, raffle and auction. For tickets please contact Dave on 01752 261459.

Michael Wood, general manager of Holiday Inn Plymouth, added: "I am delighted to have been able to support this great charity and will continue to support them through my relationship with the Whitfield family."

Source: Plymouth Herald

 

Lottery raises a smile in Nailsea
16 August 2016

Louise Turner and winner Joan LittlePlaying a charity Lottery is a great way to make a regular donation to a good cause, whilst being in with a chance to win a cash prize yourself.

This is exactly what happened to Nailsea resident, Joan Little. Mrs Little joined the Children’s Hospice South West’s Raise a Smile Lottery many years ago, although she never actually expected to win! 

However, recently Joan won £1,000 – the top prize which is up for grabs each week with the CHSW Lottery. She said, “I was so surprised but absolutely thrilled. So far I have sent several bouquets of flowers to friends and family, taken someone out for a meal and as it’s such a good cause I’m donating some of the money back! I thought I would spread some joy.”

CHSW’s Lottery is drawn every Friday and there are 14 regular possible cash prizes with the top prize of £1,000. There is also the opportunity to win the Rollover prize, which can grow to a maximum of £10,000! The Raise a Smile Lottery has raised an incredible £1.1 million since 2012 for Children’s Hospice South West.

For more information or to sign up, visit www.chsw.org.uk/lottery

Source: Children's Hospice South West

 

Camborne Ladies Will Walk in Moonlight Once Again for CHSW
12 August 2016

Moonlight Memory WalkTeresa Hale and mum Grace Harrington, both from Camborne, have taken part in Children’s Hospice South West’s (CHSW) Moonlight Memory Walk in Falmouth every year since the charity started the event 7 years ago and will be two of five ladies leading this year’s walk. 

Teresa and Grace took part in the first event in 2009 in memory of Teresa’s gran and Grace’s mum Beryl who died in June 2009.

Teresa said “We lost my gran, mum’s mum in June 2009 and it just so happened that that September was the very first Moonlight Memory Walk in Falmouth so we just thought that it was the perfect thing to take part in. It was very emotional but now it is just something that we look forward to every year.”

Grace added “It’s something that we always do together and it’s lovely when you walk through the town because people come out of the pubs and hotels and houses and cheer you on.”

The Moonlight Memory Walk is a 5 mile sponsored, ladies only walk around the streets of Falmouth at night. This year the event is being held on Saturday 1st October and the walk will begin at 10pm. Ladies are invited to decorate a candle bag in memory of those they are walking for, which are celebrated in the memory ceremony before the walk begins.

Kiley Tellam, Events Fundraiser for CHSW said “Our Moonlight Memory Walk is a very different type of event to others. It is a poignant night for a lot of ladies and everyone is taking part for a special reason. The atmosphere on the evening is so uplifting and everyone joins forces and walks in celebration of their loved ones. It’s a very touching event and one that we are looking forward to welcoming new walkers to as well as those like Teresa and Grace who have taken part every year.”

There is an early bird entry price available until 31st August of just £10 per person so to take advantage of this register now at www.chsw.org.uk/moonlight to guarantee your early bird place.

Any ladies over the age of 14 can take part and if any men would like to  be involved in the event there are plenty of volunteering and marshalling opportunities please just get in touch with Kiley Tellam on 01726 871 800 or email moonlight@chsw.org.uk.

Source: Falmouth Packet

 

Your new Budleigh Salterton shop is open
12 August 2016

Budleigh Salterton shop opens 10 August Children’s Hospice South West (CHSW) is delighted to announce that its new charity shop in Budleigh Salterton is now open.

The ribbon was cut at the opening on 10th August by the charity’s Co-founder and CEO Eddie Farwell and the shop is now open for trading.

Chris Judd, CHSW’s Head of Retail said: “We’re really excited to be bringing a CHSW shop to the community of Budleigh Salterton in our special 25th Anniversary year.

Our new Budleigh Salterton shop follows our new-look shop design and offers a wide selection of goods including good quality clothing, accessories, books and children’s toys. By shopping with us you are helping us to support the short and precious lives of children and families living in the local community.”

As well as the new shopping opportunity that the shop will bring to the town there will also be increased opportunities for volunteering for this special charity and the shop will also welcome donations of pre-loved and unwanted clothes, bric a brac and other accessories and items to sell in store.

CHSW provides respite care and support for children with life limiting or life threatening illnesses as well as their families. It costs over £9million to fund its three hospices based in Devon, Cornwall and Somerset, and the charity relies almost entirely on voluntary funding to safeguard its services.

The Retail side of the charity is growing year on year, now with 27 shops across the region helping sustain the work of the charity in supporting local families.

The new shop is situated in the former Barclays Bank building on the High Street and, if you would like to be involved as a volunteer please feel free to pop in and visit the Shop Manager, or call Stephanie Robey on 01271 313 319 or email volunteer@chsw.org.uk for details.

For more information on CHSW shops and its eBay store, see www.chsw.org.uk/shopping.

Source: Children's Hospice South West

 

Emma Smale shares Imogen's story with Rainbow Runners
10 August 2016

Imogen Smale and her familyEmma Smale put her family's story into words for us to share with our Rainbow Runners at our Exeter Rainbow Run back in June. Here is Imogen's story for our supporters to read:

Imogen, our first child, was born in July 2011. After a very worrying and anxious pregnancy, we were told that she had a condition called microcephaly.

Devastatingly for us as parents we were told by the time that she was six months old that she would have a limited life expectancy. I felt completely heartbroken, unbelievably scared and so worried about how we were going to cope.

Imogen needed 24 hour care, a multitude of medications, physiotherapy and she only ever slept for short periods at a time, which was exhausting.

We were referred to Little Bridge House in March 2012 by the Community Nursing team after a lot of deliberating from us. We were worried if we agreed to be referred to the hospice it meant that we were giving up and accepting our baby girl was going to die. Something that terrified us.

Imogen Smale and familyThankfully, every image and thought as to what the hospice would be like was completely wrong. It was not clinical, formal and depressing but in fact vibrant and happy. I instantly felt safe and like we ‘belonged’.Little Bridge House is beautiful. There is so much to do, fun to be had and so many happy memories to be made. There is always the smell of home cooked food, fresh flowers and sounds of constant laughter and joy.

As parents we were able to enjoy some much needed sleep and felt so confident and happy that our precious little girl was not only medically having the highest quality of care but also the most amount of fun she possibly could.The staff literally does everything in their power.

If a child wants to go in the hydrotherapy pool, go in the soft play, enjoy the sensory room or walk around the gardens, then they do. If they are too unwell then stories, songs, music therapy and fun comes to their room!

During the years that followed, Imogen started to deteriorate and spent more time needing admissions to hospital. I turned to the hospice for advice and support and without them I just don’t know how we would have been able to keep going.

Sadly, on 12 March 2016, our beautiful Imogen passed away in hospital. We were completely broken and lost, but yet again we were helped, guided and supported thanks to the staff at Little Bridge House. We cannot thank the hospice enough not only for what they did for Imogen, but also what they did for us as a whole family!

 

Chris Wood delights local children’s hospice with a generous donation
09 August 2016

Chris Wood with Dominic and Eloise LeggettBristol-born professional golfer, Chris Wood, took time out of his busy schedule to visit Children’s Hospice South West’s Charlton Farm in Wraxall today. Chris has been a supporter of the charity for some time, having grown up in Nailsea, a stone’s throw from the hospice.

Chris said, “I first visited the Charlton Farm hospice about four years ago and immediately wanted to help the charity. My mother has a close relationship with the hospice, having been a volunteer for a number of years at Charlton Farm.

“To see the care that the hospice gives to life-limited children across the South West from South Gloucestershire, Bristol, Somerset, Devon and Cornwall is just amazing and made me want to help in any way I could.”

Charlton Farm is one of CHSW’s three hospices in the South West - all of which offer a home-from-home environment for children who are not expected to live to adulthood and their families. It costs £3million a year to run each hospice and the charity relies almost entirely on voluntary contributions to safeguard its services into the future. 

Chris Wood cheque presentationWhilst at Charlton Farm the ex-Backwell School pupil presented staff and families with a cheque for a staggering £75,000; a donation from a recent charity match in which he attended.

Chris said, “Having worked my way into a position to help the hospice, when I was asked by Tesco to help with their charity pro-am and raise funds for the hospice I didn’t hesitate. Now to be handing over a cheque for £75,000 knowing how much it will help the families is a better feeling than anything I have done on the golf course.”

Nicola Orchard, Head of Care at Charlton Farm said, “We are overwhelmed by Chris’ generosity and commitment to the children and families we support.

“CHSW is currently celebrating its 25th Anniversary since being founded by Eddie Farwell and his late wife Jill and this kind donation helps to ensure we can continue providing respite, end-of-life and bereavement care to families well into the future. We’d all like to thank Chris for helping to make the most of short and precious lives.”

Chris said, “It has been a privilege to be able to do this today and knowing that the harder I work at my game the more opportunities I will have to do this again is incredible motivation.”

Source: Children's Hospice South West

 

Early bird offer for CHSW's Moonlight Memory Walk
05 August 2016

Two members of the Children's Hospice South West (CHSW) Little Harbour team took to the airwaves to launch this year's Moonlight Memory Walk which will again take place in Falmouth.

Kiley Tellam and Caroline Swain joined Neil and Tina on the Pirate FM breakfast show last week to launch the fundraiser.

The five mile, ladies only, sponsored walk is returning to Falmouth on October 1 and in celebration of the charity’s 25th anniversary they are keen to get 500 ladies signed up to walk the five miles around the town in the moonlight.

Joining them in the studio was Suzanne Tanner from St Ives who has taken part in every Moonlight Memory Walk in Falmouth since CHSW started the walk in 2009. She said: “I come back each year because it is such a good event to take part in, it’s well organised, the atmosphere is amazing and along the route people come out of their houses to cheer you on and of course the pasty and goodie bag at the end is always a great treat.

"It’s such a fun evening, you can dress up with your friends, family or colleagues, you can bring your dogs along too and you will have a great night while raising money for a very special cause.”

Kiley, Events Fundraiser, said: "The Moonlight Memory Walk is a very special event and the memory ceremony where we remember loved ones is very poignant but the night is also about celebrating those memories with each step around the town.

"The five mile walk is really achievable for a lot of people and if you haven’t taken part in the event before then please sign up this year and help us to celebrate CHSW’s 25th anniversary, it really is a girl’s night out with a difference.”

There is an early bird entry price available until August 31 of just £10 per person. To take advantage of this register now at chsw.org.uk/moonlight.

Any ladies over the age of 14 can take part and if any men would like to be involved in the event there are plenty of volunteering and marshalling opportunities please just get in touch with Kiley on 01726 871 800 or email moonlight@chsw.org.uk.

Source: Falmouth Packet

 

Abseil 2016 - Event review and abseil stories
04 August 2016

Female Abseil groupAn amazing 91 brave fundraisers went over the edge at Canonteign Falls for Children's Hospice South West last weekend in 2016's Abseil event.

Thank you to Dave Talbot's amazing team of abseiling instructors who ensured the event was safe and great fun. The team also coached our abseilers impeccably, giving everyone much-needed confidence!

Children's Hospice South West would like to say a massive thank you to our volunteers who helped the event run smoothly and of course to LV Insurance, our event sponsor. Their generosity has meant more of the money raised goes directly to support the local children and families that use our three hospices.

Stories from the weekend

Max Boyes, a rather spritely 83-year young man was an absolute joy to meet. However he didn't have the best of starts to the day when he put his wetsuit on back-to-front (our event fundraiser nearly waxed his chest getting him out of it), but soon after he climbed to the top of the falls and then very nimbly abseiled 220ft to the bottom.

Max has also recently entered our Rainbow Run and now abseiled since his wife died last year to keep him busy. He also recently wing walked and is off to drive the Formula 3 cars and for a day out at 'Go Ape' in a fortnight.

Daniel Bishop, took on the abseil as part of his year of fundraising. He is currently undertaking 12 challenges in 12 months in aid of Children's Hospice South West's 25th Anniversary.

Kerry England in her chicken outfitHelen Jane Hicks abseiled for us last year without know she was pregnant. This year she abseiled again after giving birth to twin boys just four months ago!

El Nashar dental practice from Newton Abbot, organised a ball for CHSW in May and then attended our abseil event as their team/family annual outing. They all enjoyed lunch in the wonderful Canonteign café before a group of nine then abseiled (their oldest participant being 73!). After they all enjoyed homemade cakes and afternoon tea in the sun, now that's what we call a great day out!

Kerry England was dared to wear a chicken outfit on her abseil to gain extra fundraising and thankfully she accepted the challenge! She certainly very visible from the spectator's area when she abseiled in her fluffy chicken outfit!

Carle Oxland drew a crowd of supporters who all arrived on their impressive motorbikes at 8.30am on Sunday morning! What a wake up call!

Due to this year's immense sucess and popularity we have added an extra day for 2017. The dates for your diary are - Friday 14, Saturday 15 and Sunday 16 July 2017.

 

Sign up before midday on Friday 30 September 2016 to receive an amazing early-bird discount of 20%. Places are limited to 45 people each day so sign up now to avoid disappointment.

Sign up to Abseil 2017

 

Bald heads and pink beards: Teenager braves new look for charity
04 August 2016

Jake and StefA teenager with a degenerative muscle condition is shaving his head and dyeing his beard pink to raise money for the hospice which helps take care of him.

Jake Norman has spent his whole life in a wheelchair: his condition means the muscles in his legs are too weak to carry him.

The 19-year-old, from Almondsbury, says he prefers not to ask doctors how long he could have left. Instead he focuses his mind on future plans. Next year he hopes to go to university to read Media Studies.

But before that, he wants to raise money for the charity which has brought so much fun and independence into his life. Each year Jake is allowed a couple of visits to Children's Hospice South West's Charlton Farm, based in Wraxall. The holiday is a rare chance for him to spend time away from his family and friends.

This year the hospice also helped him take part in a number of outdoor sports, including abseiling and canoeing. Jake and his younger brother Max, who has the same condition, have been using the hospice for seven years.

Jake said: "I like coming here because I get to choose whatever I want to do and I don't need to work around Max.

"Because we've got the same condition it means I can help him: I've already been through what he has."

Jake is aiming to raise £1,000 for the hospice through his head shave and beard dye. A hospice support worker is planning to take on the same challenge.

"I love coming to this hospice," said Jake. "They let you do whatever you want to, within reason. Everyone knows when to have a laugh and when to be serious as well which is really important.

"Most people here now feel like my friend rather than they are just looking after me."

You can support Jake on this fundrasing page.

Source: Bristol Post

 

Butterflies raise £20k for hospice
04 August 2016

Butterflies for saleA children’s charity in Wraxall has raised more than £20,000 by selling handmade butterflies.

Children’s Hospice South West (CHSW) launched its butterfly appeal earlier this year to mark the charity’s 25th anniversary.

The butterflies have been hand-crafted by Devon-based blacksmith Graham Cumes and painted in a variety of colours. People can buy the insects for £15 and they will be on display at Charlton Farm until the end of September.

The charity has sold 2,160 butterflies so far and there are only a few hundred left to sell before they are sent out to supporters in October.

CHSW supports children and their families who are living with life-limiting conditions and the charity is the only organisation in the South West which provides this vital care in a hospice setting.

The hospice was set up by Eddie and Jill Farwell whose children Katie and Tom suffered from a rare degenerative disorder. The family travelled for five hours to receive support from the nearest hospice in Oxford.

They benefited so much from the care provided they decided to build a children’s hospice in the South West.

Little Bridge House, in Devon, was the first one to open in 1995, followed by Charlton Farm in 2007 and Little Harbour in Cornwall in 2011. The three hospices helped the Farwells to achieve their goal – that no family in the South West should have to travel more than an hour-and-a-half to reach their nearest centre.

To order a butterfly visit www.chsw.org.uk/butterfly and to find out more about the charity’s events visit 
www.chsw.org.uk/25

Source: North Somerset Times

 

Dartmouth adventurers conquer mighty Yukon river
03 August 2016

Daredevil adventurers Yorkie Lomas and Phil Langman have described how they were pushed to the limits on their latest expedition.

The Dartmouth pair have completed this year’s Yukon 1000 Canoe and Kayak Race, finishing in eight days, three hours and 41 minutes, sixth overall and fourth in the tandem canoe category.

They set out as Team Trail Events on July 18 from Rotary Park in Whitehorse, Yukon, Canada, raising money for the Children’s Hospice South West.

The race is by far the longest canoe and kayak race in the world. It is described as an expedition race for which you need to be a strong paddler, and a strong-willed paddler, at that. You also have to be a competent and experienced wilderness traveller, as the 1,000 mile course takes competitors through some of the most deserted land on the continent. 

On completion of the race, Phil sent the following message to base team member Hilary Bastone: ‘Mission accomplished! By no means easily!

‘I think Yorkie and I will both admit we probably underestimated how hard this challenge would be. This is not to say we were not fully prepared with all our equipment for the events that lay await for us but purely the physical and mental limits that the Yukon 1000 pushed us to were massive with some of the highs and biggest lows I have ever encountered.’

The Yukon is a big, fairly fast-moving river, but there is very little whitewater: there are two class two rapids, one of which you can completely avoid. The other is harmless if run correctly.

Phil and Yorkie added their thanks again to everyone who had donated kit and equipment – without whom the challenge would not have been possible – and to those who have given to the children’s hospice charity.

So far around £800 had been pledged on their Justgiving page but the pair are hoping people will continue to make donations. Pledges large or small would be gratefully received and can be made at online.

Source: Dartmouth Today

 

£8k raised for Charlton Farm children’s hospice
02 August 2016

Broad Community TrustIn July a team of willing participants from Broad Community Trust in Weston set off from North Somerset to embark on the mammoth cycle for Children's Hospice South West (CHSW).

The team covered 300 miles in just three days and visited each of the three hospices operated by CHSW; Charlton Farm in Wraxall, Little Bridge House in North Devon and Little Harbour in Cornwall. 

Kylie Gallagher, Community Fundraiser at CHSW, said: “We are absolutely delighted with Broad Community Trust’s donation which will make a real difference to the families who are cared for by Charlton Farm. The team had incredible support from the local community, support which is so vital to keeping our hospices running.”

CHSW is a lifeline to families who need it, offering care and support during the most difficult of times. In addition to emergency and end-of-life care, many families use CHSW for much needed respite care; the hospice is about enriching the lives of children and their families and making the most of short and precious lives. 

Scott Daniels from Broad Community Trust said: "Thanks to all the guys who took part and thank you to everyone who donated, being able to donate such a large sum of money to a worthwhile cause is the reason why we do these challenges."

For more information about CHSW, visit www.chsw.org.uk

Source: Children's Hospice South West 

 

Silver concert raises over £3,000 for children's hospice
29 July 2016

Silver ConcertChildren Hospice South West (CHSW) held its Silver Concert at Truro Methodist Church recently when £3,435.70 was raised for the charity.

Cornwall Symphony Chorus performed and were supported by guests the Truro Junior String Orchestra. Mary Murfin, CHSW community fundraiser spoke about the work of CHSW and the special milestone of its 25th anniversary. The evening was compered by Daphne Skinnard from BBC Radio Cornwall.

Mary said: “On behalf of all of the children and families that we support I would like to thank everyone who was part of our very special silver concert. To all of those who performed as well as everyone who attended on the evening, thank you for being part of our slver celebration.”

Money raised from the event will go towards helping support life limited children and their families through CHSW’s Little Harbour hospice in St Austell. Families can visit Little Harbour for short breaks as well as respite, palliative care, emergency stays, end of life care and bereavement support. The focus at the hospice is for families to make special memories together and have fun.

If you would like to donate to, or raise funds for, CHSW throughout its 25th anniversary year, visit chsw.org.uk/25 to get some fundraising ideas including silver party packs or commemorative butterfly, or call Little Harbour on 01726 871800.

Source: Falmouth Packet

 

Monkton Elm Garden & Pet Centre raises £31,341 for Children's Hospice South West
27 July 2016

Fundraisers for a Somerset charity are celebrating after customers at a garden centre helped raised more than £30,000.

During the past eight years Monkton Elm Garden & Pet Centre has collected £31,341.07 for Children’s Hospice South West through a range of events including open weeks and annual Santa arrival events.

Andrew Pitman, store manager at the garden centre at Monkton Heathfield, said: “We have been fundraising for CHSW since 2008 and recently made a donation of all the funds collected during that time.

“The charity originally got in contact to see if we could donate a raffle prize to them.

"Not only did we donate a prize but we also chose them as our charity of the year for 2008 and have worked with them ever since.

"The staff are fantastic and are always ready and raring to collect cash at all of our events.

“We’d like to thank our very generous customers who have made donations over the years, here’s to many more years of fundraising.”

CHSW is currently the only provider of specialist hospice care for children in the region, offering support for youngsters with a life-limiting or life-threatening condition and their families at its three hospices - Charlton Farm in North Somerset, Little Bridge House in North Devon and Little Harbour in Cornwall.

Gill Brown, recently retired chairman of the Bridgwater Friends of CHSW, said: “We are absolutely over the moon at the donation from the garden centre.

“The money will go towards the work we do for our three children’s hospices so we would like to say a huge ‘thank you’ to all of the staff and the customers who have been so generous.”

Source: Somerset County Gazette

 

Team Start Bay run through rainbows for Children's Hospice South West
26 July 2016

Exeter Rainbow RunA team of twelve staff members, family and customers from The Start Bay Inn, Torcross raised £400 for Children’s Hospice South West at the Exeter Rainbow Run last month.

The Rainbow Run involved running five kilometres around Exeter racecourse while being pelted with powder paint. Everybody in the team, finished the event, and they are all keen to try again next year.

Gail Stubbs from the Start Bay Inn said: ‘The weather was kind, with a breeze and no rain. I can only imagine what we would have looked like afterwards if the heavens had opened.

‘We were delighted to find Darth Vader and his team to jolly us along before the race. We ran roughly 800 metres before having to run through a cloud of green powder paint.

‘Luckily we had all been informed to wear sunglasses as some of the paint throwers were quite enthusiastic. By the time we got to blue further along the track we were ready for another pelting with powder paint only to find even more enthusiasm from the paint throwers!

‘We passed pink and yellow then back around  half the course for more green and blue then orange to finish with drummers welcoming us back to the finish line. Everybody in Team Start Bay finished and had a very hard-earned ice cream.’

The team were Charlotte Barker, Catherine Sly, Clair Martin, Gail Stubbs, Daisy Jacob, Sam Roberts, Louise Martin, Chloe Searle, Max Jacob, Joe Searle, Rebecca Tuck and Wesley Flanagan.

Source: Dartmouth Chronicle

 

125 cycle across the South West and raise thousands for Children’s Hospice
22 July 2016

Ride for Precious LivesRide for Precious Lives (RFPL) - Children’s Hospice South West’s annual 205 mile, three day cycle challenge - took place recently.

This year, to mark the charity’s 25th Anniversary, 125 riders took on the challenge to ride from CHSW’s three hospices, starting at Little Harbour in St Austell via Little Bridge House near Barnstaple and ending at Charlton Farm near Bristol.

Before the cyclists left Little Harbour, Claire Kilbey, Little Harbour’s Head of Care, gave a speech thanking the riders for taking on the challenge they were about to commence: “Each one of you will have a very special reason for being here today and as you ride along that journey, hold onto those memories that you have and take them with you.

We say at Little Harbour, children and families are on a journey and today you embark on your own journey, you will have your uphill climbs and descents and as you face these, take a moment to remember the children and families and the hills they face, the falls they endure, how they themselves get back on their bike of life.

These thoughts will inspire and motivate you like they do for us as a care team. Be safe and have fun, and once again a huge thank you for helping us to make the most of short and precious lives.”

Emma McKeown, the event organiser, said “Ride for Precious Lives is a truly unique challenge, which many people take part in year after year. This year, our 125-strong team have pledged to raise a staggering £125,000, which is simply incredible.”

Source: The Cornwall Advertisers

 

Local man attempts to swim the Channel for charity
21 July 2016

Rob Russell channel swimRob Russell of Clapton in Gordano is attempting to swim the English Channel solo in August in support of local charity, Children’s Hospice South West (CHSW).

It is no mean feat; six people have died attempting to swim this stretch of water, there is only a 10% success rate, wetsuits cannot be worn and the average swim time is 13 hours. And there’s the small matter of age – the average age people attempt this is 30; Rob is 48!

Rob’s training schedule has been intense since he began in October 2015. He’s been to Dover three times to take part in the official channel swim training weekends and is due to go for two further weekends before his attempt next month. Rob has also been training at Budleigh Salterton as it’s good for sea training. These sea swims have seen Rob cover a distance 12-13 miles over a period of six hours.

During the week, he’s been training in the University pool in Bristol, and Clevedon Marine Lake. The only real problem he has encountered so far have been the jellyfish at Budleigh!

Rob is hoping to complete the swim over the shortest distance of 21 miles (as the crow flies) although the current has a tendency to move you many miles from side to side. Rob said “It has been a dream since childhood and is costing a small fortune but all the money raised will go to CHSW and not the cost of this event, which is being paid for by myself.”

Kylie Gallagher, Community Fundraiser at CHSW said “Rob has supported CHSW in the past by taking part in a variety of fundraising events; however, this challenge is on another level! I’m sure the local community will join us in wishing him the very best of luck and I have no doubt he will achieve his life-long goal.”

You can support Rob on his online fundraising page.

Source: Children's Hospice South West

 

Golf club captain hands over huge cheque to grateful Children's Hospice South West
19 July 2016

The captain of a golf club has presented a bumper cheque worth £6,471.89 to Children's Hospice South West.

Mike Smith, outgoing captain of Radnor Golf Club, Redruth, for 2015/16 handed over the cheque to Vicki Hawken from the charity.

Children's Hospice South West (CHSW) was the captain's chosen charity for 2015/2016 and the club held various fundraising events throughout the year including a charity auction, dog show, harvest festival, euchre and darts nights, race night, coffee morning, various raffles and sponsorship boards.

Mary Murfin, community fundraiser for CHSW would like to thank Mike Smith for choosing to support the charity.

She said: "On behalf of all of the children and families we support I would like to thank Mike and all of the club for their fantastic year of fundraising. 

"We are so grateful and your donation will help us to continue supporting local children with life limiting conditions and their families through very uncertain times."

Source: West Briton

 

HRH The Duchess of Cornwall attends Service of Thanksgiving
19 July 2016

HRH Duchess of Cornwall and The Bishop of ExeterRoyal Patron of Children’s Hospice South West (CHSW), HRH The Duchess of Cornwall, attended a special Service of Thanksgiving held at Exeter Cathedral on Tuesday 19 July.

The service was in celebration of the 25th Anniversary of the foundation of the charity by CEO Eddie Farwell and his late wife Jill. Eddie said: ‘The Patronage of HRH The Duchess of Cornwall is a great privilege for our charity and we feel greatly honoured that The Duchess has been able to attend this very important event.’

The special service was in honour of all those who have contributed to the charity over its 25 years. From supporters who have given their time and money to the hospice, hospice staff who have given their special care to the children and families, and to the children and families who use the hospice, including bereaved families.

Banners inside Exeter CathedralOver 700 people attended the service which began with a procession from families and children representing each of the charity’s three hospices in Devon, Cornwall and Somerset. After a welcome and prayer from the Very Reverend Jonathon Draper, Dean of Exeter and introduction from long-standing Trustee of the charity the Venerable Trevor Lloyd, Eddie Farwell spoke of his personal journey in creating the charity following his own experiences of caring for life-limited children. 

As guest of honour, The Duchess was invited to light candles in remembrance of those children who have died over the years of the charity’s service, and as a dedication to the continuing support the hospice provides to the children and families across the South West.

The service, which included singing from the Mousehole Male Voice Choir and a choir of singers from all three hospices, was concluded with a blessing from The Bishop of Exeter.

HRH Duchess of Cornwall presented with flower posy by Hannah SparkesThe Duchess was then presented with a flower posy by Hannah Sparkes aged 9 from Exeter who suffers with a heart condition and has been using the charity’s Cornwall hospice, Little Harbour with her family since 2012.

Mum Sarah Sparkes said: ‘Hannah is so excited to have been given this incredible opportunity. The hospice has been such an important part of our lives and we are delighted to be able to share in this extremely special occasion.’

Children’s Hospice South West is now caring for more children and families than ever before and in 2015/16, the charity supported over 2000 children and family members across the region. As many children’s conditions are degenerative, they will visit the hospices several times over a period of years allowing close, trusting and supportive relationships to be built up between the families and the care team and it is this detailed personal knowledge that helps CHSW to deliver such highly individualised care.

It costs over £9million to run its three hospices and it relies almost entirely on voluntary donations to safeguard its services. 

Photos courtesy of Guy Harrop.

Source: Children's Hospice South West

 

Route 25 digger tour highlights Children’s Hospice
18 July 2016

A digger on tour of the West Country raising funds for the Children’s Hospice South West (CHSW), marking the charity’s 25th anniversary, arrived in Exeter on Monday.

The Route 25 idea is a tour of 25 towns and cities by a painted digger, supplied by JCB, to highlight the charity’s 25th year.

The aim of the journey around the South West is to raise £1million for CHSW, with the public putting money into the digger’s bucket.

The digger’s journey began in Bristol in May, to highlight the charity’s Charlton Farm hospice in north Somerset.

It will finish in Barnstaple on October 17. There will be a grand finale event at Exeter’s Sandy Park on October 28.

The digger tour was the idea of Keith Darch, director of Denbow International Limited, who is a long-standing supporter of the Children’s Hospice South West.

To find out more about the work of the Children’s Hospice South West, see www.chsw.org.uk

Source: Exmouth Journal

 

Open gardens event raises £1,500 for hospice
16 July 2016

Avid gardeners in Yatton raised £1,500 for charity by opening their doors to fellow green-fingered villagers for the day.

The Yatton Garden Trail was jointly organised by the Yatton and District Horticultural Society and the Yatton and Congresbury Wildlife Action Group (YACWAG) with 14 gardens across the village open to guests on June 26.

Organiser Faith Moulin said: “It was the first garden trail in Yatton for several years and was very well attended in spite of the steady rain during the afternoon.

“It raised £1,500 for the Children’s Hospice South West’s 25th anniversary appeal and the big cheque was presented to the hospice at Charlton Farm in Wraxall.”

Source: Weston Mercury

 

Do you love shopping on eBay? Could you help Children’s Hospice South West?
14 July 2016

Chinon Court internalDue to the continued growth of its charity eBay store, Children’s Hospice South West (CHSW) is looking for new volunteers to expand its eBay team based at its retail offices in Tiverton. 

It’s a varied role, and you could be called on to help out with anything from cataloguing stock and preparing lots for sale, to even photographing sales items. 

If you have a few hours each week to spare and would like to find out more how you could help with eBay sales, the charity is holding an eBay Volunteer Open Week from 25-29 July at its retail offices at Chinon Court, Lower Moor Way on the Tiverton Business Park. 

The taster sessions will run from 10-4pm, and anyone interested can pop in to meet the team and find out more about being an eBay volunteer. The offices are situated on the business park, the second turn on the left after Homebase, and there is also a bus route which covers the park. 

For more information, please call Stephanie Robey or Chris Cameron on 01271 313319. For details of the CHSW eBay and retail shops see www.chsw.org.uk/shopping

Source: Children's Hospice South West

 

Curryoke Cash for CHSW
12 July 2016

Curryoke cheque presentationA Curryoke fundraiser held on 5th March has raised £7480 for Children’s Hospice South West (CHSW). Mike and Lyn Turner from Plymouth have recently handed over a cheque for £7480 to CHSW, a charity close to their hearts, following their annual fundraising evening which was held at Café Indiya in Stoke in March.

A three course Indian meal was served in two sittings throughout the evening and there was entertainment from guest singers as well as an auction, raffle, karaoke and a disco to end the night. 

Lyn would like to thank everyone who came along and supported the evening she said; “We would like to thank Mansell and his team at Café Indyia which contributes to making the event so successful. Also thanks go to Vi-Spring and Michael Spiers who have supported the event for the past 5 years, Jamie and Jack for all their help organising the music and stage as well as everyone else who contributed and enabled us to make this event such a success.” 

Lyn knows all too well of the work of CHSW as Lyn’s grandson Lucas Willingham has a complex life limiting illness and is supported by Little Harbour children’s hospice near St Austell.

The whole family visit for short breaks and respite, including Lucas’ two sisters, and have time together to relax and make special memories. The burden of medical needs is taken care of by the skilled team of care staff, making Little Harbour a very special place to the whole family.  

Zoe Partridge, Community Fundraiser for CHSW said “On behalf of everyone at CHSW I would like to thank Lyn and Mike for all of their hard work in organising this event. They did a brilliant job, the evening was a great success and what a fantastic amount raised which will help us continue helping families to make the most of short and precious lives.” 

CHSW is celebrating its silver anniversary throughout 2016 as it is 25 years since the founding of the charity by Eddie Farwell and his late wife Jill.

If you would like to raise funds for CHSW and help the charity celebrate 25 years of supporting children with life limiting conditions and their families then simply visit www.chsw.org.uk/25 or call Little Harbour on 01726 871800.

Source: Children's Hospice South West

 

Penmorvah Manor's anniversary celebration raised £881 for children's hospice
11 July 2016

Children’s Hospice South West has thanked everyone who went along to Penmorvah Manor’s silver garden party held earlier this month.

The hotel in Budock Water has also been praised for the "fantastic service and hospitality" which enabled the charity to raise £881.

Mary Murfin, community fundraiser for CHSW, said: “I would like to thank everyone who was involved in making the day so special. It was a lovely way to celebrate the 25th anniversary of our very special charity and it is great that such a brilliant amount was also raised on the day.”

Source: This is the Westcountry

Star trekkers raise thousands for charity
11 July 2016

Startrekkers have generously donated £35,000 to local charities at a presentation ceremony held at Children’s Hospice South West headquarters of Little Bridge House in Fremington.

The night time trek organised by both Ilfracombe Rotary clubs saw 48 teams of walkers set off from Brendon Barton Farm on Exmoor at dusk on March 5 to complete the 16 mile challenge.

The main charities that benefited from the teams’ fundraising were the Children’s Hospice South West and North Devon Hospice, both of which received £9,000, and Devon Freewheelers blood bike service, which received £3,000.

Other charities that received cheques from winning teams were Ilfracombe RNLI, Amigos Worldwide, Over and Above and Multiple Sclerosis.

The winning teams were Pludd Plodders for the full trek, Map What Map for the half trek and Norfolk Enchants from the Pack O’ Cards, Combe Martin, for the pub challenge.

The team which raised the most sponsorship was Marwood Mafia, and the pub that raised the most sponsorship was The George and Dragon Ilfracombe. The Corporate Award for the business raising the most sponsorship went to James Electrics.

Organisers of the annual event hope that Startrek 2017 will draw even more support. It is set to be held on March 4-5 and will be particularly special as it marks the event’s 25th anniversary.

Over the course of its history, Startrek has raised a total of over three quarters of a million pounds for charity.

Both hospices will continue to benefit, as well as a third charity chosen for 2017 – Devon Air Ambulance Trust. Many other local charities will also continue to receive support from the sponsorship raised.

If you are interested in getting involved in next year’s challenge, application and sponsorship forms will soon be available to download from: www.rotary-startrek.org.uk.

Source: North Devon Gazette

 

Peter Zipwires for CHSW
08 July 2016

Peter Boyer, Plymouth shop volunteerCharity shop volunteer Peter Boyer has recently completed a zip wire at Bethesda in Bangor which reaches for almost one mile across a quarry lake. 

Peter volunteers for Children’s Hospice South West (CHSW) and works in its Plymouth charity shop on Cornwall Street. He completed the zip wire on 23rd April and raised £265 for the charity whilst doing it. 

Community Fundraiser for CHSW, Zoe Partridge said “On behalf of CHSW I would like to thank Peter for his bravery in taking on the zip wire challenge all in the name of CHSW. Peter is a great supporter of the charity as a shop volunteer and we are so grateful that he felt compelled to raise money for our special cause by setting himself this challenge.” 

Throughout 2016 CHSW is celebrating the 25th Anniversary since its founding. If you would like to celebrate with the charity by organising or taking part in a fundraising event simply visit www.chsw.org.uk to get some ideas or call the Fundraising Team on 01726 871 800.

Source: Children's Hospice South West

Porthpean Family Fun Day is Back!
08 July 2016

Daisy - Best in show at Porthpean fun dayPorthpean family fun day is back once again this year to support Children’s Hospice South West (CHSW) on Sunday 31st July and this year it’s bigger than ever. 

Kindly supported by Santander the event is taking place at Porthpean Outdoor Centre from 10.30am to 4pm on 31st July and is free to enter - all you have to do is pay for the activities you would like to take part in. The day will be packed with lots of fun activities including indoor climbing wall, archery, high ropes, zip wire, laser tag and inflatable slide and swing boats for the littles ones, along with many stalls including face painting, crafts, jewellery, plants as well as hot dogs and other refreshments including Cream teas. 

One of the highlights of the day will be the Mutts Mayhem fun dog show which this year will have 15 classes for dogs to enter with the 7 new classes for 2016 including Best condition, Dog the judge would most like to take home, Best short coat and Best long coat. No advance registration is needed so your dog can enter on the day for only a £1 per class and be in with a chance of winning Rosettes from 1st to 4th place and specials to be won in every class. There will also be trophies for Best in Show, Reserve Best in Show & Best Child Handler. 

Mary Murfin, Community Fundraiser for CHSW says ‘We are really looking forward to this year’s Family Fun Day especially with the 7 new classes we have added to the our Mutts Mayhem fun dog show. There will be something for the whole family to enjoy and we look forward to seeing everyone there having great fun whilst raising much needed funds for CHSW and our Little Harbour hospice at Porthpean.” 

CHSW is celebrating its 25th Anniversary throughout 2016. The charity provides hospice care to life limited children and their families in the south west with Little Harbour at Porthpean being on hand for families from Cornwall and Plymouth. 

If you would like to get involved and would like to do some fundraising for CHSW why not visit  www.chsw.org.uk or call 01726 871800 to get all the information you will need to get started.

Source: Children's Hospice South West

 

Pennoweth Primary School pupils hold fun run to fundraise for less fortunate children
05 July 2016

A sponsored run is expected to have raised more than £500 which will go towards helping life limited children and their families.

The run took place at Pennoweth Primary School in Redruth and was organised by nine-year-old Cayden Tiddy and his assistant Ben Charleston.

Cayden and Ben organised the event after hearing about the lives of less fortunate children during their assisted reading class and deciding to do something to try and help.

They immediately contacted Children's Hospice South West's Little Harbour and told them of their plans.

Assistant headteacher at the school Helen Gaskin said: "The event went brilliantly and has raised at least £500 for Little Harbour.

"Cayden and Ben came to me at running club and asked if they could organise the event. From there they took the running of the fundraiser upon themselves and in all 28 club members took part.

"We'd also like to thank the health food shop in Redruth who donated supplies and Santander bank that said it would match whatever total we raise."

Source: West Briton

 

Local support for a local charity
04 July 2016

Chris and KylieLast year, local charity, Children’s Hospice South West (CHSW), was chosen as Yeovil Inner Wheel’s charity of the year. 

Chris Irwin explains why she chose CHSW as the beneficiary charity during her year as president: “I visited CHSW’s Charlton Farm on an open day and saw what wonderful work they do. It is such a happy and inspiring place for the families who have children with life limiting conditions, they help make the most of life, which should be a lesson to us all.”

CHSW is celebrating its 25th Anniversary since its founding by former Yeovil resident, Eddie Farwell MBE and his late wife Jill. 

During the handover to the new President at Yeovil Court Hotel, Chris kindly presented a cheque to Kylie Gallagher, Community Fundraiser at CHSW for £1,800. The total raised by the Inner Wheel during the year totals fabulous £2,435. Yeovil Inner Wheel held two events to raise funds for the charity.

In November it organised a charity night at the Swan Theatre for Shakespeare’s Twelfth Night’ and in May it held a wine wasting evening at the Davis Hall, West Camel. Both were very successful and educational and enjoyed by the members and their friends. 

CHSW operates three hospices across the South West; Charlton Farm near Bristol looks after families from Somerset, Bristol and Bath. The care offered at each of its hospices is not simply about medical and nursing care for sick children, but about enriching the lives of children and their families and making the most of short and precious lives. 

Kylie Gallagher said “We are so grateful for the support from the Yeovil Inner Wheel, especially in such a momentous year for the charity. Our Charlton Farm hospice costs in the region of £3.3 million each year to run and we simply couldn’t provide such vital support to families without the generosity of our supporters.” 

Source: Children's Hospice South West

 

The new ‘Veggie-Power’ Pasty from WC Rowe has the feel-good factor after competition finds a winner
02 July 2016

Design yer own pasty competitionA pasty chef from Connor Downs has been chosen as the winner of W C Rowe's 'Design Your Own Pasty' competition. Janna Eyre's Veggie Power Pasty was the most popular in a shortlist of three with the winner being chosen by public vote.
Janna will now see her veggie pasty go into production for sale at W C Rowe’s shops across Cornwall.

The ingredients Janna chose to put in the pasty includes; baby spinach leaves, butternut squash, feta cheese, red onion, red chilli and oregano, mostly inspired by her mum’s allotment in Hayle.

Nick Brown, Development Chef at W C Rowe says about the pasty: “The unique combination of ingredients makes this a truly exciting vegetarian option which will appeal to all tastes, even meat eaters.

"It’s the first time we have seen these delicious ingredients in pasties and we believe it will be a popular alternative to our cheese & onion pasty this summer”.

Janna was also keen to ensure that this vegetarian option was a taste sensation, after years of eating the same ‘boring veggie pasties’ in her own words.

She further comments: “The inspiration for the Veggie Power Pasty came from the crops that my mum grows in her veg patch, tons of spinach and lots of yummy butternut squash. I also love running and because I love pasties, I can now have a Veggie Power pasty to keep me going on a long run”.

The Veggie Power Pasty will be on sale from today, Friday, July 1. Five pence of every pasty sold will be donated to Children’s Hospice South West, a joint initiative set up by Rowe’s and CHSW.

Bernadette Chambers, Corporate Partnerships Fundraiser for Children’s Hospice South West said: “We are absolutely delighted to be befitting from the sales of the winning pasty from the competition. Money raised will come straight to Little Harbour and help us in offering care and support to local families facing a difficult time ahead. We are so grateful to Rowe’s for involving us in the competition in our special 25th Anniversary Year and we encourage everyone to try the winning pasty at least once!”

W C Rowe ran the competition over the past six weeks to ‘design yer own’ pasty. After choosing the top three designs, it then went to a public vote.

With over 440 votes of the total 1,100 votes received, this veg-tastic pasty was a clear winner.

Source: Falmouth Packet

Emma 'constantly inspired by the support' for CHSW
29 June 2016

Emma Perry joined Little Bridge House in Fremington, Barnstaple six years ago as a community fundraiser, most recently progressing to senior fundraiser. She heads a team of event and community fundraisers – of them each helping to raise much needed funds to support children with life-limiting illnesses and their families.

From cake sales to county shows, Emma has dedicated her career at CHSW to spreading the word of the charity and supporting the community.Emma Perry

She got involved with CHSW after working for CLIC Sargent as an events fundraiser, a role which gave her an initial awareness of the hospice. An opportunity came up to work fundraising within the community at CHSW, giving her the chance to build local relationships.

The role of senior fundraiser sees her getting involved in all aspects of the community, from supporting individuals in their fundraising to arranging events, and for many, following this up with tours of Little Bridge House. She said: “I never know who I’m going to meet or what I will be getting involved in next. I am constantly inspired by the support we get.”

Emma has a passion for CHSW and gains huge job satisfaction from her role, for which she credits the team with which she works, as well as the fantastic support they get from the wider community.

“CHSW is such a fundamental part of the South West,” she said. “It’s such an essential service to families that need the support. For the community to continue to be behind the charity is essential.”

It costs £9.8 million each year to fund the services at CHSW’s three hospices in Devon, Cornwall and Somerset, and the charity relies almost entirely on voluntary funding, but Emma looks forward positively to the next 25 years of the charity, envisaging it developing and responding further to the needs of families. She said: “Here’s to the next 25 years of Children’s Hospice South West; making the most of short and precious lives thanks to the support of people in our communities and beyond.”

Source: Children's Hospice South West

Find out about our 25th Anniversary

 

1600 Rainbow Runners raise funds for Children’s Hospice South West
27 June 2016

Newquay Rainbow Run 2016Although a wet day on Sunday 26 June, the weather did not dampen the spirits of the 1600 people that took part in Children’s Hospice South West’s (CHSW) Rainbow Run at RAF St Mawgan.

The 5km charity fun run, sponsored by Ann’s Cottage, captured the imaginations of people from all over Cornwall and all ages, with some as young as five years old taking part.

The charity, which supports children with life-limiting and life threatening illnesses as well as their families, hopes to raise £75,000 from the event.

Before the run participants were entertained by Media Partner Pirate FM and were treated to the chance to watch and join in with cheerobics and hula hooping routines, and enjoyed a performance by 4 Funks Sake Dance Academy.

As CHSW is celebrating its 25th anniversary this year there were various silver surprises throughout the day including a performance by Titan the Robot for the children, as well as an extra Silver station to run through, where people got sprayed with water before they got to the first coloured paint station.

The route took participants along a 5k route around RAF St Mawgan’s training ground where they ran through different coloured paint stations along the way getting covered in all colours of the rainbow.

Each paint station was sponsored by a local business; Steve Andrews Tyres, Henry Orchard & Sons, Optimus Performance Marketing and Abode Property Agents.

Kiley Tellam, events fundraiser for CHSW said “I would like to thank absolutely everyone who was involved in making the Rainbow Run such a success this year. We had a record number of participants and we hope that we can raise £75,000 from what was an incredibly colourful day. It was overwhelming to have such a sea of local people taking part to support the work that the charity does for families in such times of uncertainty.”

RAF St Mawgan Station Commander, Wing Commander ‘Baz’ Bazalgette said, “We are delighted to be able to support Children’s Hospice South West and the wonderful work that they do, by once again hosting this fantastic event, and we enjoyed welcoming the 1600 runners who took part this year. As the Centre of Excellence for Defence training, we are used to hosting large numbers of military personnel, but none are as bright and colourful as the Rainbow Runners. The less-than-ideal weather failed to dampen the spirits of the hundreds of men, women and children who took part, and it has been a pleasure to work with this wonderful charity over the past two years.”

Registration for Rainbow Run 2017 will open this week and all those interested are encouraged to keep an eye on CHSW’s website www.chsw.org.uk/rainbownewquay and social media sites for when to register.

Source: North Cornwall Today

 

An emotional speech at Bristol Rainbow Run 2016
23 June 2016

Clare Toller giving her speechOur Charlton Farm mums did a fantastic job on stage at Bristol's Rainbow Run on Saturday 18 June representing all of the families we support and it was extremely heart-warming to see their silver balloons along the course.

One of our mums, Clare Toller, gave an incredibly emotional and beautiful speech of thanks to all our Rainbow Runners for the support offered to her son Grayson and her family.

Here is Clare's full speech from the day:

"This coming Monday (20 June) would have been my son Grayson's 3rd birthday. He was born with a very complex heart condition, which meant that he only had a short time with us. In fact, just under 3 months.

So how do you deal with having to face losing a child. The very child you have longed for, cared for and so very much loved long before you knew they existed. You probably never will. I guess the only thing you can do is make the best memories possible, because you know that one day the memories are all that you will have.

For us there won't be any first words, first steps, hearing him call me Mummy, watching him grow into a man and have a life ahead of him. All we had was the here and now with him. We were therefore extremely lucky to have the most wonderful place to do that, Children's Hospice South West.

It is in a lovely countryside setting in Wraxall and is nothing like you would imagine a hospice to be. The place is full of love, smiles, happiness and laughter. We had the luxury of nurses and doctors to help with all the medical care but in a non medical environment, in a home from home setting. In fact it's almost like a 5 star hotel with the pool, wonderful food and extensive play facilities.

Silver star balloons

Our eldest son Aiden who was 4 at the time had constant access to a fantastic siblings team, who helped him every step of the way to deal with all he had to face as a brother of a life limited child.

Our days were the happiest of times just as a family should be. Some of our favourite and most precious memories with Grayson lie within the walls of the hospice, and I credit the entire hospice team for them all. We were able to make the most of not just everyday, but every hour and every minute.

I remember spending a long sunny afternoon in the tranquillity of the garden with my dear little boy in my arms and thinking how lucky I am to have that moment with him. I went on to think of all the people who had given up their own precious time to raise money for the hospice to give me those perfect moments.

I used to wish that one day I could personally thank each and every single one of them for all that they have given me. Well today I am humbled to have been given the honour of doing just that.  But thank you does not seem big enough to express my gratitude for what you are doing today.

 

However, on behalf of Grayson, my family, the families here with us today, the families who have been supported by the hospice over the past 25 years and those who will in the future. Please accept our most sincere and heartfelt thank you.

The hospice could not survive without you. You may think that what you are doing today is just small and insignificant. It is not. You are ensuring families are able to make the most of such short but so very precious lives. Thank you."

Source: Children's Hospice South West

 

Childrens Hospice South West Rainbow Run
20 June 2016

Rovers AcademyOver 160 Bristol Rovers Academy players, family members and staff took part in the Rainbow Run this weekend as part of our partnership to support the Children’s Hospice South West.  

It was a great day with all enjoying the event and also taking pride in raising funds for such a valuable cause.  Having set an initial target of raising £2000 the 5 combined totals including sponsorship and entry fees has now exceeded £5000 and there is still time to donate.

Speaking of the partnership, Lead Foundation Phase Coach Paul Hughes said; "It’s a real privilege to be able to help Children’s Hospice South West and it will be brilliant to see our boys become involved in helping a very prestigious charity."

“We place a real emphasis on developing our boys as people, as well as footballers, through a wide range of strategies and I think helping them focus on the opportunity they have to help others is important.  We want to produce excellent footballers for Bristol Rovers with the character and values associated with our great family club.”

Olly Slym, on behalf of Children’s Hospice South West, said; "Forming a partnership with Bristol Rovers FC has been, and will be, fantastic.  We have so much planned for the coming year, starting with the wonderful Rainbow Run, Hospice Visits, and a few surprises along the way.

"I would like to say thank you for helping us make the most of short and precious lives in the south west.  I would also like to extend my thanks to Lee Brown and Adam Tutton for becoming Partnership Ambassadors along with Paul."

Lee Brown has already paid a visit to the Charlton Farm hospice during the planning for the Rainbow run to show his support for the great work they do.

Source: Rovers Academy

Bristol Rainbow Run runners take Twitter by storm including Justin Lee Collins
18 June 2016

Bristol Rainbow RunThousands of runners, who have taken part in charity race covered in colourful paint in Bristol, have flooded Twitter with paint-filled pictures.

Now in its fourth year, some 3,000 people took on the Bristol Rainbow Run at The Downs, near Clifton, this afternoon.

Competitors were asked to dress in white for the race, and were pelted with brightly coloured powder as they made their way round the course.

The event was raising money for Children's Hospice South West, which provides both at-home and hospice care for terminally ill children.

Bristol comedian, Justin Lee Collins, took part in the race and described it as an "epic" and "fantastic event", on Twitter.

Many other competitors took to social media to mark their achievement and show off their pretty paint patterns. Jackie Orr tweeted: "What a fun time!"

Jon Craig added: "What amazing atmosphere on The Downs for Children's Hospice South West." 

Source: Bristol Post

 

Let’s hear it for the girls!
16 June 2016

For the fourth consecutive year the Impact Charity Rugby team has been formed. Made up of a group of dedicated, committed individuals willing take on a10-week intensive training programme, the team prepare for a rugby match in support of two fantastic local charities – Children’s Hospice South West (CHSW) and the Jessie May Trust. However, this year it’s different. This year it’s the ladies who’re in training!

Olly Slym, Community Fundraiser at CHSW and co-founder of the Impact Charity Rugby Programme team said, “The new Impact Team began their training this week and have been fantastic. The ladies have thrown themselves into the challenge of fitness, fundraising and rugby. During a recent tour of CHSW’s Charlton Farm the ladies saw first-hand how their commitment will make a real difference to the families we support.” 

Since its inception four years ago, the Impact Charity Rugby Programme has raised in excess of £50,000 for local charities. The Impact ladies already have some inventive fundraising ideas including the formation of their own ale to sell on match day as well an Impact Ladies calendar. 2016 promises to be the best year yet and the team look likely to smash their £25k target!

Julian Withers, Head of Fundraising and Communications at Jessie May said, “We are so delighted to be involved with Impact Rugby Charity again this year. Not only does the rugby programme raise much needed funds and awareness to support our nurses, it also is a fantastic day out for our families and supporters. This year we are especially excited that ladies will be taking on the 10 week challenge and we look forward to cheering them on throughout the programme and on game day.” 

The event takes place at Bristol Barbarians RFC in Whitchurch and will include live music, a DJ, bouncy castle, face painting, BBQ, hog roast and outdoor bar.

Source: Children's Hospice South West

 

Memories of late son inspires North Devon dad's challenge
15 June 2016

A father is to honour his late son by taking on a marathon challenge in aid of Children's Hospice South West.

Rick Dean has set himself the arduous challenge of walking from Little Bridge House in Fremington all the way to their Cornish base, Little Harbour, near St Austell – and back again.Rick Dean

Rick will begin his 150-mile journey on 21 June at 9am, and hopes to return home on June 28, the actual founding date of Children's Hospice South West.

Rick has fundraised for the charity tirelessly since the charity supported him following the death of his son, Kierran, who died just aged six in 2003. He will commence his homeward journey from Little Harbour on the 25 June – which would have been Kierran's 20th birthday. 

Rick said: "The hospice helped us so much following Kierran's death that I wanted to give something back. The hospice has helped us through our darkest years. Families need a hub and for us, Little Bridge House was that hub."

Chief executive, Eddie Farwell said: "My hope is that in another 25 years Children's Hospice South West will have expanded its services and is looking after even more children with life-limiting illnesses, and that the army of supporters who care so much for these children are there to sustain what we do."

To support Rick during his anniversary walk challenge please visit www.justgiving.com/theanniversarywalk

Source: North Devon Journal

Find out about our 25th Anniversary

Emma's lottery win
15 June 2016

Emma Monk, Lottery winner

Luck was on the side of Emma Monk from Tavistock recently when she won £100 in Children’s Hospice South West’s (CHSW) Raise a Smile Lottery.

Emma, who joined CHSW’s lottery just a month ago after seeing the CHSW lottery team in a local supermarket, is delighted with her win.

Emma said “I only joined the lottery a month ago but I think that CHSW is a great charity to support and I thought that by joining the lottery this would be a good way that I could donate to them. I never thought I would actually win though, it was a lovely surprise!”

Emma is planning on treating her three children to some new toys and clothes with her winnings.

The CHSW Lottery is drawn each week, there are 14 regular cash prizes up for grabs each week ranging from £5 up to £1000 and there is also a rollover which currently stands at over £7000 which could be a huge win for someone any week now.

CHSW supports children with life limiting illnesses and their families through CHSW’s three hospices; Little Harbour in mid-Cornwall, Little Bridge House in Fremington, near Barnstaple and Charlton Farm near Bristol. The lottery helps to support the work of the hospices which cost over £8 million a year to run all three.

Source:  Children's Hospice South West

 

Sarah hails support received by hospice
14 June 2016

Sarah Stott has been working for Children’s Hospice South West’s Little Harbour in Porthpean, St Austell since March 2009, helping to raise much needed funds to support children with life-limiting illnesses and their families.

From cake sales to county shows, Sarah has dedicated her career at CHSW to spreading word of the charity and Sarah Stottsupporting the community. 

Sarah was introduced to CHSW when she heard a bereaved dad sharing his story when attending a networking event. She said: “I was so touched and inspired by him I just knew I had to work for CHSW, and was delighted to join the team as an Administrator and Receptionist in 2009.”

Sarah has held various roles at CHSW including being the Events Fundraiser, taking on the Corporate Partnerships Fundraising role as  maternity cover and now working as the Senior Fundraiser at Little Harbour. “Over the past seven years, I have seen the organisation grow a lot; it’s fantastic that the opening of Little Harbour made Eddie and Jill’s vision of having a children’s hospice within a 90 minute reach for families across the South West a reality. “We now have to raise over £9m a year, which is a lot more than when I first started.”

Sarah’s recent role of Community Fundraiser has seen her getting involved in a wide range of activities, from supporting individuals in their fundraising to giving talks in schools, and for many, following this up with tours of Little Harbour.

“Being a Community Fundraiser is great as you get to meet lots of lovely people who are passionate about fundraising for us,” she said. “I enjoy supporting them in what they are doing and always invite them to visit our beautiful hospices on our open days as this gives them the chance to see for themselves what they are supporting.”

Sarah has a passion for CHSW and gains huge job satisfaction from her role, for which she credits the team she works with as well as the fantastic support they get from the wider community.“We couldn’t be there for the children and their families who need us most if it wasn’t for the support and involvement of local communities,” she said. “It’s humbling to meet people who want to do something to help others. We have incredible communities in the South West and this is something we should all be very proud of.”

Zoe Partridge

Little Harbour is delighted to welcome Zoe Partridge to the Fundraising Team in July. She will be the key community contact for North East and South East Cornwall, Plymouth and the surrounding area. This will give Sarah the opportunity to focus on the support in mid-Cornwall as well as managing the Adminstration and Fundraising Team at Little Harbour.

Sarah looks forward positively to the next 25 years of CHSW, envisaging the charity developing and responding further to the needs of families. She said: “It’s wonderful to be able to tell people about this very special year and how far we have come in 25 years.”

It costs over £9million each year to fund the services at CHSW’s three hospices in Devon, Cornwall and Somerset, and the charity relies almost entirely on voluntary funding. 

Find out about our 25th Anniversary

 

Source: Children's Hospice South West

1,700 join "best ever" Rainbow Run near Exeter
13 June 2016

Rainbow Run 2016With 1,700 runners, steel drummers, Storm Troopers, and bouncy castles, this year’s Children’s Hospice South West’s Rainbow Run is being described as the best yet!

As part of the 25th Anniversary celebrations for the charity, the run started with silver streamers and the record number of participants enjoyed a madcap, mayhem of riotous colour as they ran through the paint stations along the course.

Jayne Jarrett, events fundraiser at the hospice said: ‘Wow, what a day! To have a record number of runners in our 25th year has been incredible. The atmosphere was just amazing and we hope everyone has enjoyed it as much as we have.’
The charity is hoping to raise over £65,000 from the event at Exeter Racecourse.

If you missed out on the fun this year, registration will be open for the 2017 run from Thursday, June 16. For full details, see www.chsw.org.uk/rainbowexeter

Early-bird registration costs just £15 for adults and £10 for children aged 5 – 15, plus a family of four can register for £40.

Source: Exeter Express and Echo

 

'Passion for charity' inspires Mary's work for Children's Hospice
12 June 2016

For 11 years Mary Murfin has been working as a Community Fundraiser for Children’s Hospice South West’s Little Harbour in Porthpean, St Austell, helping to raise much needed funds to support children with life-limiting illnesses and their families.

From cake sales to county shows, Mary has dedicated her career at CHSW to spreading word of the charity and supporting the community in Mid and West Cornwall in their fundraising.

CHSW has played a strong part in Mary’s life, her journey with the charity started when she was involved in the founding of Falmouth Friends Group – a group set up to raise funds for CHSW. The group began in 1999 after those behind it listened to a very motivational talk by the late, Jill Farwell.

Mary said: “I had a passion for the charity, its support for families and everything it stands for.”

She has worked for CHSW since before Little Harbour existed and CHSW’s Cornwall office was in Truro. Mary has seen Little Harbour grow from simply architectural drawings into a fully functioning hospice “It’s been great to see Little Harbour blossom,” she said, “It has always had a very homely feel but now seems really lived in.”

Mary’s role as Community Fundraiser sees her getting involved in a wide range of activities, from supporting individuals in their fundraising to giving talks in schools, and for many, following this up with tours of Little Harbour.

“I often say to people who have attended one of my talks or have visited Little Harbour,” she said “If this has inspired you to support CHSW, please share your positivity with just one other person and you will make a difference.”

Mary has a passion for CHSW and gains huge job satisfaction from her role, for which she credits the team she works with as well as the fantastic support that comes from the wider community. She is very aware of how vital the generous support from the community is for the hospice.

“People in the community are at the heart of charities,” she explains. “Even when they don’t think they have done very much, every penny raised or every word shared is vital.”

Mary looks forward positively to the next 25 years of CHSW, envisaging the charity developing and responding further to the needs of families. “Here’s to the next 25 years of Children’s Hospice South West, making the most of short and precious lives thanks to the support of people in our communities and beyond,” she said.

It costs £8 million each year to fund the services at CHSW’s three hospices in Devon, Cornwall and Somerset, and the charity relies almost entirely on voluntary funding.

To find out more about supporting CHSW or volunteering in your area, contact mary.murfin@chsw.co.uk or call 07500 081972.

Source: Falmouth Packet

 

Truro students to tackle colourful charity run
10 June 2016

A team of Truro School students will participate in a colourful run for a charity that supports children with life limiting illnesses and their families.

Over 30 students will be taking part in the 5k Rainbow Run, happening at RAF St Mawgan on June 26, in aid of Children's Hospice South West (CHSW). This will be the second consecutive year that students from Truro School have been involved.
During the event runners are showered with coloured paint as they pass through paint stations along the route.

Sarah Mulready, assistant housemistress at Pentreve House, says that it is a continuation of the school's commitment to fundraising.

"At Truro School we are committed to supporting local charities and it is a privilege to raise money for Children's Hospice South West.

"The boarding community, who have in the last two years raised over £1,200 for the charity, are excited to be taking part in this year's Rainbow Run."

This will be the third year the event has been held, with last year's event raising £86,000 for CSHW. The charity says that their site at Little Harbour, Cornwall, "is all about making precious memories with families who have an uncertain future and the Rainbow Run is a way that people can help support the work of the hospice while making some special, very colourful, memories of their own".

Sponsored by Ann's Cottage, the event can be walked, jogged, or run. More than 1,000 people have signed up thus far, and more info can be found about how to join at www.chsw.org.uk/rainbownewquay

Source: West Briton

 

10 Downing Street hosts reception in celebration of 25 years of Children's Hospice South West
08 June 2016

Samantha Cameron has hosted a special reception at 10 Downing Street to celebrate 25 years of Children’s Hospice South West (CHSW). 

Samantha Cameron and Eddie Farwell

The reception was held on Tuesday 7 June and was attended by co-founder of the charity Eddie Farwell who said: ‘This has been an immense honour and privilege. 2016 is such a special year for Children’s Hospice South West, and this has been an incredible opportunity to share my story as to how it all began and celebrate this important anniversary year.’

Attended by over 100 guests, including families who have used the hospice, the Downing Street reception was organised as a way to help raise awareness of the work of the charity which helps and supports children who are not expected to live until adulthood and Samantha Cameron said: “The work children’s hospices do for families, makes the difference between coping and not coping- it can save you. The children’s hospice movement isn’t that old and what Eddie Farwell has achieved in such a short space of time is incredible and so inspiring.”

At the evening reception, guests which included CHSW families, the Kembrey’s and the Ahmed's, were able to chat with Samantha and Eddie regards the charity and find out more about CHSW’s plans for the next 25 years.

Eddie Farwell and his late wife, Jill founded CHSW following their own experiences of caring for their two life-limited children, Katie and Tom. The charity has grown to have three children’s hospices in the South West, in Devon, Cornwall and Somerset, ensuring that there is help and support for all families living in the region.

Samantha Cameron hosts reception for CHSW

Looking after a life-limited child can be exhausting and so, in addition to end of life support, the hospices offer respite care for the whole family, including well brothers and sisters, ensuring that parents have precious time to recharge their batteries and simply become Mum and Dad again.

It costs over £8million each year to fund the services at all three hospices and this funding is met almost entirely through voluntary donations. 

Photograph shows: Samantha Cameron hosted a special reception at 10 Downing Street to celebrate 25 years of Children’s Hospice South West

Download the Press Release

Source:  North Devon Gazette, Exeter Express and Echo

 

Firefighters complete arduous charity walk from Okehampton to Lynton
07 June 2016

Firefighters from across Devon set off from Okehampton on Saturday (June 4) on an arduous challenge to walk for 24 hours while wearing their full fire kit and breathing apparatus.

Okehampton Firefighter walk 24 hours for CHSWThe challenge began at Okehampton Fire Station, stopping off at various stations along a route to Lynton Fire Station over a distance of 83 miles. The relay walk saw fire fighters wearing their full kit, which weighs roughly 30 kilograms.

The walk was carried out to support Children’s Hospice South West (CHSW) and The Fire Fighter’s Charity.

Ian Donovan, station chief at Okehampton Fire Station wanted to support CHSW when hearing the charity is celebrating 25 years since its founding. He said ‘We have given money to the charity before, and with its 25th anniversary celebrations and my 40th year in service it seemed a good idea to commemorate both milestones.’

So far the Fire Fighters have raised over £1,000 for both charities, with funds still coming through.

CHSW was founded by Eddie and Jill Farwell in 1991 following their own experiences of caring for life-limited children. The charity now has three hospices, Little Bridge House in North Devon, Charlton Farm in North Somerset and Little Harbour in Cornwall, offering care and support for families across the region.

The Fire Fighter’s Charity is the UK’s leading provider of services that enhance quality of life for serving and retired firefighters, fire personnel and their families. Its vision is to make a positive difference by supporting people in the fire and rescue community when they are in need.’

To support the fire fighters on their incredible challenge please visit www.virginmoneygiving.com/team/BAChallenge

Source:  Okehampton Today, North Devon Journal, Tavistock Times

 

Plymouth's Barbican Kitchen raises £2,000 for South West children's charity
07 June 2016

Tanner brothersBarbican Kitchen diners have raised a total of £2,125 for Children's Hospice South West, by taking part in Dine and Donate events at the Barbican Kitchen.

Chef patron, Chris Tanner met with Children's Hospice South West's Head of Fundraising, Emma Lloyd-Cowell last week to celebrate the fundraising effort, alongside members of the Barbican Kitchen team.

The Dine and Donate event ran from January to March this year, and allowed diners to select high quality dishes from a discounted set menu, while also having the opportunity to donate to one of the South West's most notable children's charities.

Chris and James Tanner, are celebrating 10 years at the popular Barbican eatery this year and are long-time supporters of Children's Hospice South West having raised thousands of pounds from similar events during their time as city chefs.

Chris Tanner said: "With this year being our 10th anniversary, it seemed like an ideal opportunity to invite diners to not only taste delicious food from our menu, but to also donate to a very worthy, local cause. It is fantastic to see how much was raised, and we would like to thank all those who donated. We look to forward to continuing with our support, and hopefully running similar events in the future."

Emma Lloyd-Cowell, Head of Fundraising at Children's Hospice South West said "We are absolutely delighted at the amount raised through the Dine & Donate series, which was a really unique chance for people to not only eat tasty food, but to also support our very special cause and celebrate with us in our Silver 25th anniversary year. Both Chris and James are long term friends of the charity, and it was brilliant to meet and thank them and the Barbican Kitchen team in person."

Children's Hospice South West supports children with life limiting illnesses who sadly are not expected to live into adulthood. The charity has three hospices including Little Harbour in St Austell where families can go for short breaks and respite care and have a home from home environment with care and support for their children and the whole family.

Source: Plymouth Herald

 

Cheque presentation for CHSW
02 June 2016

Cheque presentationThe Jenny Peplow singers had an interesting start to their practice last Wednesday, by beginning their session with a cheque presentation.

The presentation was made by Pauline Spanswick, who organised an Evening of Song with the singers in Chilcompton on 14th May raising £1,300 for Children’s Hospice South West, and Jenny Peplow, to Diane Chiplin, Chair of the Friends of CHSW in Midsomer Norton.

Mrs Chiplin gave a short talk on how the hospice was started before choir practice got under way.The Jenny Peplow Singers are a choir of over 50 ladies of varying ages, started by Jenny, a professional singer, back in 2011. For more details on the choir, please contact Jenny on 01373 812093.

Their next concert is on Saturday, 4th June at St Joseph’s Nursing Home in Bristol.The next event celebrating the Children’s Hospice South West’s 25th anniversary takes place on Wednesday, 13th July, from 3 p.m. with a Silver afternoon Tea at Fosse Farm in Stratton-on-the-Fosse.

Please call Diane Chiplin on 01761 412118 for more details.

Source: MNR Journal

Estate agent team set to tackle the Rainbow Run
01 June 2016

Webbers Estate Agents, with branches across Cornwall, including Launceston, have entered a team for Children’s Hospice South West’s Rainbow Run, and are encouraging other estate agents and businesses to get involved.

The Rainbow Run is a sponsored run, which will take place at RAF St Mawgan on June 26, where participants will get showered in different coloured powder paint as they go through paint stations along the route.

With over 1,000 people signing up to take part already, those taking part can walk, jog or run the route.Hannah Jeffery, the manager of Webbers Bodmin, said: “We are delighted to be taking part in this year’s Rainbow Run. We have a team of 16 ladies from Webbers taking part from both our Cornwall and Devon offices, and it would be great for other estate agents and local businesses to also put together teams to join us. It will be a fun day for such a worthy cause.”

This is the third year that the event has been held at RAF St Mawgan, raising £86,000 last year for Children’s Hospice South West, a charity which supports children with life limiting illnesses and their families at its Little Harbour hospice in St Austell.

Little Harbour focuses on creating special memories with families who have an uncertain future, and the Rainbow Run is a way that people can support the work of the hospice, while making some special, colourful memories of their own.

To find out more information on the event and access the online registration page, visit www.chsw.org.uk/rainbownewquay.

Registration costs £15 for adults and £10 for children aged five to fifteen; family of four tickets can sign up for £40.

Everyone is encouraged to raise as much money as possible in sponsorship. Places are limited, so it is encouraged to sign up for the event as soon as possible.

Source: Cornish & Devon Post

 

Home and Garden Show welcomes back CHSW
01 June 2016

Coombe TrenchardCoombe Trenchard is welcoming back Children’s Hospice South West for the biennial Home and Garden Show. Children’s Hospice South West looks after children with life limiting illnesses, and will be raising awareness about this very special cause at the event.

Their area, on the Edwardian games lawn, will be themed around the charity’s 25th anniversary which is being celebrated throughout 2016.

To celebrate this, there will be a Silver Tea Party with strawberries and elderflower punch to buy, a vintage sweet shop, toy tombola, and a messy play creative area. There will also be croquet matches and Edwardian games for everyone to join it with.

Taking place on Saturday and Sunday (June 4 and 5), this year’s Show promises to be the best yet, offering the opportunity to enjoy far reaching views of Dartmoor from the historic grounds of Coombe Trenchard, whilst sampling the unique talent the South West has to offer.

Specialist plant growers, artisan and vintage home and garden wares will be available to enjoy, as well as delicious local produce.

Sarah Marsh, owner of Coombe Trenchard, said: “We are proud to be involved with this truly inspirational charity who do so much to support families in the local area. We are really looking forward to having Children’s Hospice South West with us again this year.”

General admission is £5, and is free for under 14s. Dogs on leads are welcome.

Source: Cornish and Devon Post

 

Midsomer Norton singers raise money for Children's Hospice South West
01 June 2016

A woman whose experience of child bereavement prompted her to organise a concert has handed £1,300 to Children's Hospice South West.

Pauline Spanswick thanked colleagues from Jenny Peplow Singers as the 50-strong choir proudly gave the money raised from an evening celebrating the 25th anniversary of the charity held at Chilcompton Village Hall. More than 100 people watched the concert.

Pauline was encouraged to ask her singing friends to help her raise money for the charity by her grandson. She said: "It's thanks to a lot of help from my friends that we are able to give such a fantastic donation to a charity that has always been very close to my heart.

"My husband and I lost our first child. There was nothing like this back then, which makes you really value the unbelievable work they do for children and their families."

Pauline has helped fundraise for the charity on a number of occasions. In 2011 coins collected by her late husband David were stolen from an auction house just days before they were due to be auctioned for the charity.The latest donation was given to Diane Chiplin who has been raising money for the charity in Midsomer Norton for more than 20 years.
Diane thanked the choir and explained how the generosity of local people has raised £320,000 towards supporting the work of the children's hospice over the last two decades.

She said: "It's a lot of money and we are so pleased to be able to support the charity. It began with a talk from a representative from the charity 22 years ago and since then we have just continued doing whatever we can. We became an official fundraising group back in 2000 and hope to raise even more over the years to come."

The choir, who rehearse every Wednesday evening from 7.30pm in St John's Church Hall in Midsomer Norton, will be performing again at the Wesley Hall in Paulton on July 7 at 6.30pm for their Singing for the Brain concert before another charity performance for the children's hospice at Fosse Farm in Stratton-on-the-Fosse on Wednesday, July 13 from 3pm till 5pm.

Source: Somerset Live

 

Rainbow Run - a splash of colour
01 June 2016

Ann's CottageThis year marks 25 years of Children’s Hospice South West (CHSW) and local retailer Ann’s Cottage are thrilled to announce that for the third year they are the very proud sponsors of 2016’s Rainbow Run which is taking place on Sunday 26 June at RAF St Mawgan, Newquay.

Participants can walk, jog or run the 5k route having fun along the way whilst raising money for this incredible cause. However this isn’t your normal 5k event, participants will be passing through different coloured stations where handfuls of paint will be thrown by volunteers, transforming them into moving explosions of colour; there is also the eagerly anticipated ‘silver surprise’ to celebrate the charity’s 25th anniversary.

2016’s Rainbow Run is expected to be the biggest one yet over 100 people already registered and CHSW lowering the age limit to 5 and over.

There will be a large events village consisting of caterers and other local businesses alongside Ann’s Cottage, all showing their support with competitions throughout the day to get the whole family involved.

Bernadette Chambers, Corporate Partnerships fundraiser for CHSW said, “It is absolutely brilliant to have Ann’s Cottage sponsoring our Rainbow Run once again this year. Having the event sponsored means that even more money raised on the day can go towards the care and support given to the children and families rather than covering event costs. We look forward to seeing everyone at RAF St Mawgan on the day.”

Ann’s Cottage recently launched the sponsorship with members of the fundraising team from CHSW’s at Little Harbour, along with members of the team from Cornwall Surf Centre, St Columb to celebrate the collaboration.

The Children’s Hospice South West is particularly close to the Ann’s Cottage team, including Rob Harris, managing director and owner, who recently visited Little Harbour at St Austell.

He said, “It is incredible what all the staff do at Children’s Hospice South West, offering expert care and support for the children and their families. I was lucky enough to be invited down to the newly established hospice, which was extremely touching.

“This is such a great cause and the Ann’s Cottage team really want to help in any way we can to help raise as much money as possible.”

All sponsorship money raised by participants will go straight to the heart of the charity who are offering expert care and support for life limited children.

The Rainbow Run is open to anyone over the age of five years, registration costs £10 for children aged between 5 and 15 years old and £15 for anyone over the age of 16. There is a suggested minimum sponsorship of £50 per person.Visit www.chsw.org.uk/rainbow.

Source: North Cornwall Today

 

Exmouth church group helps charity
30 May 2016

Members of the Withycombe Methodist Church Group visited Children’s Hospice South West’s Little Bridge House hospice, near Barnstaple, to present a cheque for £430.

The money was raised at a coffee morning and lunch held earlier this month.

The church group was also joined by members of the Withycrafters group, who have provided knitted blankets for the hospice.

Paula Garrett, community fundraiser for the charity, said: “It costs £8million each year to run our three children’s hospices and these costs are met almost entirely by voluntary donations.

“We’re so grateful for all the incredible fundraising in our local communities and would like to say a huge thank-you to all our supporters.”

Source: Exmouth Journal

 

 

Cofton’s Country and Western Festival raises £2,000 for Children’s Hospice South West
29 May 2016

A South Devon holiday park has marked the end of their Country and Western Festival by donating £2,000 to Children's Hospice South West.

Cofton Country Holidays, based in Dawlish Warren, raised the money through customer donations and money collected from bingo sales at both this year's festival and last year's event.

In keeping with the theme of the Festival, Zoe Miles, a member of the CHSW team, 'got in to line' to collect the cheque from Mellony Kirby and Helen Scott, directors at Cofton Country Holidays.

Mellony said: “The crowd at this year's Country and Western Festival were incredibly generous. Combined with last year's fundraising activity we've managed to raise well over £2,000 for Children's Hospice South West.

“Many of our guests spent the entire week rock stepping, pivot turning and kick ball changing to our amazing line up of country bands who thrilled audiences with a range of original songs and good old country crowd pleasers. It put everyone in a very generous frame of mind."

Zoe Miles from Children's Hospice South West said: “We're so grateful to everyone who has supported the Festival. We rely almost entirely on voluntary contributions and so this fantastic donation will really help us to make the most of short and precious lives for local children and their families, and we can't wait to join in the fun at Cofton Country Holidays again next year."

Free to residents, the festival is open to day visitors who will be able to buy tickets on the door from just £5 per night or from £25 for all seven nights.

Source: Herald Express

 

Volunteer urges people to donate to hospice
27 May 2016

Cherri Mansfield, aged 67, started volunteering at Children’s Hospice South West, in Wraxall, when she took early retirement nine years ago.

Cherri, from Nailsea, helped out with administration while the hospice was being built and now volunteers as a tour guide to show families and supporters round.

She said: “When I do the tours I see a lot of people have misconceptions that it’s going to be like an adult hospice where children come to die, but it’s not like that.

“We mainly do respite care and it’s a wonderful, happy place most of the time. There are sad moments of course, because that’s what we are there for, but our main aim is to give the whole family some time to recharge their batteries and give them the chance to be a proper family.

“Some families are worried before they come. Nobody wants to accept their child isn’t going to live into adulthood, but when they come a lot of families say they wish they had come sooner.

“It’s a lifeline. We just make them feel special and let them know somebody cares.”

The hospice is celebrating its 25th anniversary this year and to celebrate the milestone wants people to buy one of hundreds of hand-crafted butterflies.

For more details, visit www.chsw.org.uk

Source: North Somerset Times

 

Bank staff make out a cheque for Children's Hospice South West thanks to hair withdrawal
27 May 2016

Sponsored head shaveBank staff in Tiverton were making a deposit of their own this morning – Friday, May 27 - as hundreds was raised for Children's Hospice South West.

Branch Manager Simon Maddocks and member of staff Chris Mitchell both had their head shaved for the cause.
Mr Maddocks said: "We are celebrating 25 years of CHSW and raising lots of money today.

"It's a great cause, and although I wasn't forced into having my head shaved, I was made to feel it was about time I had something shaved off my head.

Responding to suggestions that he now had a look in common with new Manchester City boss Pep Guardiola he added: "I think the family and customers will love the new look."

While Simon was having his head shaved, employee Chris Mitchell said if they could raise an extra £50 he too would go under the razors.

"Despite the peer pressure I did it as it's going to help a good cause," he said. "I'm not sure what the wife will make of it when I get home though."

Staff also had a cake sale and wore fancy dress to work.

Source: Express and Echo

 

Dartmouth based Navy officers complete 100km kayak challenge for charity
27 May 2016

Two Royal Navy officers based at Dartmouth's Britannia Royal Naval College have completed a challenge to kayak 100km in 24 hours.

Lt Cdr Steve Fuller and Lt Matt Read took to the waters around Dartmouth at 4am and completed the challenge ahead of schedule at 10.15pm, achieving a moving average of 3.3 knots and recording a top speed of 5.8 knots.

They kayaked from Dartmouth to Totnes and back again, four times. The day became more and more gruelling with the last few kilometres completed in the dark and fog.

The two men trained hard throughout the winter in all conditions, ready to take on the challenge to raise funds for Children's Hospice South West and the Royal Navy and Royal Marines Charity.

Lt Cdr Fuller is an experienced sea kayaker, having completed a 500km solo, unsupported charity paddle along the South coast in 2014.

Lt Read first got into a sea kayak only eight months ago and had to rapidly learn the necessary skills and techniques to attempt the challenge.

After more than 16 hours in the kayak, both men were happy to finish the marathon distance and return to dry land.
Lt Cdr Fuller said: "We both had to dig deep to find the will to keep going but thinking of the good work done by the charities for those who need it the most was sufficient to get us over the line."

Lt Read added: "It was great to be able to put into practice some of the important attributes that the trainee officers learn at BRNC, in particular the commitment, dedication and determination to get the job done, overcoming any obstacles in the way."

So far the duo has managed to raise £1,800 from their mammoth effort.

Source: Herald Express

 

Sidbury family pay tribute to ‘superhero’ Amelia
27 May 2016

Amelia and familyA Sidbury family has paid tribute to its ‘superhero’ daughter and sister whose smile and strength drew people in wherever she went. Amelia Roberts, 11, has been remembered as a determined individual who embraced life, despite battling a rare, life-limiting illness.

At the age of five, she was diagnosed with Batten’s Disease, which left her requiring round-the-clock care as she was unable to speak, move or swallow.

The 11-year-old died peacefully at the Royal Devon and Exeter Hospital last Tuesday surrounded by family. Her mother,

Bev, said: “She was absolutely amazing. There was never a dull moment with Amelia. Everything was on her terms from the second she was born to the second she took her last breath. It was her story.

“She kept fighting until she couldn’t fight anymore. I blessed her on her way and told her she didn’t have to fight anymore. Half-an-hour after that chat, she died in my arms. That is exactly the way she wanted it.

“She was amazing. She was my superhero.” The mother-of-three described the last six months as a ‘rollercoaster’ for the family, as Amelia fought infection after infection to reach her 11th birthday in March.

The Furzehill resident said: “It [Batten’s Disease] is very cruel; it doesn’t care. It robbed her of her childhood. You had to look past the wheelchair; that’s one thing I taught people, and certainly Amelia taught people to look beyond the diagnosis and look past the chair.

“She embraced life and took on whatever was thrown at her. She fought every step of the way.” Bev said that Amelia enjoyed nature and loved bugs - and getting muddy - as well as listening to her brother, Dylan, playing the guitar. She said her children, Alishia, 15, and Dylan, 13, had helped her to make every second count for their sister after Amelia’s ‘ticking time bomb’ diagnosis.

“It was life changing for them, but they never complained. They just adapted. It’s made them fantastic, grown-up little people. They are non-judgemental. They are kind, loving, accepting,” said Bev.

“I didn’t think about the prognosis. We just went on living, taking each day. If I hadn’t, then I wouldn’t have been any good to anyone, not Amelia or her siblings or to myself. We took her ice-skating and we went to London. She made me overcome so much.”

AmeliaAmelia’s family worked with Children’s Hospice South West (CHSW) and spent respite days at its Little Bridge House in Barnstaple. Kay Holloway, a member of the care team at CHSW, has worked with the family since it started going to the centre five years ago.

She said: “I think Amelia was a real tribute to her mum, who has done a brilliant job with all of her children. Amelia just drew people in. She was very brave and she did what she wanted to do.” Nicholas Ware, Amelia’s teacher at the WESC Foundation, a specialist day and residential centre for young people and adults with visual impairment including complex needs in Exeter, called the 11-year-old an ‘animated young lady’ who made the most of everything.

He added: “During her last weeks at WESC Foundation, she was still showing interest in sensory stories and other experiences offered. It was obvious, too, that, although unable to speak, she was still trying to communicate. She has left a strong and enduring impression on all who knew her.”

Following Amelia’s death, staff at the Royal Devon and Exeter Hospital School organised for Alishia and Dylan to attend a guitar class led by pop star Jake Bugg.

Bev said: “That was just phenomenal memory in their darkest days.” The family and those who worked with Amelia attended a service of celebration in her memory at Barnstaple Crematorium yesterday (Thursday).

Source: Sidmouth Herald

 

Taunton Deane councillor Roger Habgood walking 100 miles at Long Distance Walkers Association challenge
27 May 2016

Roger HabgoodDistrict councillor Roger Habgood will be nursing a few sore muscles next week. He's spending the Bank Holiday weekend walking 100 miles in 48 hours with no sleep.

Mr Habgood, who serves on Taunton Deane Borough Council, is among 500 people taking part in the Long Distance Walkers Association event in Broadwey, near Weymouth.

All the money he raises will go to one of the Mayor's charities of the year - the Children's Hospice South West.

Mr Habgood, who only recently completed the Rotary Club of Taunton/s 50-50 Cycle Ride, said: “I enjoy walking and am looking forward to the challenge.

"It is especially rewarding when you are doing it for a good cause and I hope to raise as much as I can for this very deserving charity.”

Mayor of Taunton Deane Cllr Vivienne Stock-Williams said: “I am delighted that Cllr Habgood has chosen to raise money for Children’s Hospice South West and would encourage everyone to support him.

"I wish Cllr Habgood, and all the entrants, an enjoyable walk in good weather.”

You can support Mr Habgood by going to his just giving page: virginmoneygiving.com/ChallengeHabgood

Source: Somerset County Gazette

 

Superheroes called to help Plymouth crafts store fundraising mission
23 May 2016

Superheroes will assemble at a Plymouth crafts store this weekend to raise money for a local children's charity.

Staff at Hobbycraft, the arts and crafts store on Exeter Street, will don their Superman, Spiderman and Batman masks on Saturday, May 28, in order to raise funds for Children's Hospice South West.

Superhero-themed crafts will also be on sale and customers are also being urged to dress-up on the day.

Hobbycraft Plymouth store manager, Victoria Peek, told The Herald: "Are you a Decopatch Diva or a Needlework Ninja?

"Then don your cape and join us in store for hero-themed dress up and crafts, raising invaluable awareness and shed loads of money so that Children's Hospice South West - Little Harbour can continue their life changing work."

The fundraising will also raise awareness of Children's Hospice Week, an annual initiative which runs between May 23 and May 29.

Victoria added: "All our colleagues will be leading the way at our Superhero Saturday so it's a case of 'fundraisers, assemble'!"

Source: Plymouth Herald

 

Biker aims to ride 4,500 mile round-trip from Cornwall for charity
21 May 2016

A motor cyclist is riding from Land's End to Montenegro – and back - in a bid to raise money for Children's Hospice South West.

Andrew Emery, 43, plans to ride 4,500 miles to raise money for the children's charity.

Having already completed the journey from Land's End to Hayle McDonald's car park on May 16, he will be officially taking off on his adventure to Montenegro on May 27.

Andrew, from Illogan, said: "If I can, I try to take 14 days of my annual holiday every year to do one trip somewhere in the world, and to be able to do this trip in aid of such a fantastic charity as the Children's Hospice South West is a real privilage, as they provide an invaluable service and care to both the children and the families in the most difficult of times."

Having lost his own brother to a terminal illness at just a year old, before Andrew was born, he feels it is a subject incredibly close to his heart.

"Even now it's still a painful subject to talk about for my mum and I cannot even imagine to difficulties she experienced back then when there wasn't the support such as the children's hospice provide now," he said.

To kick-start his journey, Andrew is inviting as many bikers and general public to meet him at the Hayle McDonald's car park at 5.45pm before he takes off at 6.30pm – and says bikers are more than welcome to escort him as far as Cornwall Services on the A30.

He added: "Any support along the way over the bridges of the A30 and laybys would be greatly appreciated."

Donations can be given via his Virgin Money Giving page.

Source: The Cornishman

 

Evening of song in Chilcompton raises more than £1,200 children's hospice cash
20 May 2016

A musical fundraiser organised by Coleford grandmother Pauline Spanswick has raised £1,263 for the Children's Hospice South West.

Jenny Peplow Singers performed an Evening of Song at Chilcompton Village Hall attended by more than 100 people followed by tea and coffee, donated by Tesco, the Midsomer Norton branch's community champion scheme and homemade confectionery.

There was also a raffle with Mrs Spanswick's grandson Tom selling tickets on the door.

Mrs Spanswick said: "Friends from my line dance group were in the kitchen and I would like to thank all the people involved in helping to raise so much for this wonderful deserving charity."

The musical event coincides with the charity's 25th anniversary.

The Jenny Peplow Singers were formerly Midsomer Voices and have grown in numbers now having more than 40 members.

Source: Somerset Guardian

 

Event review - Jail and Bail, Exeter Castle - Friday 13 May 2016
16 May 2016

Fundraising celebrationNine business men and women, who were jailed by CHSW for a series of hilariously entertaining ‘crimes’, have raised a staggering £17,500 at our first ever Devon Jail & Bail event.

Our willing jailbirds were arrested and handcuffed by the very lovely Sgt Andy Boundy at Heavitree Road Police Station in Exeter, on Friday 13 May 2016, before being transported in a police van to the former Devon County Court at Exeter Castle.

Once there, they were charged with a series of unbelievable (and entirely fictitious) crimes including obsessive wig wearing, refusal to step on a beach and unladylike behaviour!

After they’d been read their rights, had their mugshots taken and had a chance to enter their ‘plea’, they were banished to the cells. Their only chance of escape was to raise £999 bail by calling upon friends, family, colleagues and contacts to help them out!

Of course, the Naughty Nine all managed to raise their bail, but the fundraising didn’t stop there. The ambitious group decided to continue their fundraising throughout the day, and beyond.

The current total stands at more than £17,500! This could fund a specialist children’s nurse at one of our hospices for seven months.

The day was full of laughs and entertainment, along with some questionable choices in wigs and red lipstick too! On behalf of everyone at CHSW, we would like to say a huge thank you to our wonderful jailbirds, you are all amazing and we are thrilled you joined us to take part.

Thank you for being such good sports and such well behaved ‘prisoners’. We hope you enjoyed it as much as we did!

2016 prisoners

 Source: Children's Hospice South West

 

Harbour to Harbour walk raises £6,000 for children's hospice
15 May 2016

The Truro Area Friends Group of the Children’s Hospice South West’s (CHSW) are delighted with the success of their recent Harbour to Harbour for Little Harbour sponsored walk which raised over £6,000.

The event comprised of different routes and distances making it something that everyone could get involved in. Over 80 people started the walk at Devoran Quay along the Mineral Tramway accompanied by six vehicles from the Devon and Cornwall 4x4 Response Team and they walked a total of 13 miles.

They were then joined by 50 more walkers at Scorrier where they were treated to a pasty from Prima Bakeries. The 130 walkers then continued on their journey to finish at Portreath Harbour where their day was completed with a cream tea at Portreath School.

Roger Clarke, chair of Truro Area Friends Group, said: “We would like to thank everyone who took part in the event, for all of their energy for walking and generosity with their fundraising. It was a brilliant day and everyone looked as though they were having fun. Thanks go to the local companies who provided the pasties, cream teas, bus transport and the loos.

Although we thought this event to celebrate 25 years of CHSW may raise about £2,000 we have already collected over £6,000 which is fantastic.”

If you are interested in organising a fundraising event or would like to take part in one of CHSW’s events to help raise funds to go towards the £2million a year that it costs to run Little Harbour visit chsw.org.uk or call Little Harbour on 01726 871800.

Source: Falmouth Packet

 

Zennor Spring Fair to raise money for Children’s Hospice South West
14 May 2016

Organisers are to host the annual Zennor Spring Fair in aid of charity later this month.

The fair, which will be held on May 28 and 29 from 10am to 5pm, will see a variety of locally-made cakes, cream teas and savouries served all day while raising money for Children's Hospice South West (CHSW).

Visitors will have the chance to peruse a range of local crafts including paintings, photography, books, cards, textiles, fabrics, jewellery and plants.

A special Pre-Loved Treasures stall will also raise money for CHSW and those who wish to donate can contact Gilly Farrell on 01736 793692.

Entrance is 50p and every visitor will receive a free cup of tea.

Source: The Cornishman

 

Boconnoc opens for hospice trail
11 May 2016

Garden TrailThe Woodland Gardens at Boconnoc Estate are opening on Sunday from noon to 5pm as part of Children's Hospice South West (CHSW) Garden Trail.

For the hospice's 25th anniversary year even more gardens around the region are supporting its Garden Trail.

The trail features some of the most beautiful and unique gardens in the region, some of which are not normally open to the public, and all are opening in support of the charity.

Boconnoc Woodland Gardens are bursting with azaleas, camellias and rhododendrons in flower, many of which are still in place from the original planting 400 years ago. There will also be a Fun Dog Show which will begin at 1pm with rosettes being awarded in each class and trophies will be awarded for Best In Show, Reserve Best in Show and Best Child Handler.

There's also be the chance to see the Crufts display team from Bodmin dog training club. Freckles Pets Goodies mobile pet shop will also be there for everyone to enjoy.

The garden costs £5.50 for adults to enter and children under 10 have free entry and 100% of the entry fees will go to CHSW. Entry to the lawned area in front of the house is free. There will also be cream teas and other refreshments as well as a selection of stalls to enjoy looking around.

For more information and details of all the gardens participating in the trail, including an online guide, see www.chsw.org.uk/garden

Source: West Briton, The Cornishman

 

Exeter charity shop celebrate volunteer Jeanne's 90th birthday
10 May 2016

Staff at an Exeter charity shop celebrated the birthday of one of their oldest volunteer's today– by throwing a surprise tea party.

Children's Hospice South West charity shop on Sidwell Street threw a surprise party in the shop at 10.30am, to celebrate the 90th birthday of volunteer Jeanne Hollett.

Jeanne has been a volunteer for the charity for over five years and started out working in the store on Paris Street before moving to work in Sidwell Street.

Members of staff surprised the volunteer with gifts, a cream tea and flowers to celebrate her special day. Jeanne volunteers at the shop every Tuesday and will celebrate her 90th birthday on Thursday 12.

She said: "I was so surprised I really didn't expect them to throw me a party, it was wonderful. I count my friends here as my second family, they are all lovely each and every one of them.

"I love volunteering for the charity, not only are my colleagues great but you get to meet so many so many different people."

Jeanne is one of 14 volunteers that help out at the store and area manager Jan Hewitt said that without their help of their volunteers the charity wouldn't survive.

She said: "Jan is such a valued volunteer, she is a fantastic lady and she brings so much to the team. Not only does she do great work for us here, she does so much for the charity in her spare time as well.

"Jan often knits us different things for special occasions, at Easter she made these gorgeous Easter bunnies for free and we sold them in the shop. I hope she continues to volunteer for as long as she can."

Source: Exeter Express and Echo

 

Nailsea Charity Walks prepares for bumper year
10 May 2016

North Somerset TimesMore than twice as many people have registered compared to this time last year.
The event, which is organised by the Rotary Club of Nailsea and Backwell, enables people to walk or run one of three routes for a charity of their choice.

The sponsored walk was first held in 2012 and each year has attracted more people, with more than £60,000 raised for good causes so far.

Organisers are hoping for a record number of entries in 2016 and to beat the £20,000 raised in 2015.

Graham Hunt, from the organising committee said: “We are delighted by the numbers that have signed up already.
“At the end of last year’s event so many people approached us saying how much they enjoyed the day that we were confident of a good turnout in 2016.”

For many years the club organised an annual walk for one charity, but in 2012 it decided to put on an event to help hundreds of good causes at the same time.

The Rotary club approached charities, clubs and schools who were keen to support the initiative and the list of organisations keen to attract walkers is constantly growing.

Charities are hugely grateful for the money raised through the event.

Louise Turner, from Children’s Hospice South West, said: “We really enjoyed taking part in the charity walks organised by The Rotary Club of Nailsea and Backwell.

“The route took me to parts of Nailsea I didn’t even know existed. We walked with some lovely Rotary club members who helped us with the route.

“It was also great to see all the different charities being supported at one event and with so many different types of people taking part, it really brought the community out and about.”

The Rotary club relies on sponsors for the event and would like to thank all the businesses which back the walks.
The fundraiser is suitable for people of all ages and abilities and gives people the chance to enjoy the beautiful countryside.

People can choose a 5km walk, which is flat and wheelchair and pushchair friendly, a 10km walk for the more adventurous and a 20km route for experiences walkers and runners.

Route planner Peter Hoare said: “Each person is given a map and a detailed route instruction sheet. We also have route signs throughout the courses and, where we feel it appropriate, we also have route marshalls.”

All routes start and finish at Scotch Horn Leisure Centre in Brockway. Registration opens at 8.15am and people can begin whenever they like.

The latest start times are 10.30am for the 20km, noon for the 10km and 2.30pm for the 5km.

Registration is £6, or free for children, and everyone who takes part receives a welcome pack, courtesy of Tesco, with fruit and a bottle of water. People also get a medal and certificate for completing a route.

Children with their medals after taking part in the Rotary walks event.Children with their medals after taking part in the Rotary walks event.

Registration forms are available by calling Graham on 07970 771845 or online at www.rotary-ribi.org/clubs/homepage.php?ClubID=613

Source: North Somerset Times

 

Redruth and Camborne Lions Club and Morrison’s Pool customers donate £600 to Little Harbour
10 May 2016

Open Days School VisitThe Camborne Redruth & District Lions Club collected the sum of £490 from monies donated by Morrison’s Pool shoppers who took part in the Lion’s free raffle during March for one of the most popular charities in the county, Children’s Hospice South West ‘Little Harbour’ Appeal.

On Monday afternoon the Lions visited Little Harbour and Lion President Derek Canham with £110 taken from the Lions Charity account and added to the Morrison’s Customer’s contribution presented a cheque for £600 to Sarah Stott the senior fundraiser for the hospice.

Source: Falmouth Packet

 

Making the most of precious moments
05 May 2016

Children's Hospice South West turns 25 this year and over that quarter of a century supporting children with life-limiting conditions and their families, its mission has remained the same – to make the most of every short and precious life.CHSW Little Bridge House Barnstaple

CHSW was founded by Eddie and Jill Farwell in 1991 and opened its first hospice, Little Bridge House in North Devon, four years later. Since then it has expanded to Charlton Farm in North Somerset and Little Harbour in St Austell, Cornwall, making sure that the entire region can access its services.

Thanks to the generosity of people in the South West, Little Bridge House opened in September 1995, providing a home from home for children and their families in a beautiful stone-built building near the North Devon coast. It was then joined by Charlton Farm in 2007, a converted old farm building in a secluded and beautiful countryside setting in Bristol and finally Little Harbour in 2010, a beautiful coastal inspired building overlooking St Austell Bay.

CHSW Charlton Farm Wraxall
The respite stays give families the chance to forget about the rest of the world and concentrate on making precious memories together, whether it is in the hydrotherapy pool, soft play or multi-sensory room or just enjoying a hot cup of tea and a lie-in.

It is, despite misconceptions, a place of fun.

Prior to her first visit to the hospice with son Greggory, Lisa White had preconceived ideas about how the hospice would be and was very nervous when she walked through the doors for the first time.

“I imagined because of the word ‘hospice’ that it would be rows and rows of beds with very sick children,” she said.

“But once inside I was amazed at how nice everything was, how much like a family home it felt and most of all how welcoming everyone made me feel.”

CHSW provides personalised one-to-one holistic care for each child, with a multi-disciplinary care team of registered children’s nurses, teachers, nursery nurses, play specialists, social workers, physiotherapists and many more.

In addition to care support, it helps families to enjoy fun and special moments during the precious time they have together.Every day spent at the hospice is an opportunity to create treasured memories in a relaxing, homey environment.

CHSW Little Harbour St AustellInside each hospice there is a family-style kitchen and dining room, a spacious living room and plenty of playrooms for the children who come to stay. There are rooms for arts and crafts, a games room and wonderful IT equipment and toys. The bedrooms are decorated to suit children’s different tastes, with personal touches to help them feel at home.

The medical equipment is kept out of sight to ensure a relaxing setting is provided for the children. It costs £8million each year to fund the services at CHSW’s three hospices in Devon, Cornwall and Somerset, and the charity relies almost entirely on voluntary funding. The support and generosity of the people in the South West has been invaluable to the charity, helping it to reach its 25th anniversary milestone.

Eddie Farwell said: “My hope is that in another 25 years that Children’s Hospice South West will have expanded its services to support even more children with life-limiting illnesses and that the army of supporters who care so much for these children are there to sustain what we do."

Source: Children's Hospice South West

 

Classic cars for two care causes
04 May 2016

Hundreds of classic cars have been driven around North Somerset to raise money for two charities.

Clevedon Lions hosted the Brimar classic car rally which saw 160 vintage cars and bikes gather at Cadbury Garden Centre in Congresbury where they were waved off by BBC Points West presenter Alex Lovell, before embarking on a 25-mile road trip to the Salthouse Fields in Clevedon.

Although it is not yet known how much was raised, Children’s Hospice South West and The Great Western Air Ambulance Charity are both likely to benefit from more than £3,500 through collections and a raffle held on the day.

Peter Marlow, spokesman for the Clevedon Lions Club, said: “This event was the largest the Lions have organised for many years and it will become an annual feature of the Lions’ fundraising calendar.

“Thank you to all the owners who participated and everyone who came along to see them.”

It was the first time the Lions had organised the event after its previous organisers, Brian and Mary Curtis, stepped down last year.

Source: North Somerset Times

 

Mini Run organiser’s drive to reach £500,000 for hospice
04 May 2016

Terry Baker is hoping to hit the half-a-million-pound mark for Children’s Hospice South West before he turns 65.

The man behind North Devon’s famous Mini run is aiming to reach the half-a-million-pound fundraising goal by the time he turns 65.

For 20 years, Terry Baker, 63, has been co-ordinating convoys of hundreds of Minis through the region on August bank holiday weekends.

Last year the Small Cars Big Hearts Mini tour raised £28,000 for Children’s Hospice South West.

In total, Terry and Linda have helped raise around £420,000 for the charity.

Terry said: “I have 18 months until I turn 65 and I really want to hit that half-a-million mark by then.
“People ask me what I will do then – well, start on the next half-a-million of course.”

Terry was moved to start the Mini Grand Tour in 1995 when he had a call from the hospice asking if he could arrange for some Minis to visit for a sick child.

He brought 25 cars up to Little Bridge House – and the rest is history.

Terry said people come from far and wide to take part in the unique convoy.

He said: “I don’t think there is anybody who is not affected when they come to Little Bridge House.”
Find out more at www.smallcarsbighearts.co.uk

Source: North Devon Gazette

 

Drills cheque presentation to Children's Hospice South West.
03 May 2016

The crew from Yelverton Fire Station presented a cheque for £860 to the Yelverton and District Friends Group of the Children’s Hospice South West (CHSW) recently.

Every April the firefighters are able to propose and vote for a charity to raise money for. The chosen charity for the past year was CHSW and the money was raised by donations to the station, car washes and the fire station’s annual charity hog roast.

Any money raised by the station throughout the year is divided equally between the Fire Fighters’ Charity and the chosen charity.

Fire Fighters from Yelverton were joined by four members of the friends’ group for CHSW and firefighter Alan Brown, who proposed the charity, was able to present the cheque to Carole Portlock, treasurer (pictured above).

The fire crew also congratulated the members of the friends’ group who themselves raised a massive £14,700 for the children’s hospice which this year celebrated its 25th year.

Childrens Hospice South West brought to the table by FF Alan Brown. Alan’s nephew Taidgh Sheriden was diagnosed with a brain tumour in 2003 aged only 7 years. 

Tragically Taidgh passes away 6 days after his 9th birthday. You can visit the charity's web site by following the link www.chsw.org.uk/home

Source: Yelverton Fire Station blog, Tavistock Times

 

Relay raises thousands of pounds for local charity
28 April 2016

NCASIt started on a glorious day in March on Weston-super-Mare’s Grand Pier; members of the North Somerset Athletic Club (NSAC) began a colourful carnival-themed relay to raise funds for equipment and in support of local charity, Children’s Hospice South West (CHSW). 

This year CHSW is celebrating 25 years since being founded by Eddie Farwell MBE and his late wife, Jill. Having heard about this milestone, the NSAC changed from being a 24-hour relay to being a 25-hour relay.  

Chris Millard of the NSAC said, “We were looking to make a connection with a local charity to enable us to do something worthwhile and CHSW was the perfect one for us. We are mainly a children’s athletic club (with a small adult section) and the opportunity to help in their Anniversary year was too good to miss.” 

Kylie Gallagher, Community Fundraiser at CHSW said, “We were delighted to have the support of NSAC which raised a wonderful £2,500 for us. All of its members have really got behind CHSW’s 25th Anniversary and I am very much looking forward to continuing the partnership into the future.”

Both Chris and Kylie would like to thank everyone who took part and donated - especially WSM Grand Pier who allowed NSAC to carry out the event. 

Source: Children's Hospice South West

 

Marcus Trescothick backs Taunton's 50/50 Cycle Ride and Walk in aid of Children's Hospice South West
28 April 2016

Somerset cricket star Marcus Trescothick has thrown his weight behind the 21st annual Rotary Club of Taunton's 50/50 Cycle Ride and Walk on Sunday, May 15.

The Children's Hospice South West is the event's chosen charity, but participants will be able to donate half of the sponsorship they raise to a charity of their choice.

Trescothick said: "Children’s Hospice South West is a cause that is very close to my heart. In recent years I have been involved in a number of fund raising activities on their behalf.

“I have visited their hospice in Barnstaple on a number of occasions and know just how vital the work that CHSW carry out is to the children and their families, so I am only too delighted to be able to lend my support this event.”

People can either cycle ten or 20 miles along the Bridgwater to Taunton Canal, while walkers can cover four-miles around Longrun Meadows, Netherclay Wood and Longaller.

In conjunction with Richard Huish College, there is a 43-mile Sportiv time trial or more serious cyclists.
The events start and finish at Somerset College, in Taunton.

Entry forms are available around Taunton, including Ralph Colman Cycles, Taunton Tourist Information Centre, the County Gazette offices in St James Street or from The Cycle Ride Administrator, Brindles, 16 Campion Drive, Taunton, TA1 3XE.

Or contact Jacky Ford on 01823-277057 or e-mail ford-jacky@sky.com or visit www.tauntonrotary.com

Source: Somerset County Gazette

 

The force is with you at Exmouth’s World of Country Life
28 April 2016

Want to meet Darth Vader? Shake hands with Chewbacca? Get light saber training from a Jedi? Or get arrested by Stormtroopers?

Exmouth’s World of Country Life is holding a Star Wars-themed day this bank holiday Monday (May 2), from 10am to 5pm.

It features members of Southern Troopers – the famous southwest costume group.

Raising money for Children’s Hospice South West, there will be photo opportunities, Star Wars-themed arts and crafts and games, and ‘all the usual daily activities’.

Source: Mid Week Herald

 

Mind-bending moustache and beard competition comes to Yeovil
24 April 2016

A menagerie of mind-bending moustaches and brilliant beards converged in Yeovil to compete for a series of hairy accolades and to raise money for a children's charity.

The third annual Beard and Moustache Competition of The Wessex Beardsmen took place at the Yeovil Liberal Club on Middle Street on Saturday, drawing bearers of beards and other far-out facial hair from across the country and beyond.
Andy Teague, from Tatworth near Chard but originally from Yeovil, organised the event.

Entrants had the opportunity to compete in ten different categories, with special trophies available to women – who exhibited a variety of knitted beards – and children. The winner of the children's category presented a chocolate cake in the shape of a beard to the judges, which was hastily shared among the hungry competitors.

Among the trophies is a stand-out prize dedicated to a former member of the club.

The event was held in aid of Children's Hospice South West, a charity which provides care for life-limited children and their families across the region.

Mr Teague added: "We choose a different charity each year and always one that is close to us as a club. One of our members has a son who receives respite care from the hospice so we wanted to help out.

"In total we've raised about £1,500 but we've still got a big box of t-shirts to sell online so hopefully we can raise even more."

Asked how Andy came to form The Wessex Beardsmen, he recalls a childhood fixation which turned into a passion through a series of coincidental events.

"I've had some kind of facial hair for as long as I could grow it – I couldn't wait to grow a beard at school so it was always going to happen," he said.

"In 2011 my daughter was diagnosed with leukaemia and as a reaction and a way of coping we started fundraising in various ways.

"I got involved with a team at work which was doing Movember and it became a competition between us for who could grow the best beard. I promised that if I raised £250 I would only shave half of it off. I did, and it looked ridiculous.

"I started watching a TV show called Whisker Wars which follows the American competitive bearding circuit. I realised there was a British club and a group of us went to a competition in Brighton in 2012.

"We came away from that and formed The Wessex Beardsmen and the rest, as they say, is history."

Source: Western Gazette

 

Seaton Young Leaders supports Children’s Hospice
23 April 2016

Seaton Young Leaders, Victoria and Isabella Synek Herd, presented a cheque for £428.20 to Pauline Leach, Children’s Hospice South West (CHSW), at Seaton and District Lions Club April meeting.

The Young Leaders raised the money by holding tabletop sales, tuck shop, selling Christmas cards and organising an Easter Egg Tombola. Seaton’s Young Leaders are sponsored by Seaton and District Lions Club, independently raising money as Young Leaders in Service to donate to good causes.

Seaton’s Young Leaders chose to donate to CHSW because the it provides hospice care for children with life-limiting conditions who are not expected to survive into adulthood.

The three hospices in the south west, provide respite care and support for those children and their families and 2016 is an exciting year for the charity, which celebrates 25 years since its founding in 1991.

Source: Midweek Herald

One Direction star Louis Tomlinson helps charity being set up in memory of his "buddy" Harvey Hext
21 April 2016

Harvey HextBoyband star Louis Tomlinson is giving a helping hand to a charity being launched in memory of the boy he called "my buddy Harvey". The One Direction singer has thrown his support behind A Sibling's Wish, a tribute to Harvey Hext, who died last year from a rare form of childhood cancer.

Louis and the band are supporting the initiative by Harvey's parents to offer comfort to bereaved siblings by supplying them with a bespoke memory box to store precious keepsakes to remember their brother or sister.
Harvey, of Winford, was four years old when he was diagnosed with Neuroblastoma, a rare and aggressive form of childhood cancer.

He was the only child in world with Downs' Syndrome to ever to have been diagnosed with the disease.

Harvey, who had an identical twin brother Spencer as well as older sister Olivia, lived with stable cancer for several years but died in November last year after developing an aggressive secondary tumour, aged nine.

Harvey's mother Sarah Hext said: "Before Harvey passed we did many fun and exciting things with other charities. But as soon as Harvey fell asleep it became apparent that there is very little bereavement support for siblings."

"Olivia and Spencer were sent cardboard memory boxes, but my fear was that cardboard was not durable and not special enough to contain such treasured memories.

"A Sibling's Wish will aim to supply high quality, wooden, individual A4 personalised memory boxes to bereaved siblings. They will hold the sibling's precious memory items that can stay with them forever and continue to keep the child's memory alive for future generations."

"The idea has already received interest from Charities Children's Hospice South West and CLIC Sargent as well as palliative care teams, as they recognise there is a gap in care during these difficult times."

Children's Hospice Southwest estimates it would require around 60 memory boxes per year, at a cost of approximately £12,000.

But initially, the project needs to raise £5,000 to become a registered charity, which Sarah and her team hope to raise through crowdfunding.

"Already we have had a lot of interest from companies, but they are unable to support us until we are registered," said Sarah.

Louis befriended Harvey and his family in 2014 after meeting them through a charity for terminally ill children called Believe in Magic. After learning about A Sibling's Wish, Louis has offered his help, buying them an iMac computer to use for the charity and spreading the news about their project, along with a link to the fundraising page, to his followers via Twitter.

He said: "Remembering my buddy Harvey! His family are doing something amazing."
Astoundingly, the message has since been re-tweeted by Louis' followers more than 66,000 times.

Sarah said: "We are so grateful for the support we have had from Louis and the rest of One Direction. Thanks to that one tweet, a huge number of backers have come forward and we are now very close to reaching our fundraising target."
The total raised stood at £4,700 on Thursday evening.

The memory boxes the charity hope to provide will be designed bereaved siblings using photos, pictures or drawings that are special to them, and can be important part of therapy to encourage children to show emotions and to talk about their loss.

Each box will also contain "Harvey bear". Harvey is a very special little bear that can conceal a small velcro pouch at the back which used to carry a small amount of ashes if so wished.

Sarah said: ""Harvey bear" can be a comfort that your brother/sister/child is always close by. For families that do not have ashes another precious item can be concealed."

She added: "Currently all that bereaved families are given is their child's belongings in a brown paper bag. This idea has been so well received by professionals who all agree that there is a void in sibling care."

The crowdfunding campaign has another 12 days to run and is currently £1,355 short of its overall target.
You can find out more about A Sibling's Wish and make a pledge by visiting www.asiblingswish.com.

Source: Bristol Post

 

Port Eliot's whippet tea party set to serve the BEST dogs dinner
21 April 2016

How about this for a dog's dinner?

Next month sees the return of the annual Port Eliot Dog Festival - featuring the very elegant Roo's Whippet Tea Party.

Every year, Port Eliot's resident whippets Roo and Lark host a tea party welcoming whippets and gatecrashers of all shapes an sizes.

It is a yearly treat for the dogs who get to tuck into an incredible dog-friendly spread, as well as for owners who stand back and watch the chaos unfold.

The event is a fundraiser for Children's Hospice South West and takes place on Saturday, May 7, from 11am to 4.30pm at the Port Eliot Estate.

The day will have something for everyone with stalls, refreshments and entertainment for the public as well as a family dog show and agility course.

Last year, more than 700 people and hundreds of dogs came along to the day and more than £4,000 was raised for CHSW. It is the 25th Anniversary year for CHSW and the organisers of the festival hope that the event is once again attended well and people are feeling generous.

Entry to the dog festival is £4 for adults, £2 for under 18's and children under 11's are free. £1.00 per class entry in the dog show with all proceeds to CHSW. For those wishing to walk the estate, Port Eliot House and Gardens will also be open.

CHSW supports children with life limiting illnesses through their three children's hospices including Little Harbour in St Austell which costs over £2 million a year to run.

Source: Plymouth Herald

 

National award for Exmouth Kite Festival
20 April 2016

The Rotary Club of Exmouth and District was awarded the Community Service Cup at the Rotary International of Great Britain and Ireland (RIBI) Conference.

This is awarded annually to recognise a club that has established a project or scheme in its community for the benefit of that community. It was presented to Exmouth and District for its work on the Rotary Exmouth Kite Festival, beating entries from across the British Isles for the honour.

Exmouth and District’s Frank Hart-Venn said: “The kite festival was established in 2007 and has gone from strength to strength, yearly, with the support of the Archant press [Journal/Herald] and other local businesses.

“It is raising the awareness of rotary in our community, bringing friendship and fun, supporting education, whilst raising many thousands of pounds to help local causes and charities, not least the Children’s Hospice South West and the Rotary Foundation.”

The Community Service Cup was presented to Exmouth and District club president Simon Wood, and festival founder and former president Malcolm Pressey, by the President of RIBI, Peter Davey, at the conference in Bournemouth.

Exmouth and District recently presented Children’s Hospice South West with a cheque for £2,300 – money raised at last year’s kite festival, which was attended by around 4,000 people.

This year’s kite festival will be taking place at the usual venue, Imperial Recreation Ground, on a slightly later than usual date - August bank holiday weekend, August 27 and 28.

Source: Exmouth Journal

 

Wellington Medical Centre launches Taunton Rotary Club's 50/50 event with Carly Press
20 April 2016

Staff from the Wellington Medical Centre were joined by staff from the Carly Press to launch this year’s Rotary 50/50 cycle ride.

The event, organised by the Rotary Club of Taunton, has helped raise more than £18,000 for charities in Somerset and beyond over the past 20 years.

This year’s event will be helping to raise money for the Children’s Hospice South West (CHSW) and a charity of your choice.

Riders from the Wellington Medical Centre – the current holder of the President’s Cup – were joined by sponsors Carly Press and Rotarians led by vice- president Roger Priest to launch the event, which will take place on Sunday, May 15.

The medical centre will again have a strong team for the ride and are happy to challenge other firms, large or small, to tilt for their title.

This year you can take part on a 10 or 24-mile scenic, family- friendly cycle route.

Spokesman for the event, Bob Greenwood, said: “For the non- cyclists, there is a gentle four- mile walk suitable for families and dogs and, in conjunction with Richard Huish College, a 43- mile Sportive Time Trial for the serious cyclists.
All starts and finishes at the Genesis Centre at Somerset College.

For more information about the event, contact Jacky Ford on 01823 277057 or ford-jacky@ sky.com. Alternatively, you can contact Bob Greenwood on 01823 270609 or rhgandjjg16@ btinternet.com. You can also visit www.taunton-rotary.com.

Source: This is the Westcountry

 

Nurse Kelly organising race night for hospice
17 April 2016

A South Devon community nurse is hosting a charity race night to raise money for Children's Hospice South West.

Kelly Davis is holding the event at Finlake Holiday Park near Chudleigh on Saturday, June 18, and she hopes to raise £2,700 for the charity, before planning on climbing Mount Kilimanjaro in October.

Kelly, from Culver Green, Chudleigh, is a community children's nurse based in Exeter and works as part of the complex healthcare team.

She said: "The children I nurse are supported by Little Bridge House Children's Hospice. They provide care to life-limiting children and their families from across the South West.

"Little Bridge House offers short breaks away for the whole family for respite and relaxation.

"They have a dedicated sibling support service, this means that the well brothers and sisters can be cared for during their visit and can enjoy spending time with other children in similar situations to their own.

"The support the hospice gives extends to the whole family into bereavement and beyond as long as the families need them."

She is hosting the charity event on June 18 which will consist of a race night, with live music by Shaun Perry. She is also looking for raffle prizes to be donated.

Anyone interested in helping out can do so online at www.virginmoneygiving.com/kellyDavis3

Source: Herald Express

 

Firefighters running for hospice
16 April 2016

Portishead FirefightersTo fight fires you have to be incredibly fit, but crews from Portishead proved themselves to be at the very top of their game this week.

Firefighters from Avon and Fire and Rescue Service took part in a six-hour fundraiser for Children’s Hospice South West (CHSW) on Sunday.

A treadmill was brought into Waitrose’s store and the firefighters ran with kit and breathing apparatus on their back to raise money for charity.

It was their latest challenge as they embark on a year-long campaign to support CHSW. They hope to raise £5,000 and are currently about one third of the way to their target, having already completed the Two Bays Tough 10 Challenge in Weston and the Bath Half Marathon.

However, despite having completed several tough tasks, the Great Bristol 10k, the Three Peaks Challenge and Portishead Triathlon also lay in wait.

Firefighter Daren Beacham, who is co-ordinating the challenges, thanked those who came down to the store on Sunday to cheer the team on.

He said: “We decided to support this wonderful charity after visiting one of the hospices (Charlton Farm) last year. It really does fantastic work.

“I’d like to thank everyone who is supporting us for their kindness.”

Anyone keen to donate can do so at www.virginmoneygiving.com/team/station07.

Source: North Somerset Times

 

Singers lend their voices to night of music for hospice
16 April 2016

Coleford grandmother Pauline Spanswick is organising a musical fundraiser for a charity dear to her heart.
Over the years she and her family have raised money for the Children's Hospice South West.

Her daughter Rachael and youngest grandson Max recently completed a walk around the grounds of Prior Park college in Bath and raised cash for the hospice.

And for the charity's 25th anniversary this year Mrs Spanswick is wanting to organise something special.

She said: "My husband and I lost our first child James at the age of four months, the hospice was not in existence at this time, we had no help or counselling at all and it was a very difficult time for us.

"So I can appreciate the huge help CHSW gives both to life limited children, their siblings and their parents."
So with her eldest grandson Tom she has organised an evening of song with the Jenny Peplow Singers in Chilcompton Village Hall on Saturday, May 14, at 7.15pm.

Tickets are available from her on 01373 812690, or by sending an email to fundraisingevent@mail.com. They cost £8 for adults, £4 under 16s and include light refreshments.

A representative of CHSW will give a short talk on how the hospice was started and the work that they do.
The Jenny Peplow Singers were formerly Midsomer Voices and have grown in numbers now having more than 40 members.

Mrs Spanswick said: "This is more than a choir, they are friends and have helped me through some very difficult to cope with years, singing is such a joy and Jenny is a wonderful inspiring leader."

Source: Frome Standard

 

Lyme Lunge 2016 raises thousands for Children's Hospice South West
16 April 2016

A children’s hospice has received more than £4,000 after funding was raised at a popular Lyme Regis event.

Hundreds took the plunge on New Year's Day in the annual Lyme Lunge event organised by the Rotary Club of Lyme Regis.
The group has now donated £4,500 to the Children's Hospice South West (CHSW) from the event's proceeds as well as a grant from a regional group of Rotary clubs.

Rotary president John Bartlett said: "All the sponsorship monies have now been collected, and a grant from Rotary District 1200 received, so we are pleased to be able to present this donation to the CHSW.

“The aim of the hospice is to support children with life-limiting illnesses, and their families, and it strives to ensure that no family is more than an hour and a half away from its care.

"In addition to the children, mums, dads, brothers and sisters are all catered for, the hospice is a home away from home.
"Some families say it’s like being wrapped in a warm blanket - offering respite, emergency end-of-life and bereavement care.

Mr Bartlett added: "The average relationship time for a family with CHSW is seven to 10 years.

"Children go there from life limited diagnosis to end of life. It's about enabling and making time for families to be families, helping to make the most of short and precious lives.”

The donation will go towards a special chair specifically designed for children who are prone to rock repetitively.
Paula Garrett from CHSW took on the Lyme Lunge in January.

She said: "This generous donation from Rotary will be used specifically to purchase a hardrock chair and waterproof four-way sliding sheets for Little Bridge House in Devon.

“The hardrock chair helps support children who are not only life limiting but who also have challenging behaviour.
"Preventing the children from rocking, it keeps them safe and comfortable while feeding, and helps the care team engage them in everyday activities.

"It has an anti-rocking system and padding to prevent the children from hurting themselves and allows them to join in and be part of the CHSW family at Little Bridge House. The four-way sheets vastly improve the movement of immobilised patients, preventing distress and pressure sores and avoiding carer back strain." when lifting heavy patients.

"Our sincere, heartfelt thanks to Rotary and the community of Lyme Regis for their support and generosity.”

Source: Bridport News

 

Cheddar Male Choir joined by Launceston Male Voice Choir for powerhosue performance
15 April 2016

Cheddar Male Choir joined forces with Launceston Male Voice Choir for a powerhouse performance at St Cuthbert's Church, Wells, over the weekend.

The concert was in aid of Children's Hospice South West which is celebrating its 25th anniversary.

The groups sang many popular songs, from traditional to modern with a sprinkling of songs from musical shows thrown in.
Cheddar Male Choir will be holding its next concert at St Andrew's Church in Cheddar on May 21 at 7.30pm.

This year's concert marks the 21st year of formation and the group will be joined by the Cornish Treverva Male Voice Choir.

Cheddar Male Choir helps other charities and good causes by singing at around a dozen choral concerts every year.

Tickets are £8 and available from Deane's of Cheddar, a choir member or on sale at the door on the night.

Source: Cheddar Valley Gazette

 

Local fundraisers invite you to join their double celebration!
14 April 2016

Gill BrownA group of fundraisers from Bridgwater are holding a special Silver Celebration Evening on behalf of Children’s Hospice South West (CHSW) to mark the charity’s 25th Anniversary.

The Celebration Evening, which takes place on Saturday 23rd April at Blake Hall, includes a meal, with music from Tim Pitman and Retro, as well as two horse races with Steve Russell.

The Bridgwater Friends’ Group has been fundraising for their local children’s hospice, CHSW’s Charlton Farm in North Somerset, for over 10 years and have raised a staggering £281,272.00!

During this time they have held a range of events, including Christmas lights switch ons and clairvoyant evenings to Christmas and Easter bingo. Chairperson, Gill Brown, began fundraising for CHSW following ten years of fostering children, which is why this local children’s charity is so very close to her heart. 

Kylie Gallagher, Community Fundraiser at CHSW says “This celebration evening is a very special milestone for the group who have worked tirelessly over the years for CHSW. We are really looking forward to celebrating with the group on this special anniversary for them and us.” 

Tickets are £10 and are available through Gill Brown, 01275 866 600 or from the CHSW Charity Shop in Fore Street, Bridgwater. 

Source: Children's Hospice South West

 

Valley Fest 2016
14 April 2016

Valley Fest has announced the headline acts that will bring the sound of music to the Chew Valley.

Organisers say: "Get your dancing wellies out between September 2 and 4 to the foot-stomping sounds of Stereo MCs, The Blockheads and Craig Charles Funk and Soul Club featuring Hannah Williams.

"Tickets are now on sale for the three-day festival, which runs on a 'love the land' ethos, celebrating everything home grown and natural, with no commercial nonsense on the stage or on your plate."

Combining hip hop with electronic dance, Stereo MCs whose hits include Connected and Step it Up are a West Country favourite, taking to the festival's Lake Stage.

They will be joined by rock and rollers, The Blockheads whose hits Hit Me With Your Rhythm Stick and Reasons to be Cheerful will have every generation in the audience singing along.

Previous festival favourite Craig Charles Funk and Soul Club will feature Hannah Williams for a live set, bringing the festival to a funky close on Sunday night.

Created when local farmer Luke Hasell teamed up with the folk at Yeo Valley, the festival takes place in the stunning setting of an organic farm overlooking views of Chew Valley Lake and the countryside beyond.

The UK's all-organic festival will feature live performances, a cinema field, top-notch locally-sourced food, festival feasts, street art, cookery demonstrations, farm tours and children's workshops to boot.

Luke said: "It's always exciting to get people on to the land for a weekend of dancing in tipis and spending quality time with friends and family.

"Valley Fest is all about sharing what my parents left behind, celebrating everything homegrown with no commercial nonsense and it's great to be able to celebrate this with the public and a strong line-up as the final farewell to summer."

Expect good music, good vibes and a tractor ride or two.

The festival raises money for Children's Hospice South West, Above & Beyond, Send a Cow and The Good Will Cause.

All local charities selected by the festival organisers in memory of Luke's parents who owned and the farmed the land where the festival is held. Tickets are available from www.valleyfest.co.uk.

Source: Frome Standard

 

Charity Bingo at Launceston Football Club
13 April 2016

Bingo nightFriday night is Bingo night at the Launceston Football Club, Donald Stone, Golda Heywood, Kath Dymond and Jennie Bailey have been running these weekly sessions for over the last 18 months.

During this time they have raised money through the raffle, after spending out for books etc., there are surplus funds, to this end they are giving away to the following local charities, chosen by themselves:Launceston Cats Protection, Parkinson’s Support Group, Southgate Colts Under 9s, The Smart Start Pre-School, Huntingtons Disease Sensory sessions, The Monday Club, Children’s Hospice South West, Launceston Girl Guides.

Members of these groups were presented with cheques for £100 at the Football Club on Friday 26th February.

Source: North Cornwall Today

 

Harry Cochrane: Yeovil schools donate to Children's Hospice South West in his memory
13 April 2016

Tribute to Harry CochraneSchools in Yeovil have donated to a children's hospice that helped care for one of their past pupils.

The South Somerset Partnership School and Westfield Academy both raised money in memory of Harry Cochrane, who passed away in January aged 15 following a battle with a brain tumour, leaving behind mum Tracey, dad Nick and sisters Sian, Shannon and Nicole.

Harry attended Westfield until he was diagnosed with cancer in 2014, and then continued his education at the South Somerset Partnership School.

Before his funeral, Westfield pupils lined the streets around the school to pay their final respects as his procession went through the town.

On Wednesday, a cheque of £620.40 was donated to Children's Hospice South West by staff from Westfield Academy as a result of World Book Day activities and a cake sale, before £218 was presented by the South Somerset Partnership School.

The money will be used to benefit Charlton Farm, the Bristol hospice where Harry was cared for before he died.
Harry's mum Tracey, who was present at the South Somerset Partnership School, described her son as an "inspirational" person who had a "real zing for life".

She said: "The school [SSPS] really helped Harry. When he went there, everyone was amazing. The teachers, his friends, and the way that they helped him was all amazing and there could not have been a better place for him to go at that point in time.

"Charlton Farm was so good as well. The staff were amazing and to have a support network like that there for us as a family was a real source of comfort."

Thanks to fundraising efforts, Harry was able to go on holiday with his family to Portugal last year, where he fulfilled his dream of swimming with dolphins.

Mrs Cochrane added: "It was the best thing that could have happened to him. To have the whole family with him, all of his sisters and his mum and dad there as well, it was perfect. He just wanted to share his love of life with everyone and it was fantastic that he got the chance to do that."

Kylie Gallagher, community fundraiser for Children's Hospice South West said: "We are incredibly grateful for the donations.

"Support like this is vital to us and every pound matters, no matter how big or small a donation. We have our 25th anniversary this year and Charlton Farm is celebrating its tenth birthday next year.

"With the generous support we are hoping to continue to offer children like Harry vital support, both for them and their whole families."

Initially South Somerset Partnership School fundraised to purchase a special Lazy Spa for Harry, and since his sad passing, they have continued to fundraise for Children's Hospice South West, who supported Harry and his family." 

Source: Western Gazette

 

Trio of routes for charity’s anniversary walk
13 April 2016

To celebrate Children's Hospice South West's 25th anniversary this year, members of its Truro friends group are organising the Harbour To Harbour For Little Harbour walk.

It is a sponsored walk happening on Sunday with three different routes and distances making it something that everyone can get involved in.

You can either walk 12 miles from Devoran to Portreath, nine miles from Bissoe to Portreath or five miles from Scorrier to Portreath.

Roger Clarke, chairman of CHSW's Truro Friends Group which is organising this event, said: "I have three fantastically healthy daughters, sons-in-law and six grandchildren which I am so grateful for and that's what made me get involved with helping CHSW as much as possible. I have been helping in small ways over the years but wanted to do something bigger to celebrate the charity's anniversary. I also love walking and industrial archaeology so this walk with these routes seemed like the perfect fundraiser to organise."

Registration for the walk costs £10 per adult or £15 for a family of two adults with children. Included in your registration you receive a free Prima Bakeries pasty and a cream tea at Portreath School.

This event is a fantastic opportunity to walk along the mineral tramway, join with friends, family or colleagues and raise sponsorship to help CHSW celebrate its 25th anniversary.

Marshals and first aiders are also required for the walk so if you would like to be involved in the event in that way then please get in touch with Roger.

To register for the walk or to find out more email rogclarke1@btinternet.com or call Roger on 01872 273651.

Source: West Briton

 

Harry Cochrane: Yeovil schools donate to Children's Hospice South West in his memory
13 April 2016

Schools in Yeovil have donated to a children's hospice that helped care for one of their past pupils.
The South Somerset Partnership School and Westfield Academy both raised money in memory of Harry Cochrane, who passed away in January aged 15 following a battle with a brain tumour, leaving behind mum Tracey, dad Nick and sisters Sian, Shannon and Nicole.

Harry attended Westfield until he was diagnosed with cancer in 2014, and then continued his education at the South Somerset Partnership School.

Before his funeral, Westfield pupils lined the streets around the school to pay their final respects as his procession went through the town.

On Wednesday, a cheque of £620.40 was donated to Children's Hospice South West by staff from Westfield Academy as a result of World Book Day activities and a cake sale, before £218 was presented by the South Somerset Partnership School.
The money will be used to benefit Charlton Farm, the Bristol hospice where Harry was cared for before he died.

Harry's mum Tracey, who was present at the South Somerset Partnership School, described her son as an "inspirational" person who had a "real zing for life".

She said: "Charlton Farm was so good. The staff were amazing and to have a support network like that there for us as a family was a real source of comfort."

Thanks to fundraising efforts, Harry was able to go on holiday with his family to Portugal last year, where he fulfilled his dream of swimming with dolphins.

Mrs Cochrane added: "It was the best thing that could have happened to him.
"To have the whole family with him, all of his sisters and his mum and dad there as well, it was perfect.
"He just wanted to share his love of life with everyone and it was fantastic that he got the chance to do that."

Kylie Gallagher, community fundraiser for Children's Hospice South West said: "We are incredibly grateful for the donations.

"Support like this is vital to us and every pound matters, no matter how big or small a donation. We have our 25th anniversary coming up and Charlton Farm is celebrating its tenth birthday next year.

"With the generous support we are hoping to continue to offer children like Harry vital support, both for them and their whole families."

Kirsty Moran, leader of learning at the South Somerset Partnership School, where a tree has been planted in Harry's memory, said: "The biggest memory I have of Harry is his smile.

"You always knew if he was in your lesson because he had the biggest smile and he brightened up any room that he was in.

"We are very happy to support the hospice and Harry will always be fondly remembered by all of the staff here."
Michelle Mitchell, marketing and publicity officer at Westfield Academy, said: "Harry's journey had a big impact on the students here.

"Initially they fundraised to purchase a special Lazy Spa for Harry, and since his sad passing, they have continued to fundraise for Children's Hospice South West, who supported Harry and his family."

Source: Western Gazette

 

Colyton students raise £2,500 for Children’s Hospice
13 April 2016

Colyton studentsA group of sixth form students from Colyton Grammar School completed a gruelling three-day cycle ride to raise £2,500 for the Children’s Hospice South West.

The team covered 275km, and climbed around 4,300m - almost half the height of Mt Everest.

On the final day, they briefly visited Little Harbour, one of the Children’s Hospice South West’s Hospices in St Austell, to see where the money which they have raised will go.

Tristan Allen, who organised the event, said: “We’d like to say a big thank-you to everyone who has sponsored us, helping us to raise well over twice our original target of £1,000.

“Also, we would like to thank Lovells Garage, of Ottery St Mary, where I live, who very kindly provided us with a support van, which we used throughout the trip.”

There is still time to donate by text LTLE55 £3 (or £1, £2, £4, £5 or £10) to 70070, or by visiting their Justgiving Page.

Source: Mid Week Herald

 

Taunton duo to complete 160-mile London-Taunton bike ride for Children's Hospice South West
11 April 2016

Taunton duo James Hay and Kevin Jeanes are embarking on a 160-mile through-the-night cycle ride to raise funds for the Children's Hospice South West.

They will be pedalling from the Crown and Sceptre pub near Paddington, in London, to its namesake in Station Road, Taunton.

They are setting out at midday on Friday, April 29, and hope to arrive at lunchtime the following day.

Paula Garrett, community fundraiser at CHSW, said: ‘The support that we get from our local community is just fantastic.

"This is a madcap idea, but we are delighted that they have chosen to support our charity and I wish them the best of luck."

You can support the duo on their fundraising page.

Source: This is the Westcountry

 

Artwork by Simon Cowell to be auctioned for CHSW
11 April 2016

Simon CowellIs it a dog, a crocodile or a prehistoric creature?

Whatever your take on it, Children's Hospice South West (CHSW) has an original Simon Cowell drawing – complete with signature – now available for auction.

The piece will be auctioned through the charity's eBay store starting April 17, and Emma Perry, Senior Community Fundraiser at CHSW's Little Bridge House hospice said: "We're so grateful to have this opportunity to use Simon's artwork to fundraise again for us.

"Whilst it may not be a Picasso, it is an original piece of artwork, which includes Simon's signature, and so could be a great investment."

The black and white doodle formed part of Children's Hospice South West's Art for Precious Lives, a charity auction of original pieces of art, including some celebrity pieces in 2015.

The charity is delighted that Simon Cowell's artwork has been re-donated to raise even more money.

The auction will go live on Sunday, April 17 until Sunday, April 24, so don't miss out on the chance to bid on this unique, one of a kind, exclusive signed piece from the Britain's Got Talent and X Factor judge.

For more information visit www.chsw.org.uk/art

Source: North Devon Journal, Cornish Guardian, Looe Today, North Somerset Times, Tavistock Times

 

Lyme Lunge 2016 organisers raise £4,500 for Children's Hospice South West
09 April 2016

Lyme Lunge 2016A children’s hospice has received more than £4,000 after funding was raised at a popular Lyme Regis event.

Hundreds took the plunge on New Year's Day in the annual Lyme Lunge event organised by the Rotary Club of Lyme Regis.
The group has now donated £4,500 to the Children's Hospice South West (CHSW) from the event's proceeds as well as a grant from a regional group of Rotary clubs.

Rotary president John Bartlett said: "All the sponsorship monies have now been collected, and a grant from Rotary District 1200 received, so we are pleased to be able to present this donation to the CHSW.

“The aim of the hospice is to support children with life-limiting illnesses, and their families, and it strives to ensure that no family is more than an hour and a half away from its care.

"In addition to the children, mums, dads, brothers and sisters are all catered for, the hospice is a home away from home. Some families say it’s like being wrapped in a warm blanket - offering respite, emergency end-of-life and bereavement care.

Mr Bartlett added: "The average relationship time for a family with CHSW is seven to 10 years.
"Children go there from life limited diagnosis to end of life. It's about enabling and making time for families to be families, helping to make the most of short and precious lives.”

Paula Garrett from CHSW took on the Lyme Lunge in January.

She said: "This generous donation from Rotary will be used specifically to purchase a hardrock chair and waterproof four-way sliding sheets for Little Bridge House in Devon.

“The hardrock chair helps support children who are not only life limiting but who also have challenging behaviour. Preventing the children from rocking, it keeps them safe and comfortable while feeding, and helps the care team engage them in everyday activities.

"It has an anti-rocking system and padding to prevent the children from hurting themselves and allows them to join in and be part of the CHSW family at Little Bridge House. The four-way sheets vastly improve the movement of immobilised patients, preventing distress and pressure sores and avoiding carer back strain when lifting heavy patients.

"Our sincere, heartfelt thanks to Rotary and the community of Lyme Regis for their support and generosity.”

Source: Bridport News

 

Eddie Farwell on founding Children's Hospice South West 25 years ago and his passion for the charity
09 April 2016

Eddie's storyChildren's Hospice South West celebrates its 25th anniversary this year. Rob Stokes went to meet its co-founder and chief executive Eddie Farwell, who explained how it all began.

It was an idea that came to him in the middle of the night. But he and his wife, Jill, were in the worst possible position to take it forward. Yet they did and Children's Hospice South West was the result.

A quarter of a century later, Somerset-born Eddie, a softly spoken man with a ready laugh, reflects on that moment.
"I woke up in the middle of the night and said 'We have got to do something for the South West'," he recalls.

At the time he and Jill were staying at Helen and Douglas House in Oxford, the world's first children's hospice.
Jill's reaction was simple. "Go back to sleep," she said

They already had enough on their plates. Their daughter, Katie, who was 11, had died a couple of years before and their son, Tom, then aged eight, was dying of the same rare degenerative condition called San Fillipo disease. But as the following days dawned they both felt driven to act.

"The idea grew in both of us and it became a force we could not deny," says Eddie. And having stayed as a family at Helen and Douglas House with Katie and Tom for up to four weeks a year from 1984, they knew how vital something like it could be.

They also knew there were many other families with children whose lives would be cut short through disease or genetic conditions.

People travelled to Oxford from all over the United Kingdom and from as far away as Germany. People, like them, for whom life was tough and an unbroken night's sleep was a distant memory. They decided to build a hospice for the South West, for families like theirs.

At the time, as well as helping to care for Tom, who lived until 1998 when he was 15, Eddie was a manager with social services in Devon.

But neither he nor Jill, herself a social worker and academic, had set up a charity let alone one with the ground-breaking ambitions of Children's Hospice South West.

Eddie remembers: "We thought we would give it a go. We had never done any fundraising, but we gathered some friends together and we launched the charity in May 1991 and the thing went ballistic.

"The incredible thing was that from a standing start, by spring 1992 we were receiving around £30,000 to £40,000 in donations."

It was shortly after the launch Katie died. The charity took over their spare room and then most of the rest of their home before they eventually rented an office in Barnstaple. Eddie and Jill travelled all over the place talking to different groups, raising money. One night in Bath, the next in Falmouth.

By the start of 1992 they knew their £1 million target would be reached.

Little Bridge House Open DaysAlmost at the same time Jill was diagnosed with breast cancer. The prognosis was not good and Eddie took over and commissioned the building of the charity's first hospice, Little Bridge House at Fremington, near Barnstaple. It opened in September 1995.

Within five years the eight-bed hospice, catering for children with life-limiting conditions as well as their families, had reached capacity. Up to 200 families a year from all over the South West were being helped by the hospice.

Eddie says: "We looked around to see if there was someone else who could set up something else. Then one of our trustees said: 'We have got the track record – isn't it us?'" He ends this sentence with one of his joyful laughs.

So he and Jill began searching for another site.
They needed four acres of level ground. There were many fruitless visits until they rang estate agent David James,
"They said Charlton Farm had come in that day and could we be there in 10 minutes. We saw this dilapidated 100-acre farm with listed buildings and thought it was the most magnificent site," says Eddie.

They launched an appeal to raise £8 million and the first turf was cut in May 2004. But within four months cancer claimed Jill's life. She was 54.

For Eddie and daughter Lizzy, it was a terrible time. But he kept going and Charlton Farm took shape.

Eddie, who was born and brought up in Yeovil, says it again reflected the generosity of the people in this part of the world.

He says: "I was scared that it was going to overstretch us but I needn't have worried. I think the South West is very special. There is real generosity here. People have very big hearts."

He recognises, too, that the plight of children touches people universally.

Eddie says: "It was brought home to me when David Cameron's son, Ivan, died. A child who had little that this world values brought the mother of parliaments to a standstill. I thought that was really incredible. It's that power which makes people want to give."

In April 2007, Charlton Farm at Wraxall, just outside Bristol, opened. It was paid for and completed without the charity needing to borrow a penny.

CHSW Little Harbour St AustellWithin three years, planning permission was given for Little Harbour in St Austell.

It was built on a field owned by farmer Howard Rosevear. When Eddie said he would like to buy the site and asked Mr Rosevear how much it would cost, the farmer replied simply: "We are going to gift it to you."

The new £5 million hospice was opened in December 2011 again without any loans and this time in the midst of the recession.

The charity's three hospices now support around 500 families across the South West every year. They have a staff of almost 300 and cost £8m a year to run.

Since 2006, hospices have received some government funding as well as grants from health bodies but they still have to find 85 per cent of the running costs themselves.

"I wake up in the night worrying about the sum of money we need so I tend to think of it in smaller lumps. It is the only way I can feel at ease with it," Eddie says.

But there are 90 support groups, from the Scilly Isles to Gloucester, helping to raise the money needed.

"What a fantastic thing it is to be a conduit for people to give help to children and their families. It's incredible," he says.
For Eddie who became chief executive of the charity after Jill's death, it is a very personal enterprise.

"Although other countries have charities there is nothing like the charities we have here," he says. "I think that's why so much of the humanitarian work that goes on has its roots in the United Kingdom."

Many things have changed in the past 25 years. People are more aware of children with terminal conditions and of their needs but the original aim of the Children's Hospice South West to provide support for children with life-limiting illnesses and their families remains at its core. And that means them all sharing time together at the hospices.

Today 80 per cent of people staying at Charlton Farm are families. "We have been able to replicate what we found in Oxford in our three hospices," he says.

Eddie has now remarried and his wife, Erika, plays a vital role in his work behind the scenes. She is, in his words, "my confidante", he says. "She is a great leveller. She asks the questions that no one else dares."

Eddie, who turns 65 this month, admits it will be very hard when he "comes to hang up his boots".

He smiles, his eyes widen and he says: "I enjoy working. I think I am the only person who has been involved in the founding of three hospices. The job is my life. But it is more than a job, it's a passion."

Source: Western Daily Press

 

Sea King retirement dinner raises over £1,000 for charity
08 April 2016

Sea King farwellMore than £1,000 was raised for charity at a commemorative dinner to mark the retirement of the Royal Navy's iconic Sea King helicopter.

The event, held at the Haynes International Motor Museum in Sparkford, took place on the March 31 and was attended by over 200 serving and former Senior Rates who worked on the Mk4 Sea King.

The money raised will be donated to Action for Children and the South West Children's Hospice, and Chief Petty Officer Steve Pointon explained why these charities were chosen: "I'm delighted and so grateful Action for Children was chosen as one of the night's charities as I'm so passionate about their work and helping children like my adopted son, Harry, who has had a difficult starts in life.

"To raise over £500 from such an enjoyable and emotional evening was the icing on the cake."

"It was a wonderful night and, as sad as I am to say goodbye to the magnificent Sea King, I am proud to be a member of such a fine group of men and women who worked with her.

"It was great to catch up with some great friends, share our stories and help in some way to improve the lives of some of our country's most disadvantaged children and families."

It was Steve's upcoming Tikka's Travels sailing adventure around the UK that inspired the choice of Action for Children as one of the dinner's beneficiary charities.

Steve's attention now turns to his next voyage on his boat, Tikka, in June and the other Tikka fundraising challenges for Action for Children it has since inspired.

He added: "We've raised over £4,500 without putting Tikka in the water yet and nearly half way to our £10,000 target so I'm really pleased how the challenge has caught people's imagination.

"We're getting close now and I'm looking forward to completing the final preparations and getting into the sea."

For more information, search 'Tikka's Travels' on Facebook and to donate, please visit http://uk.virginmoneygiving.com and search 'Tikka's Travels'.

Source: Western Gazette

 

Dartmouth adventurers to compete in world's longest canoe and kayak race
08 April 2016

Dartmouth adventurersTwo Dartmouth adventurers have been accepted to compete in the longest canoe and kayak race in the world – the Yukon 1000 – in aid of the Children's Hospice South West.

Yorkie Lomas and Phil Langman are no strangers to experiencing gruelling and abnormal conditions to achieve outstanding success.

They were members of the Dartmouth Rowing Club four who became the first four to row an ocean setting a benchmark record of 36 days, 59 minutes and 30 seconds for the crossing from La Gomera in the Canary Islands to Barbados in 2004 – a record which still stands.

In 2007 they competed in the Kalahari Augrabies Extreme Marathon which is a self-sufficient run over seven days, covering around 155 miles in the overbearing heat of the desert.

In 2008 they competed in the Paris Marathon and then ran to London to compete in the London Marathon – eight marathons in eight days.

The Yukon 1000 Canoe and Kayak Race, which starts on July 18, is an unsupported wilderness paddling race down the Yukon River, a distance of around 1,000 miles. The race goes through some of the most deserted land on the continent.

Teams may spend many hours at a time out of sight of any other boat or person and the river has very few road access points or people living along its banks.

Teams have been warned that however good they are at paddling, things can and do go wrong, such as damaged shoulders, wrists, hands, exhaustion, hypothermia or just getting cold and tired, and teams need to be equipped to be self-sufficient for at least two weeks, preferably three.

Teams are expected to take appropriate bear precautions when they stop for the night, storing food in approved canisters or hanging it at least 10ft off the ground and 4ft from any tree trunk.

Yorkie and Phil are aiming to raise at least £5,000 for the Children's Hospice South West.

Anyone who wishes to make a donation can do so online via 'The Trail Events Team's fundraising page' on the Virgin Money Giving website.

Source: Herald Express

 

Moorlanders Easter Egg Run another success
08 April 2016

Bikers on Easter egg runThe hundreds of bikers who faithfully joined in the Easter Egg Run were full of praise for the organisation and safe marshalling of the event. Despite the wet and windy conditions, the Run was well attended.

The charity motorcycle event, now in its’ 19th year, is held by Moorlanders MCC in association with Widows Sons South West Chapter.

The bikers gathered on Davidstow Airfield on Easter Sunday morning with each biker donating £5 and a chocolate egg for presentation to children in care, before they were led on a circular route around North Cornwall.

Their journey took them through Boscastle, up to Bude for a stop at the Lock Gates Tea Room and ended at Bowden Derra care home, Polyphant, for a barbecue, live music and prize giving celebration of a job well done.

Here, they officially presented Bowden Derra with the wooden gazebo Moorlanders had built from the money raised at last year’s Egg Run.Over £3,000 was raised on the day, and with collections still to be made, Moorlanders MCC is pleased they’ll be making worthwhile donations to local children’s charities: Children’s Hospice South West, Action for Children and the Special Needs units of Camelford Primary and St Stephens CP school, Launceston.

Source: Cornwall Advertisers

 

More than £3k for children’s charity from Monkton Elm
08 April 2016

Monkton Elm Garden & Pet CentreVisitors to a Somerset garden centre have helped raise more than £3,000 (April, 2016) for a children’s charity through a series of fundraising events.

During the past 12 months, Monkton Elm Garden & Pet Centre has collected £3,020 for Children’s Hospice South West (CHSW) through its Easter activities, Open Weeks and evenings, and Santa’s grotto.

Steve Searle, Store Manager, at the award-winning, independent, family-run garden centre at Monkton Heathfield near Taunton, said: “We’d like to say a huge ‘thank you’ to all of our generous customers who donated to the charity during our various events throughout the past 12 months.

“I’d also like to thank all of our staff for their hard work in organising events such as our Easter treasure hunts, Open Evenings and of course, the biggest event of the year, our Santa’s grotto.”

CHSW is currently the only provider of specialist hospice care for children in the region. It offers much needed support for youngsters with a life-limiting or life-threatening condition and their families at its three hospices: Charlton Farm in North Somerset, Little Bridge House in North Devon and Little Harbour in Cornwall.

Gill Brown, the Chairwoman of the Bridgwater Friends of CHSW, said: “Our relationship with Monkton Elm started 10 years ago after I wrote to the staff asking for a donation for a raffle prize. We ended up becoming its Charity of the Year and have been working with them ever since.

“We’re thrilled at the recent donation, which will go towards the work we do for our three children’s hospices. Since the Bridgwater Friends of CHSW established we have raised £280,000 and are always extremely grateful to Monkton Elm for contributing towards this year after year. 

“All of the volunteers and staff really enjoy attending the garden centre’s events and working with the extremely friendly and helpful staff.”

Source: About my area

 

Tickets available for Children’s Hospice South West silver celebration evening
07 April 2016

Bridgwater Friends GroupA group of dedicated Bridgwater fundraisers are holding a special silver celebration evening on behalf of Children’s Hospice South West.

The event will mark the charity’s 25th Anniversary and will take place on Saturday April 23 at Blake Hall.

A two course meal will be included, as well as music from Tim Pitman and Retro and two horse races with Steve Russell.

The Bridgwater Friends’ Group has been fundraising for their local children’s hospice, CHSW’s Charlton Farm in North Somerset, for over 10 years and have raised a staggering £281,272.

During this time they have held a range of events, including Christmas lights switch ons, clairvoyant evenings and Christmas and Easter bingo.

Chairperson, Gill Brown, began fundraising for CHSW following ten years of fostering children, meaning the local children’s charity is very close to her heart.

Kylie Gallagher, community fundraiser at CHSW, said: "This celebration evening is a very special milestone for the group who have worked tirelessly over the years for Children’s Hospice South West.

"We are really looking forward to celebrating with the group on this special anniversary for them and us."

Tickets cost £10 and are available through Gill Brown, 01275 866 600 or from the CHSW Charity Shop in Fore Street, Bridgwater.

Source: Bridgwater Mercury

 

Taunton Model Engineers present charity cheque
06 April 2016

Taunton Model EngineersThe Taunton Model Engineers were pleased to present Paula Hullett with a cheque for £316 on behalf of the Children’s Hospice, South West, on Easter Monday.

This was the result of operating their two miniature railways on Santa Special days prior to Christmas 2015 and with thanks for the donations made by the local communities on Sunday 13 in Vivary Park and Sunday 20 December at Creech St.Michael Recreation Park.

This success was the culmination of a year in which the two railways were able to give rides to some 6,400 passengers to whom we express our thanks and appreciation for their support with the hope that we see them again in 2016.

This year is significant as it marks the 70th anniversary since the Taunton Model Engineers was formed in 1946 which is planned to be celebrated with a special event to be held at Creech St.Michael on Saturday 23 July from 10am to 5pm.

Not only will the railway be operational but also miniature traction engines will be in action alongside a display of models by members and other model engineering clubs who are being invited to join us for the day.

The group hope you will be able to join them.

Source: This is the Westcountry

 

 
Male choirs join forces for hospice fundraising concert
05 April 2016

It's a great celebration for Children's Hospice South West this year being the 25th year of their foundation.

Cheddar Male Choir and Launceston Male Voice Choir have joined forces for a concert in St Cuthbert's Church, Wells on Saturday, April 9, to help raise funds for this very worthy organisation.

The doors open at 7pm for a start at 7.30pm to what will be a fantastic performance of male voice singing with many popular songs ranging from traditional to modern with a sprinkling of songs from the musical shows thrown in.

Cheddar Male Choir's motto is "we aim to entertain" and they perform about 12 concert a year for various charities. Since their founding in 1995, the choir has raised more than £135,000 for good causes.

The choir meets for practices on Tuesday evening at Draycott Memorial Hall, from 7.30pm to 9.30pm. New members are welcome with ability to read music helpful, but not essential.

Anyone interested in learning more about the Choir should contact them through their website www.cheddarmvchoir.co.uk.

Tickets for the concert can be obtained in advance from any choir member or at the door on the night for only £8. A night not to be missed.

Source: Wells Journal

 

Slapton Bowling Club raised more than £700 for two local causes with their annual charity day
05 April 2016

Charity Bowls daySlapton Bowling Club held their annual charity day last weekend and raised more than £700.

The event, held at Slapton Village Hall on Sunday, April 3, was the thirteenth charity 4s competition and was held in aid of Bidwell Brook Primary School, a school for children with special educational needs in Dartington, and Children’s Hospice South West.

The first prize was won by Slapton A team and the wooden spoon went to Totnes B team.

SMVR of Garden Mill Industrial Estate, Kingsbridge, owned by Steve and Laura Shute, sponsored the prizes and Laura presented the prizes.

To find out more about the charities supported, visit the website, CHSW: www.chsw.org.uk.

Source: Kingsbridge Today

 

Bristol Rovers Academy proud to support Children’s Hospice South West
31 March 2016

Bristol Academy RoversBristol Rovers Academy are privileged to be able to offer their support to Children’s Hospice South West and are hoping to raise over £2,000 over the summer through sponsorship for the Bristol Rainbow Run on Saturday 18 June.

The Academy will be encouraging players and families to sign up for the 5km run over the Bristol Downs with each player pledging the entry fee and committing to raise sponsorship. 

Academy staff, players and families will complete the run together and hope to both raise both funds and awareness for the Hospice.  It is also a valuable experience for our boys to develop their wider character and recognise the opportunities they have to help others. 

Academy manager Jonathan Henderson and Lead Foundation Phase Coach Paul Hughes have already visited the Hospices’ Charlton Farm site to discuss our link where they presented a signed shirt to Olly Slym from the Hospice. 

First Team player Lee Brown and Head of Education Adam Tutton have also volunteered to be ambassadors for the charity along with Paul Hughes. 

Speaking of the newly established partnership, Paul said; “It’s a real privilege to be able to help Children's Hospice South West and it will be brilliant to see our boys become  involved in helping a very prestigious charity, beginning with the Rainbow Run in June. 

“We place a real emphasis on developing our boys as people, as well as footballers, through a wide range of strategies and I think helping them focus on the opportunity they have to help others is important.  We want to produce excellent footballers for Bristol Rovers with the character and values associated with our great family club.” 

Olly Slym, on behalf of Children’s Hospice South West, said; “Forming a partnership with Bristol Rovers FC has been, and will be, fantastic and I would like to thank Paul Hughes for being the driving force behind this. 

"I would also like to extend my thanks Lee Brown and Adam Tutton for becoming Partnership Ambassadors along with Paul. We have so much planned for the coming year, starting with the wonderful Rainbow Run, Hospice Visits, and a few surprises along the way. 

“I would like to say thank you for helping us make the most of short and precious lives in the south west.” 

You can pledge your support by sponsoring the Academy at their online fundraising page. Anything you can donate will be gratefully received. 

Source: Bristol Rovers

 

Heart West Country visit Little Bridge House - Sam's Story
31 March 2016

Children's Hospice South West's aim is to provide a home from home, with a relaxed and informal atmosphere, where sick children and their families can come for a much needed break from the ongoing strains they face at home.

They care for children with a wide range of disorders, all of the children have serious illnesses and are not expected to survive into adulthood. 

Plenty of spacious accommodation for parents and brothers and sisters, and everyone is welcome to make the use of all the play and leisure activities at our hospices, and they hope to offer friendship and support, practical help and the chance to relax in beautiful surroundings that both North Devon, North Somerset and mid-Cornwall have to offer. 

They aim to encourage a family atmosphere, all those who wish to may get involved in everyday life at the hospice. 

The family accommodation has a sitting room, dining room and kitchen if families prefer to cater for themselves individually rather than joining us in the main part of the house. 

Referrals can be taken from family members whose child has been diagnosed with a life-limiting condition. 

When all the information available is reviewed, a decision will be made about the appropriateness of hospice care for your child and family. 

A typical period for completion of this referral process is approximately six weeks.


Source: Heart 

 

Moorlanders’ Easter Egg Run raises over £3,000
30 March 2016

Easter egg runThe hundreds of bikers who faithfully joined in Moorlanders Motorcycle Club’s Easter Egg Run were full of praise for the organisation and safe marshalling of the event.

Despite the wet and windy conditions, the North Cornwall motorbike club’s Egg Run on Easter Sunday was well attended. The charity motorcycle event, now in its 19th year is held by Moorlanders MCC in association with Widows Sons South West Chapter.

They gathered on Davidstow Airfield Easter Sunday morning to donate £5 and chocolate eggs, before being led on a circular route around North Cornwall.

Their journey took them through Boscastle, up to Bude for a stop at the Lock Gates Tea Room. It ended at Bowden Derra care home, Polyphant, for a barbeque, live music and prize giving celebration of a job well done. Here, they officially presented Bowden Derra with the wooden gazebo Moorlanders had built from the money raised at last year’s Egg Run.

More than £3,000 was raised on the day, and with collections still to be made, Moorlanders MCC is pleased they will be making worthwhile donations to local children’s charities.

These are Children’s Hospice South West, Action for Children and the Special Needs units of Camelford Primary and St Stephens CP School, Launceston.

Source: Launceston Today

 

National award for Tiverton pupils
29 March 2016

Tiverton schoolInspirational pupils in Tiverton have been recognised for their work in the community in a national competition.

Tiverton High School's Interact Club has won the Rotary International in Great Britain and Ireland's Young Citizen Group Award. The group was nominated by Tiverton Rotary Club in recognition of its fundraising activities for causes at home and abroad.

The Interact Club, which is sponsored by the Tiverton Rotary Club, has 50 members aged between 12 and 16 who meet once a week during term time. They came up with some unusual and fun ideas including holding shows such as "I'm a Teacher Get Me Out of Here" and "Teachers got Talent" to help raise funds to support charities such as ShelterBox and Chat, a Tiverton homelessness charity.

The activities of the Interact Club led to recognition from Ofsted in their July report on the school, which stated: "Those involved in the Rotary Interact programme are all excellent role models. They make a significant contribution to the school and also to local and wider communities."

The judges of the Young Citizen award chose six overall winners, including one group award, from about 50 entries from across Great Britain and Ireland. Five members of the Interact Club will join the other Young Citizen Award winners to receive their awards on stage at the 91st Rotary conference on Saturday, April 2, in Bournemouth. Interviews with all the award-winning youngsters will be broadcast live on the BBC News Channel.

As well as receiving a trophy at the ceremony the school's Interact Club will also receive £500, which they are donating to Children's Hospice South West. Andrew Lovett, headteacher at Tiverton High School, said: "It's fantastic that the work of our young people has been recognised by this award.

Source: Mid Devon Gazette

 

Bikers make Easter visit to Children's Hospice South West
28 March 2016

Bikers deliver Easter eggsTwo groups of bikers visited Children's Hospice South West's Little Bridge House facility near Fremington yesterday to deliver some Easter cheer.

The Taw and Torridge Bikers brought Easter eggs for the children and their families and so did a group of bikers from Exeter.

Sally Norden from the hospice said: "We really enjoy seeing and hearing the bikers and very much appreciate them thinking of us here at Little Bridge House."

If you've had any surprising Easter visits email joe@northdevonjournal.co.uk.

Source: North Devon Journal

 

Record turn out at Poldhu for annual duck race
28 March 2016

Duck raceThere was a record turnout for this year’s Poldhu Duck Race on Easter Sunday.

Almost 200 people gathered at the section of river that crosses Poldhu Beach to see a multitude of plastic yellow ducks float from the starting point to the finish line.

All 1,000 ducks had been sold for £1 each, the majority in the run up to the event with the remaining few bought on the day. A tombola, hook-a-duck game and cake sale were also held to help boost the fundraising further.

The result was just over £1,400 raised for Children’s Hospice South West, which has a base in St Austell.

The event is organised annually by Poldhu Beach Café owners Ross and Natalie Hocking and gets bigger every year.

Writing on the café’s Facebook page after the event, a delighted Ross and Natalie said: “Thank you to our families, our friends, our customers, donators, contributors – you have all helped us to raise £1,400.60 for Children's Hospice South West. Such a worthy cause and Little Harbour is a valuable thing for us to have in Cornwall.”

Describing it as a “great day,” they added: “Can’t wait for next year.” Café customers and local businesses donated prizes for the tombola, with Trenance Chocolate supplying a giant chocolate egg for each winner of the different races. The couple also received help from their family on the day. The event was lucky with the weather, catching a dry and sunny spell between the showers.

Source: Falmouth Packet

 

Swimathon attracts 600 competitors
25 March 2016

Portishead Rotary swimathon eventHundreds of swimmers gave up their Saturday to help support North Somerset causes as the 20th Portishead swimathon was a huge success once again.

The Rotary Club of Portishead’s fundraising event saw 94 teams take part, and a total of 6,585 lengths swam of the Parish Wharf Leisure Centre pool.

The feat was about 700 lengths more than managed last year.

It also meant collectively the near 600 competitors swam the equivalent distance of Portishead to Swindon and back again. It is not yet known how much money was raised but the rotary club is hopeful of eclipsing last year’s total of £13,000.

Mollie Young, from the club, said: “Saturday was absolutely amazing and we are so grateful to each and every one of you for taking part and we hope you enjoyed it as much as we did.

“Throughout the whole day there was plenty of noise from cheering spectators which always adds to the atmosphere.

“What we know for certain is all this was only possible with your continued participation and we would like to thank you all most sincerely.

“The work that goes into the organisation each year is well rewarded and makes it all worthwhile.”

The money raised will be split between Children’s Hospice South West, rotary projects plus local schools and clubs.

Source: North Somerset Times

 

Gardens in Cornwall support Children’s Hospice South West
22 March 2016

Penjerrick GardensChildren's Hospice South West (CHSW) is celebrating its 25th anniversary with more gardens than before supporting the charity's garden trail in Cornwall.

Featuring some of the most unique gardens in the county, some of which are not normally open to the public, the gardens opening for the day include many in the Falmouth and Helston area.

One of the first gardens to open is Penjerrick Garden at Budock Water, near Falmouth. The 200-year-old garden has 15 acres of spring flowering subtropical woodland, with displays of rhododendrons, camellias, magnolias, azaleas, tree ferns and bamboos.

Opening on Thursday, March 31 from 11.30am to 4.30pm, admission to the garden costs £3 for adults and £1.50 for children over 5, with all proceeds going to CHSW.

Refreshments will be available at Penmorvah Manor Hotel, which is also supporting the charity.

Other gardens opening to support the charity include Mawnan WI Garden Safari, Mawnan Smith, on June 18; Penmorvah Manor Silver Garden Party, Falmouth, on July 3; Homestead Woodland Garden, Wendron, on July 24, and Two Quays House, Gweek, on September 17.

Source: Falmouth Packet

 

CHSW wins peoples vote
21 March 2016

People's ProjectChildren's Hospice South West (CHSW) is delighted to have won £26,400 through the People's Projects competition run by ITV and the Big Lottery which distributes National Lottery funding across good causes in the country.

There were five projects in the ITV Westcountry region which were all looking for votes to win the funding and CHSW along with two other projects was successful. 

The funding that the children’s charity won will pay for their project “Time To Play” bringing more activities to life limited children and their siblings who are supported through CHSW at Little Harbour in St Austell as well as Little Bridge House in Barnstaple. 

The prize money will help the hospice provide activities such as treasure hunts, storytelling, music therapy and days out as well as activities for teenagers and those experiencing bereavement. 

Cath Collier, Trusts and Grants Fundraiser for CHSW said "We are absolutely thrilled to have won this funding and to have the public back our project, it is so important for the children that we look after to have fun and enjoy simply playing and not always have to worry about the medical aspect of their care or the care of their siblings.

Thank you to everyone who voted for Time to Play, it really will make a huge difference."

Through their three hospices in the South West CHSW supports over 400 life limited children and their families, allowing them time at the hospices to rest, enjoy special family time together and make precious memories. 

Source: North Devon Journal, Bude Today, Cornish Guardian

 

‘Marvellous’ time at school’s princess party
20 March 2016

Yatton Infant schoolPupils at Yatton Infant School put on their finest dresses to become princesses for the day, while also raising money for charity.

The school’s ‘princess club’, which was established as part of its learning college programme, hosted a princess tea party to raise money for Children’s Hospice South West.

A school spokesman said: “They made invitations for their parents and baked cakes, made tablecloths and flower decorations.

“The cooking club made delicious sandwiches and fruit salad and the ukulele club provided the entertainment with some fantastic songs. We raised £95.87 and everybody had a marvellous time.”

Source: Weston Mercury

 

Torridge Tuesday ladies support Children’s Hospice
20 March 2016

Torridge TuesdaysThe ladies from the Torridge Tuesday Ladies Club have once again chosen to support Children’s Hospice South West as their charity of the year.

This fun-loving club meets to socialise, learn, craft and fund raise, and recently presented a cheque to the hospice for £459.77 raised from a Christmas Craft Fair.

The group, now in its fourth year, meets on the second Tuesday of every month in central Bideford and welcomes new members.

To learn more, email torridgetuesdays@btinternet.com, or call Ruth on 07977 184897.

The Torridge Tuesday Club ladies present their cheque to Emma Perry of Children's Hospice South West.

Source: North Devon Gazette

 

Bristol City Golf Day raises over £10,000 for CHSW
17 March 2016

Bristol City’s Golf Day in aid of Children’s Hospice South West (CHSW) has raised more than £10,000 for the local charity.

Current players and legends joined supporters and corporate guests at Henbury Golf Club on Wednesday for the event, aimed at boosting funds for CHSW. 

Through money raised from entrance fees, the raffle and auction lots, plus a host of other fundraising opportunities on the day, the tally crept above £10,000, taking the overall figure City has raised for the Hospice in 2015/16 to a whopping £40,000. 

The winners were ‘Cool Hand Luke’, including City pair Luke Freeman and Luke Ayling alongside Graham Hewlett and Matt Jones. The runners-up were Select Slayers, a team that included City goalkeeper and Hospice ambassador Frank Fielding. 

Former City player and manager Russell Osman took the closest to the pin challenge by shooting a hole in one – which he later revealed was his third-ever ace. Other ex-players to take part included Scott Murray, Alex Russell, Tommy Doherty and Danny Coles. 

Lee De Luis proved to be Mr Muscles by taking the longest drive crown, and he also helped boost funds by splashing out £1,000 for a framed combo of signed Pele and Maradona shirts. 

All in all the day was a tremendous success, with plenty of money raised for charity, beautiful weather and mostly good golf! 

Olly Slym, CHSW community fundraiser, said: “It was a fantastic day and has once again raised vital funds for as well as boosting awareness of CHSW. We are very grateful for our partnership with Bristol City FC and to have achieved in excess of £40,000 by this stage of the season is a fantastic achievement by everyone who has played a part.” 

CHSW is currently celebrating 25 years since being founded by Eddie Farwell MBE and his late wife, Jill. There are three hospices in the South West, including Charlton Farm just a short drive from the club’s Failand training ground. 

All three hospices – which cost £8m to run each year - help and support local children and their families who are living with life-limiting or life-threatening conditions, which means that sadly they will not reach adulthood.

Source: Bristol City Football Club

 

Butterflies to mark 25th anniversary of Children's Hospice South West
13 March 2016

CHSW Limited Edition ButterfliesThe perfect symbol of a short and precious life, Children’s Hospice South West has commissioned a commemorative butterfly to celebrate 25 years since it was founded.

The beautiful, handmade butterflies will be displayed in each of its three hospice gardens, and they are now available to buy on the charity’s website.

The limited-edition butterflies have been individually hand-crafted by Devon-based blacksmith Graham Cumes.

Emma Perry, senior community fundraiser at CHSW, said: "For however long a child is with Children’s Hospice South West, that time is filled with opportunities for fun and laughter, and our aim is to create very special memories for the family.

"These beautiful butterflies are the perfect way to celebrate short and precious lives, and after they have been displayed at our hospices, they will make a perfect garden decoration."

The limited-edition butterflies are a vibrant array of yellow, turquoise and light blue with a sparkling silver undercoating.
All purchased butterflies will form special installations at each hospice garden, including Little Bridge House in Devon, in early April and on display until the end of September.

They will then be packed up and posted out to purchasers in a special commemorative box during October 2016.    

Priced at just £15, they will make a beautiful addition to any garden – or even a window box.

To purchase a limited edition butterfly, simply visit www.chsw.org.uk/butterfly.

Source: Bridgwater Mercury

 

Cheddar choir to perform in Wells
12 March 2016

Launceston and Cheddar Male ChoirsA male voice choir is helping to raise money for the Children’s Hospice South West with its latest concert.

The Cheddar Male Choir is teaming up with the Launceston Male Voice Choir for a concert in Wells.

The choirs plan to sing a range of popular songs, both traditional and modern. There will also be some well-known tunes from the musicals.

The Cheddar choir performs around 12 concerts a year to raise money for various good causes.

Its members have collected around £135,000 in the choir’s 19-year history.

The concert will take place at St Cuthbert’s Church in St Cuthbert Street, Wells, on April 9 at 7.30pm.

Tickets, priced £8, are available on the door.

Source: Weston Mercury

 

Chew Valley Trees take centre stage on Gardeners' World tonight
11 March 2016

Charlton FarmBack in spring 2015, when temperatures were much higher than now, BBC Gardeners' World paid Chew Valley Trees a visit. The footage from that lovely sunny day is about to be aired tonight (Friday) at 8:30pm on BBC2.

Joe Swift interviewed Simon Scarth about tree production techniques, different containers and planting methods. He was also eager to hear Chew Valley Trees tips for choosing the right tree for your space and how to make sure it establishes once in the ground.

To demonstrate the best planting method, the company took Joe and his team to put in a tree at Charlton Farm, a nearby children's hospice where our landscaping team has done quite a bit of work in the beautiful grounds.

Here, they took Joe through the process, from getting the right depth in the soil to firming the roots properly in place and attaching the all-important stakes.

Source: Somerset Guardian

 

Friends’ fundraising in aid of ill Freddie
10 March 2016

Fundraising for FreddieA Yatton family, whose son suffers from an extremely rare genetic condition, are ‘flabbergasted’ after their friends launched a fundraising campaign to buy him specialist care equipment.

Freddie De Gennaro suffers from a condition called mucolipidosis type three (ML3), which can affect his bones, joints and other organs, and also has epilepsy, autism and ketotic hypoglycaemia.

The seven-year-old has the same developmental skills as a nine-month-old baby and requires constant care at home from his parents, Justine and Adriano De Gennaro.

He is at constant risk of seizures and accidents because Freddie is still able to move despite his problems. This led Freddie’s godmother Sarah-Jane Upton to try to raise £3,000 to buy him an epilepsy monitor and a travel-safe space, which will allow the family to go on holidays.

Another friend, Fabienne Vailes, organised a fancy-dress disco to raise money for Freddie, which took place at Portbury Village Hall on Friday night and raised £700.

Freddie’s mum Justine, aged 40, said: “Sarah-Jane wanted to raise money so we could have an epilepsy monitor to watch Freddie at night.

“He is in a safe space (at home), which is a room within a room, so he cannot hurt himself.

“Sarah-Jane also wanted to raise money for a travel safe space, which is about £3-4,000, so we can have holidays.”

The De Gennaro family is also hoping to lend the travel-safe space out to other families and the Children’s Hospice South West, in Wraxall, once they have it.

Source: North Somerset Times

 

StarTrek team returns to base with unusual extra member
07 March 2016

Specialist one-to-one nursing careParamedics were called into action at the 24th annual StarTrek after a group returned to base camp with an extra team member – a baby lamb.

The annual fundraising event saw more than 300 walkers gather at Brendon Barton Farm to take on the endurance challenge, which sees teams trek across the moor in the dead of night.

In addition to having to navigate their way using only a torch, map and compass, those taking part were also tasked with solving a number of clues along the way. The winners are judged on their clue solving ability and speed.

Ann Doody, chairman of the StarTrek committee, said: "Everything has come together. When you only use things once a year an come to switch them on, you can get a few problems, but everyone has worked hard to make it happen.
"And we have just been so lucky with StarTrek because each year, no matter what weather has been thrown at us, it all works out."

This year's event saw 55 teams take on the challenge, with Ilfracombe's two Rotary club enlisting the help of more than 90 volunteers to oversee their safety.

Ann added: "It's amazing because a lot of people just enjoy coming out to help. They are not even Rotarians."
Although all the volunteers were kept busy throughout the night, ranging from those manning the catering tent to the marshalls on course, one group of volunteers had an unexpected extra job.

The first aid team from St John's Ambulance were tasked with looking after a small lamb which had been brought in by one team, which had discovered it apparently abandoned on the course.

Beyond this, there were no major hiccups, with teams taking around seven hours to complete the course.

This year the walkers were raising money for Children's Hospice South West, North Devon Hospice and, for the first time, Devon Freewheelers.

Speaking about the importance of taking part in the event, John Cass, leader of the Norfolk Enchants, said: "It's very rewarding when you go to the presentation an see sums of money going to these charities.

"£40,000 to £45,000 a year, that's so much for one event and it does make such a difference."

Brian Huxtable, leader of veteran team Veni Vidi Vici, added: "You always want to come back because of this, the way the event is set up. The way we are looked after. It's so well organised it's fantastic."

Source: North Devon Journal

 

 

 

Star trekkers take to Exmoor
06 March 2016

Startrek 2016Crowds of walkers took to the moor last night (Saturday) for the annual Startrek charity all-night walk.

Base camp was Brendon Barton Farm on Exmoor and 48 teams of walkers from across the region and beyond gathered there as dusk fell to prepare for an eight of 16 mile trekking challenge.

Funds from the event are divided between North Devon Hospice and Children’s Hospice South West, plus a third charity, which this year is Devon Freewheelers blood bike service.

It is organised by both Ilfracombe Rotary and Ilfracombe Compass Rotary clubs, with plenty of volunteers helping out with catering, communications, even search and rescue and first aid if required.

Speaking just before the walkers set off, Ann Doody, Startrek chairman, said: “Everybody is so up for it. When they come here everybody is just so ready to get out there and walk it – it’s such a good atmosphere.

“We have a lot of new teams this year and about five pub teams, plus about a dozen going for the corporate challenge.

“This is the first year we have gone in with Exmoor Ales and they are giving a cask of ale away for the pub team that completes it the quickest and the one that raises the most sponsorship.”

Source: North Devon Gazette

 

Plymouth pub quiz raises £2,500 for children's charity
04 March 2016

Plymouth pub quizA pub quiz raised more than £2,500 for charity. The event, organised by Services Design Solution, took place at the Brass Monkey pub on Wednesday, March 2.

A total of 26 teams from the engineering and construction industry battled it out for the top prizes and the coveted trophy.

Children's Hospice South West collected a total of £2,566.

A spokeswoman for the firm said: "Richard and Shaun and everyone at SDS would like to thank all the teams who came along, we hope you enjoyed the evening as much as we did – and we look forward to welcoming you back next year."

Source: Plymouth Herald

 

Santa's Grotto in Torquay run by Rotary Club raises £8,000 for charity
04 March 2016

Santa's grottoLuke Skywalker and some stormtroopers were just some of the visitors to Santa's Grotto in Torquay last Christmas as more than £8,000 was raised for charity.

The grotto in Fleet Walk was run by the Rotary Club of Babbacombe and St Marychurch and attracted bumper crowds as more than 10,000 visitors passed through the doors. The 2015 grotto was a glittering success with an animated, musical reindeer theme and was constructed by Torbay Display.

Every year the attraction raises funds for Rotary charities and the club was proud to support the Children's Hospice South West once again. A donation of £300 was also given by Pyramid Torbay Photography from print sales at the grotto.

The Rotary Club of Babbacombe and St Marychurch is currently working towards its next big event, which is the annual Babbacombe Fayre on June 15.

Source: Herald Express

 

Butterfly installation for 25th Anniversary celebration
03 March 2016

Buy your limited edition butterfly

Throughout 2016 we are celebrating 25 years since the founding of Children's Hospice South West by Eddie Farwell and his late wife, Jill. We are marking this very special milestone in the charity's journey with many exciting events.

An installation of beautiful, handmade butterflies will be displayed in each of the Children’s Hospice South West (CHSW) gardens during 2016 to celebrate its 25th Anniversary. The installation will be planted in early April to be on display through out the spring and summer months until the end of September. 

The limited-edition butterflies have been individually hand-crafted by Devon-based blacksmith, Graham Cumes, who has been shaping metals for more than twenty three years and is now based at the family-run workshop Cuffy and Sons on the Quay in Exeter.

Graham said: ‘I’m flattered and honoured to be working with CHSW in support of its 25th Anniversary. This is such a great opportunity for me to be able to celebrate the founding of this special charity. It means so much to me to be able to support the amazing work it does – I’ve even made a new oven to create the butterflies! – and I’m so proud to be an integral part of the 25th Anniversary celebrations.’

The beautiful, limited-edition butterflies are a vibrant array of yellow, turquoise and light blue with a sparkling silver undercoating. The butterfly was chosen for these commemorative pieces as it symbolises a short and precious life. As the work of the hospice is to make the most of a child’s life, however short it may prove to be, the butterfly is the perfect symbol to celebrate their lives and the hospice’s work.  

For however long a child is with Children’s Hospice South West, that time is filled with opportunities for fun and laughter and its aim is to create very special memories for the family.

Through respite stays parents can become ‘mum’ and ‘dad’ again, not carers, and the hospice team ensure that the family can spend quality time together without having to worry about medicines, feeding tubes and respirators - which are sadly the daily life for many.

Available now to purchase through the CHSW website, the butterfly installation will be visible throughout April to September 2016 for all visitors to enjoy. They will then be packed up and posted out to purchasers in a special, commemorative box during October 2016.

The width of the butterfly is approximately twelve centimetres and the steel stem measures fifty centimetres in length, they will make a beautiful addition to any garden – or even a window box! If you would like to purchase a limited edition butterfly, all the details can be found at www.chsw.org.uk/butterfly.

Sensory gardens 

As gardens are now springing into bloom, the gardens at Children’s Hospice South West come into their own. Being outside is a great sensory experience for a child and that’s why gardens are such an important element at each of its hospices.

The magical sensory gardenIn addition to play areas, the hospices also have specially designed sensory gardens. For children that may lack some senses, a sensory garden gives heightened awareness of sight, smell and sound and can help to stimulate reactions for children.

At Little Bridge House the children are treated to the ‘Narnia’ sensory garden. Based on the C.S Lewis book ‘The Lion the Witch and the Wardrobe’, ‘Narnia’ is full of features to stimulate the senses; sight, sound, smell and touch, and is a magical place that all the children and parents visiting our hospice can enjoy. It is designed to interact on many levels and even includes a roaring Aslan, crystal icicles and a wardrobe door.

In 2015 Little Harbour saw a new addition to its garden emerge; Mermaids Cove sensory garden.

The garden takes our children and families through an interactive sensory journey of stormy seas to calm waters. Mermaids Cove has a sandpit, water sprays, piped sounds of the sea, and a mermaid’s house for storytelling and is laid out in a way that the sensory moments are accessible to all.

Being able to enjoy time in a garden is such a simple pleasure which through these gardens, we can bring to our families when they most need some relaxation and enjoyment.

Open days 

Each month the hospices open their doors to give supporters an insight into children’s hospice life and to thank donors and volunteers for all their ongoing support.

There are no family stays during these days, so you won’t hear the noise and laughter that usually abounds, but you will leave with a huge sense of enthusiasm for your local charity and a proud smile on your face.  It will also be the perfect opportunity to see the butterfly installation throughout the spring and summer months and to visit our beautiful sensory gardens. Find dates for open days here.

Find out about our 25th Anniversary


Source: Children's Hospice South West

 

Festive reindeer creations help children’s hospice
02 March 2016

Little Harbour, Children’s Hospice South West’s hospice in St Austell has again heard those sleigh bells ringing as they received a donation from the Cholwill family from Bridgerule.

The money donated to the Little Harbour comes from sales of wooden reindeer crafted by Colin Cholwill. This is the third year the Cholwill family have sold their home-made reindeer and this year, during the lead up to Christmas 2015, they raised £4,000 – bringing their overall total up to £7,000.

The whole family get involved each year, with the grandchildren helping to paint the red noses, Paul, Sheila’s son, and his wife Stacey, help with putting them together and arrange many of the orders.

Sheila completes each reindeer with the finding and fitting of the antlers. Colin and Sheila’s first son was born severely disabled and they have always been keen supporters of the children’s charity.

Sheila said: “Sadly Mark passed away some years ago and upon retirement from Bude Infant School, I was keen to do some voluntary work.

“Little Harbour in St Austell was where I felt I wanted to go to each week and this has now become the family’s favourite charity.

“Specific items are always purchased which Little Harbour has on their wish list. The latest purchase being a suite of furniture for the main family entrance.

“The family are very grateful to everyone who has supported their fundraising efforts over the years and that orders are already coming in for Christmas 2016."

Source: Holsworthy Post

 

Stein’s raise £17,500 for Children’s Hospice South West
02 March 2016

Rick Stein and Jill Stein’s The Seafood Restaurant in Padstow has raised £17,500 for local charity Children’s Hospice South West

The restaurant hosted charity lunches between Tuesday 12th January and Friday 12th February offering diners a special priced lunch menu of £19 for three courses and asked guests to donate £2.50 straight to the charity. 

Guests enjoyed some of Rick’s favourite seafood dishes with classic flavours and the freshest fish.

Dishes included Japanese fish cakes with salmon & herring, Chettinad masala fish curry and Seville orange tart with lemon yogurt sorbet.  

Jill Stein, commented: “This is the first year that we have supported Children’s Hospice South West and we are very pleased to have raised £17,500 for such a great and well deserving charity.” 

Since 2001, The Seafood Restaurant charity lunches have raised over £110,000 for local disadvantaged children charities.

Celebrating their 25th anniversary this year, Children’s Hospice South West will receive the total money raised, beating last year’s total of £13,500 donated to Save the Children. 

Emma Lloyd-Cowell, head of fundraising at Children’s Hospice South West commented: “We are so overwhelmed by the generosity that people have shown towards Children's Hospice South West and we thank Jill and Rick Stein and all the staff at The Seafood Restaurant for their incredible support with their delicious charity lunches.

Such a staggering amount will help us make a massive difference to local families with life limited children who face a very fragile and heartbreaking future.

We care for the poorly child, support mum and dad and help the well brothers and sisters spend precious time together without the worries of caring. Thank you to everyone involved for helping us make the most of short and precious lives.”

Source: Rick Stein

 

Seniors’ Section make contribution to Children’s Hospice South West
01 March 2016

Launceston golf club seniorsLaunceston Golf Club Seniors’ recently donated a cheque to Children’s Hospice South West thanks to the generosity of the golfers.

Derek Ratcliffe, the 2015 Seniors’ Captain, was very pleased to present the cheque for £770 to Katriona Rich from the charity.

The charity builds precious memories for families whose children are living with life-limiting or life-threatening conditions.

The Golf Club expressed thanks to all of those who contributed as the monies will be well used to support the children and their families.

Source: Launceston Today

 

Exeter to Paris in four days!
01 March 2016

Team Carling - Exeter to Paris in 4 days!A team from Carling Technologies in Exeter is training hard for their charity cycle ride from Exeter to Paris – all in support of Children’s Hospice South West.

The ride will take place from the 27 – 30 May and the team has set themselves a target of raising £50,000 for the hospice which cares for children, and their families, who are not expected to live until adulthood.

Naomi Dymond, corporate fundraiser at the Little Bridge House hospice in Devon, was on hand to dole out cups of tea to the riders and said: ‘We are so delighted to have the support of Carling Technologies and it was great to be able to meet so many of the team before they set off on their training cycle back to Exeter.’

‘It costs over £3million to fund our services for children and families in Devon and we rely almost entirely on voluntary donations, so this amazing fundraising ride will really make a difference to making the most of short and precious lives.’

Visit Team Carling's online fundraising page

Source:  Exeter Daily

 

Torrington woman celebrates 60th birthday in style - by shaving her head
29 February 2016

Sponsored headshaveA Torrington woman decided to do something rather unique to celebrate turning 60 – shaving her head for charity.

Brave Ruth Hallam from Torrington shaved her head to raise funds for Children's Hospice South West.

With family connections with the hospice, Ruth said: "I am a 60-year-old grandmother to 13 grandchildren, I wanted to do something to say thank you to the Children's Hospice South West and to help support children of the future."

Ruth's head was shaved at the Obsessions hair dressers in Torrington and she is hoping to raise over £600 for the charity.

Source: North Devon Journal

 

Padstow Lions help buy life-saving equipment for doctors' surgery
29 February 2016

Padstow Lions ClubThe Padstow Lions Club has raised nearly £500 to help buy a paediatric oximeter for the local doctors' surgery.

This small, but high-tech piece of equipment, can quickly analyse oxygen levels in babies and young children's blood, offering a source of diagnosis to detect a number of serious problems.

The cheque presentation followed a busy period for the Lions, who spent Christmas organising a collection of gifts for the teenage visitors to the local Little Harbour Hospice.

The Lions are now in the process of collecting Easter eggs and gifts for the same hospice, both collections achieved with the help of Tesco Stores in Padstow.

Source: Cornish Guardian

 

CHSW to feature in ITV TV competition to win thousands of pounds towards precious lives project
29 February 2016

People's ProjectChildren's Hospice South West has been shortlisted in ITV West Country West to take part in a TV competition where the winner will receive grants of up to £50,000.

The Big Lottery Fund, ITV and The National Lottery have teamed up to give the UK public the chance to decide how £3 million of Big Lottery funding will make a difference in their local area.

Five projects have been shortlisted and ITV West Country West regional evening news will feature the projects at 6pm over five nights starting tonight.

The final project to be shown on Friday, will be the Time To Play: Raising smiles for precious lives project by Children's Hospice South West in Barnstaple, North Devon.

If successful they will receive £26,400 to put play at the heart of their hospices supporting life-limited children and their siblings.

Activities will include treasure hunts, storytelling, music therapy and days out. There will also be activities for teenagers and those experiencing bereavement.

These will be tailored to the child's needs or involve other children to encourage conversation and friendship giving them experiences that others take for granted and support to siblings that often have to act as young carers.

ITV's Good Morning Britain presenter Susanna Reid said: "The People's Projects is an exciting opportunity for you to make a difference to your community. All you have to do to get involved is vote.

"We are showcasing shortlisted projects across ITV West Country West so you'll see who is competing for the funding in your area. So tune in and get voting."

Dawn Austwick Big Lottery Fund chief executive said: "Each year we make 13,000 awards to groups and projects that make lives and communities better. The People's Projects put you in charge of where money will be spent where you live, so make sure that you get online to pick your winning project."

Voting closes at midday on Sunday, March 13. People can only vote once per region and will need an email address to vote*.

To vote go to www.thepeoplesprojects.org.uk.

Source: North Devon Journal

 

CHSW Needs Your Vote!
29 February 2016

People's ProjectChildren’s Hospice South West (CHSW) is in need of your vote this week as the charity has been shortlisted to win a pot of funding to pay for its project: ‘Time to Play’.  

The People’s Projects gives the public the chance to have a say in how Lottery funding is spent in their community through an online vote. CHSW is hoping to get support for its ‘Time to Play’ project, which is to support play activities at Little Bridge House hospice in Devon and Little Harbour in Cornwall.

When your lives are overtaken with administering medication, feeding, appointments and sleepless nights, there can be little time left over to play. ‘Time to Play’ gives families staying with CHSW the opportunity to simply have fun and play together.

At CHSW creating precious memories for families is a priority for the charity and Sally Norden, from the charity’s sibling team said “Life-limited children need so much care and can be in so much pain that any chance to smile and laugh or to be immersed in play can create a treasured memory for that child and their parents. 

Whether in the hospice’s ball pool, hydrotherapy pool, garden or with arts and crafts, play is such an important part of a family’s stay at CHSW and this funding will make such a difference to the activities we can offer, not only for life-limited children but also siblings, teenagers and bereaved siblings.’ 

CHSW is up against four other charities to win funding for the ‘Time to Play’ project and really needs the support of the local community.  

Details of the project will be broadcast on ITV Westcountry News on Friday 4th March at 6pm, and you can vote online until midday on Sunday 13th March.


Source: Tavistock Times, Exeter Daily

 

Gear up for Rotary Club of Taunton 50/50 charity cycle ride/walk
28 February 2016

50/50 Charity cycle ride/walkIt’s time to gear up and don your cycle helmet or walking boots for the annual Rotary Club of Taunton 50/50 charity cycle ride/walk.

Over the past 20 years, the event has raised more than £180,000 for charities in Somerset and further afield.

This year’s event will be helping to raise money for the Children’s Hospice South West (CHSW) and a charity of your choice. It will be taking place on Sunday, May 15 , and this year you can take part on a 10 or 24-mile scenic family friendly cycle route.

Spokesman for the event, Bob Greenwood, said there would be something for everyone.

“The 50/50 principle allows riders and walkers to donate 50 per cent of their sponsorship monies to a charity of their own choice, but the main Rotary 50 per cent beneficiary this year will be CHSW, who celebrate their Silver Jubilee in 2016,” he said.

He added: “For the non-cyclists, there is a gentle four-mile walk suitable for families and dogs , and in conjunction with Richard Huish College , a 43-mile Sporti v Time Trial for the serious cyclists .

“All start and finish, at the Genesis Centre at Somerset College.”

Fo r more information about the event, contact Jacky Ford on 01823-277057, email:- ford-jacky@sky.com, or Bob Greenwood on 01823 270609, email: rhgandjjg16@btinternet.com. You can also download information at www.tauntonrotary.com.

Source: County Gazette

 

Little Harbour welcomes new mate
26 February 2016

ADi Access donate RoomMate to Little HarbourChildren’s Hospice South West’s (CHSW) Little Harbour children’s hospice in St Austell has recently been donated a RoomMate by local company ADi Access, based in Truro.

RoomMate is an audio description unit which will be placed in a disabled access toilet at Little Harbour allowing for easier usage by those who are visually impaired or blind. On entry to the toilet the unit will describe the location of the various items in the room giving those who have limited sight more independence.

Little Harbour supports children with life limiting illnesses and their families through short stays, respite, palliative and end of life care as well as bereavement support. The RoomMate will be able to be used by any of the children that visit the hospice as well as family members or visitors.

Tamsin Lewis, Head of Care at Little Harbour said “We are really grateful to have had the RoomMate donated to Little Harbour. It is an amazing piece of equipment which we are proud to be able to say we have at the hospice and we thank ADi Access for wanting to support us in this way.”

Managing Director of ADi Access Helen Kemp said "I have worked with severely sight impaired children who have life limiting conditions, when in my role as a Mobility and Orientation specialist.  It gives us great pleasure to donate a RoomMate to provide enhanced independence opportunity to such youngsters at Little Harbour.”

Donations of the RoomMate to locations across Cornwall was a dream of ADi Access which would not have been made possible without the support of many people donating to their Crowdfunding campaign.

RoomMate’s are also installed in other places around the county including Duchy Hospital, the National Maritime Museum (Cornwall) and the Eden Project.

Source:  Children's Hospice South West

 

Port Isaac duo complete their marathon row across the Atlantic to help Children's Hospice South West
24 February 2016

Trans-Atlantic rowersPort Isaac's trans-Atlantic rowers, Neil Blackeby and Hamish Stewart, have completed their marathon voyage across the ocean.

They completed their crossing in 65 days and 15 hours, as part of the Talisker Atlantic Challenge.

The pair, both members of the Port Isaac Gig Rowing Club, have been raising cash for the Children's Hospice South West.

They completed 3,000-mile journey in their wooden boat, Deja Blue.

Source: Cornish Guardian

 

Nissan Navara lifted up on crane at Barnstaple Rugby Club
23 February 2016

A total of £600 was raised for Children's Hospice South West at a car launch in Barnstaple on Saturday.

The new Nissan Nivara NP300 was lifted into the air at Barnstaple Rugby Club by crane hire company KAS Cranes.

Before the start of the match and during the half time break the vehicle was raised up in a specially made cradle, and some of the colts tried to land a ball in the truck bed. Any successful shots resulted in a donation to the hospice.

Adam May, senior dealership manager for Barnstaple Nissan, said: "The whole day went really well. It was really exciting to launch a new product in a different way – we like to do things slightly different at Barnstaple Nissan and we are proud to have such strong links with the rugby club and local businesses like KAS. I would like to thank them both for all the help and support they have given us with today's event, we look forward to working with them again in the future.

"We are also so pleased to have found a novel way to raise some money for the local children's hospice, Barnstaple Nissan has some other events planned within the community over the coming months in an effort to raise more funds for such a worthy cause."

The colts landed three balls in the truck bed during the half time period and Barnstaple Nissan had offered £100 for each successful kick, bringing the total to £300.

This was then doubled by Barnstaple Nissan.

Source: North Devon Journal

 

Cycle challenge for Children’s Hospice South West
20 February 2016

Colyton Grammar SchoolSeven Colyton Grammar School sixth formers are planning to cycle from Lyme Regis to Land’s End for Children’s Hospice South West.

Tristan Allen, Joe Watton, Jonty Eaton-Hart, Andrew Taylor, Rebecca Hart, Matthew von Lany and Charlie Spicer will be setting off on Monday, April 4, and plan to arrive at their destination on Wednesday, April 6, having covered 260km and climbed more than 4,000m, nearly half the height of Mount Everest.

Tristan, of Oak Close, Ottery St Mary, explained why they were taking on their cycling challenge.

He said: “We have chosen to cycle from Lyme Regis to Land End for the Children’s Hospice South West because of the amazing impact that they have on the lives of the less fortunate children.

“We feel that palliative care is possibly one of the most difficult types of care to administer because each family case is very different from another.

“However, it is possibly one of the most important types of care since it has a massive impact on the quality of life of the child during their final few weeks, yet also an enormous long-term impact on the family of the child.”

“We hope to be able to help Children’s Hospice South West continue their amazing work in our community.”

The team is being backed by Lovells Garage, in Ottery St Mary, which is supplying a support van.

If you want to sponsor the team, you can do so by visiting www.justgiving.com/lymeregistolandsend or by texting LTLE55 £5 (or £1,2,3,4 or 10) to 70070.

Please watch their video, which will tell you a bit about the charity, and then some footage of them preparing for the challenge by clicking on the link.

Source: Mid Week Herald

 

Plymouth man hopes to become first civilian amputee to swim English Channel
19 February 2016

A man who lost his leg after falling nine floors from a multi-storey car park hopes to become the first civilian amputee to swim the English Channel.

John Cann, 42, hopes to swim from Dover to Calais in September while raising money for charity as a way of "giving back to the community".

Four ex-servicemen became the first amputees to complete the gruelling swim in 2014 – but Mr Cann hopes to be the first civilian.

Mr Cann – a qualified scuba diver – says he is fairly confident about the swim and plans to make sure he is physically up to the challenge by September.

He said: "I'm a good, strong swimmer and the Plympton swimming pool and Life Centre have donated the use of their pools for free.

"The guy who runs Tinside Lido is also letting me store my gear in there so I can swim out to the sea."

He will be raising money for the Limbless Association, Jeremiah's Journey, Child and Adolescent Mental Health Services (CAMHS) and the Children's Hospice South West's Little Bridge House.

Mr Cann will need a thinner wet suit and a heart rate monitor watch for the challenge and hopes someone will donate it to him. If anyone can help, please contact John Cann at john.cann74@gmail.com.

Source: Plymouth Herald

 

School ensemble record and mix own album to fundraise for charity
18 February 2016

King Edward's SchoolA music ensemble at King Edward’s School in Bath, KES Soul, has announced the launch of their own album inconsoulable, mixed and recorded in the Sony Recording Studios at the Royal Welsh College of Music & Drama.

Featuring the vocal and music talents of KES Soul and produced and directed by King Edward’s resident composer, Mark Boden, the new album features 12 tracks in total, including cover versions of Adele’s Skyfall and Mark Ronson’s Valerie, as well as instrumental versions of Stevie Wonder’s Superstition and popular tunes I Wan’na Be Like You and Lady Marmalade.

Proceeds from sales of inconsoulable are going to school charities, the Children’s Hospice South West and Moving Mountains Trust, the latter working with the School to develop its partnership with Wagwer School in Kenya. 

The tracks featured on the album were chosen by KES Soul as songs they enjoyed listening to and performing.
The group, many of whom have been playing together for the last three years, travelled to Cardiff to record inconsoulable during a six hour studio session at the Royal Welsh College of Music & Drama.
 
The resulting album has a live and natural sound, which showcases the talent of the ensemble as a whole, as well as their skills individually. 

A number of KES Soul’s members are studying music for GCSE and their work on the album will go towards the performance module of the course. 

Source: Bath Echo

 

25 years of care for life-limited children and their families
17 February 2016

BrothersOver 25 years, Children’s Hospice South West (CHSW) has offered help and support to thousands of life-limited children and their families across the region.

In addition to emergency and end of life care, many families use Children’s Hospice South West for much needed respite care.

Little Harbour in St Austell directly supports children and families from Cornwall and Plymouth. “Without the hospice, I simply don’t know how I would have coped,” is a comment often heard by families.

Mandy Robbins, Director of Care at CHSW said: “There is still a huge message to relay about the reality of CHSW. We have so many families that are fearful or worried about what staying in a hospice signifies, but the minute that they step through the door and the warmth of welcome that greets them, they all say they wish they had come sooner.”

On average a child staying with us will have 12 medicine administrations per day, but spare a thought for the families when they are at home, and how disruptive this can be to everyday life. There is no chance of sitting and relaxing, because you are always mindful of when the next medicine is due.

No wonder parents say that they love their visits to the hospice, as that is when they can stop being a ‘nurse’ and become a ‘mum’ or a ‘dad’ again.’

It costs eight million pounds each year to fund the services at CHSW’s three hospices - Little Bridge House in Devon, Little Habour in Cornwall and Charlton Farm in Somerset, and the charity relies almost entirely on voluntary funding. In addition to the nursing and care support, the hospices offer holistic therapy with special sensory rooms, arts and crafts rooms, soft play facilities, and hydrotherapy pools. There’s also a dedicated sibling support service, so that the whole family is looked after.

If you would like to know more about the work of the CHSW, each hospice offers monthly open days. These days are extremely popular and tours have to be pre-booked. For more information see www.chsw.org.uk/opendays.

Read stories and experiences from families who have received care from CHSW on the website: www.chsw.org.uk/familystories.


Find out more about our 25th Anniversary

Source: The Cornwall Advertisers

 

St Mary's choir supports Children's Hospice South West to the tune of £200
15 February 2016

St Mary's ChoirThe choir of St Mary's School in Falmouth has donated £200 to Children's Hospice South West thanks to a very successful Christmas concert.

The choir raised the cash during a concert at St Mary's Church, where they were joined by Bath Spa University Chamber Choir.

Year six pupils at the school had decided they wanted to raise money for the charity's Little Harbour hospice, which provides care for some pupils at the school, after visiting the centre back when they were in year two.

Mary Murfin, community fundraiser for Children's Hospice South West, was at the school to receive the cheque from the children.

She said: "It's wonderful when children are inspired to help other children in ways such as this.

"And we are grateful to them and the whole community for their support."

Source: Falmouth Packet

 

Volunteers needed: New Children's Hospice South West centre to open in Tiverton
15 February 2016

Shop volunteerCan you offer a few volunteer hours for Children’s Hospice South West who will be opening new offices in Tiverton?

The charity is opening a new retail distribution centre at the Tiverton Business Park and is looking for volunteers to help support its new work.

Helen Fildes, head of retail, said: “We are so excited to be opening our new Tiverton offices.

“This resource will really help to streamline our retail activity and is a much more central location for us. We’re really hoping to involve the local community and look forward to welcoming lots of new volunteers to help support us.”

The premises in Chinon Court will provide a much needed resource to the charity which currently has 26 charity shops in the South West region and a growing eBay shop. This new space, which will open in April, will enable extra room and resources for volunteers, as well as additional office facilities for the whole charity and is a more central location to manage distribution.

The charity will be hosting open days for anyone interested in volunteering on Tuesday, February 16 and Wednesday, February 17 at the CHSW shop at Bampton Street, Tiverton.

With lots of options available from helping with the CHSW eBay shop, to general administration and retail help, these open days will give those who may be considering volunteering a chance to see what it entails.

Volunteering is a great way to give something back to the community and if you would like to help support the charity by offering some of your time, simply pop into the Tiverton shop or call Stephanie Robey on 01271 325 270, volunteer@chsw.org.uk.

Children’s Hospice South West offers help and support to children that are not expected to live until adulthood. The charity has three hospices, including Little Bridge House in North Devon, and it provides a home from home caring environment for the whole family, including a team dedicated to looking after well brothers and sisters.

2016 also marks 25 years since the charity was first founded by Eddie Farwell and his late wife Jill, following their own experiences of caring for life-limited children.

For more information as to how you can support CHSW in its 25th year see www.chsw.org.uk/25.

Source: This Is The Westcountry

 

Harbour to Harbour for Little Harbour
15 February 2016

Portreath SchoolThe children of Portreath School challenge you to walk to their school and raise funds for Children’s Hospice South West.

Registration is open for a sponsored walk celebrating the 25th anniversary of Children's Hospice South West (CHSW).

Members of the charity's Truro friends group have organised the 'Harbour to harbour for Little Harbour' walk on Sunday, April 17.

CHSW now has three hospices in the South West, including Little Harbour in St Austell, which was opened in 2011.

Roger Clarke, Chairman of CHSW’s Truro friends group, said: "I have been helping in small ways over the years but wanted to do something bigger to celebrate the charity’s anniversary. I also love walking and industrial archaeology so this walk with these routes seemed like the perfect fundraiser to organise."

The sponsored walk has three different routes available, with various distances making it something everyone can get involved in. You can either walk 12 miles from Devoran to Portreath, 9 miles from Bissoe to Portreath or 5 miles from Scorrier to Portreath.      

More information regarding registration can be obtained by emailing Roger at rogclarke1@btinternet.com or calling 01872 273651.

Marshals and first aiders are also required for the walk and anyone interested in helping out is asked to contact Roger.

Source: Falmouth Packet

 

Valentine’s Day dip at Combe Martin
14 February 2016

Valentine's Day DipFundraisers ‘enjoy’ a bracing dip to raise money for Children’s Hospice South West.

Brave souls took to the chilly waters of the Bristol Channel this morning (Sunday) for a Valentine’s Day dip at Combe Martin.

Several hardy swimmers – including Batman – risked a dip in the cold sea to raise money for Children’s Hospice South West.

Afterwards they were able to enjoy hot drinks at the Dolphin Inn courtesy of landlord Lee Lethaby.

Source: North Devon Gazette

 

 

 

Variety show at Exeter's Barnfield Theatre raises money for Children's Hospice South West
13 February 2016

Tank ShermanTop variety performers will be taking to the stage at Exeter’s Barnfield Theatre this month for a special charity show.

Compere and comedian Tank Sherman will be introducing the special one-night only event to raise funds for the Children’s Hospice South West.

It all takes place on February 27, from 7.30pm, and the acts performing include Celine Dion Tribute Gerri, Paul Cobley, a renowned male vocalist and singer Sarah Yeo.

Tank, from Exeter, is one of the most well known and respected comics in the West Country.

After leaving school he got a job selling Ball Bearings in a city factory and whilst on holiday in Weymouth entered a talent contest – which he won. From there he had the bug and knew that making people smile and laugh was his chosen career.

Over the years he has worked alongside Jethro, both live, on TV and on five DVD’s, headlined shows at The Babbacombe Theatre and done Panto with Jimmy Osmond.

Ticket details for The Big Children’s Hospice South West variety Show, which helps celebrate the charity’s 25th Anniversary year, on 01392 271808.

Source: Exeter Express and Echo

 

Hayle’s Rosewarne Manor to host charity event for cancer charities
12 February 2016

Rosewarne ManorA hotel in Hayle will be hosting their second big charity event, which will raise money for cancer charities.

Rosewarne Manor, which is in Connor Downs, will be hosting their second "Epic Event" after their first event in 2013 raised more than £20,000 for charity.

The event will feature eight head chefs from across Cornwall, who will be joining forces to present a one night restaurant in a marquee serving 110 people an eight course menu with each course prepared by a different head chef.

The first "Epic Event" in 2013 raised £23,500 and this year the staff at the hotel will be aiming to raise another £20,000 for Hospitality action, Macmillan Cancer Support and Children's Hospice South West.

The event will be taking place at the Rosewarne Manor on July 3.

For more information contact enquiries@rosewarnemanor.co.uk.

Source: Cornishman

 

Penwith's hair and beauty students strut their stuff
10 February 2016

Penwith CollegeCharity gala at Sound nightclub proves a showcase for the talents and originality of Penwith College students.

A showcase for the skills of Penwith College's hairdressing and beauty students proved to be a fantastically varied event.

At a gala event at Sound nightclub in Penzance, the models strutted down the catwalk, working the audience and wowing them with the originality and variety of work on show with Level 2 looks based on a "retro theme" which included Bridget Bardot, Land Girls and Madonna with Level 3 enjoying their Avant Garde theme – the more flamboyant the better.

The judges said: "The imagination and creativity that has gone into these looks is quite fantastic.
"The quality of their work and attention to detail has been superb."

Prizes were awarded by Jo Lello-Dunn, team leader at Penwith who said: "We are so very proud of the hard work, effort and dedication our students have displayed for this event. The standard of work demonstrated has been phenomenal."

The College thanks everyone who made this event such a success especially the team at Sound nightclub and Chris Nicholls of Chris Nicholls Motors for compering the gala which raised funds for Children's Hospice South West.

All of the winning students will be taken forward to the Cornish Skills competition in March and the winners will be a part of the UK Worldskills College team later in the year.

Source: Cornishman

 

Clevedon Lions to host classic car rally
08 February 2016

Our Hospice - Charlton Farm

An annual 25-mile classic car rally raising money for Children’s Hospice South West (CHSW) will take place on April 24.

This year’s event, which will be the first to be organised by Clevedon Lions Club, will start at Cadbury Garden Centre in Congresbury before about 120 cars embark on the journey to Clevedon’s Salthouse Fields.

Last year’s rally raised more than £11,000 for the hospice, with more than £50,000 raised during the events previous eight years when it was organised by Brian and Mary Curtis from Street in Somerset.

A spokesman for the hospice said: “This year the event will support CHSW through ticket sales and other local charities chosen by the Lions.

“We are delighted to still be supported through this event and as we rely almost entirely on voluntary income, events like this are crucial to ensuring we can continue to support and care for families across the South West. We are very grateful to the Lions club of Clevedon for their support, especially in our 25th anniversary year.”

All money raised from the rally will support the hospice’s work caring for life-limited children and their families.

Source: North Somerset Times

 

Take a dip this Valentine's Day for Children's Hospice South West
04 February 2016

Valentines DipIf roses and chocolate are not your style, Children's Hospice South West has a new way for residents in North Devon to mark Valentine's Day.

As part of its 25th anniversary celebrations, the charity is inviting fundraisers to Combe Martin beach for a chilly sea swim.

The dip, which takes place at 10am on February 14, will help raise money for the charity, with anyone taking part asked to make a small donation.

Jayne Jarrett, events fundraiser at the Little Bridge House hospice in Fremington, said: "It may be a crazy idea, but it's certainly a different way to celebrate Valentine's Day.

"We'd love to see fancy dress and all ages are welcome, with parental consent. All we ask is a donation to dip."

Registration for the event starts at 9am on Combe Martin beach with the dip taking place at 10am.

Hot drinks will be available from The Dolphin Inn and there will also be a raffle.

For more information, contact Zoe Miles on 01271 325270 or email zoe.miles@chsw.org.uk.

Source: North Devon Journal

 

Auction to mark 25 years of Yelverton and District Friends' Group of Children's Hospice South West
04 February 2016

The Yelverton and District Friends’ Group of the Children’s Hospice South West (CHSW) is hosting an auction of pledges on Saturday, February 20 to mark 25 years of the charity.

Walkhampton Village Hall will host the pledge auction at 6.45pm. Ward and Chowen is supporting the charity by conducting the auction themselves.

There are well over 110 lots in the auction ranging from six eggs to rugby or theatre tickets.

For a quarter of a century CHSW has offered help and support to thousands of life-limited children and their families across the region. In addition to emergency and end of life care, many families use CHSW for much needed respite care.

‘Without the hospice, I simply don’t know how I would have coped’ is a comment often made by families.

Mandy Robbins, director of care at CHSW said: ‘There is still a huge message to put out there about what is the reality of CHSW. We have so many families that are fearful or worried about what staying in a hospice signifies, but the minute that they step through the door and the warmth of welcome that greets them, they all say ‘I wish I had come sooner’.‘

On average a child staying with us will have 12 medicine administrations per day. But spare a thought for the families when they are at home and how disruptive this can be to everyday life.

‘There is no chance of sitting and relaxing because you are always mindful of when the next medicine is due. No wonder parents say that they love their visits to the hospice as that is when they can stop being a ‘nurse’ and become a ‘mum’ or a ‘dad’ again.’

It costs £8-million each year to fund the services at CHSW’s three hospices in Devon, Cornwall and Somerset, and the charity relies almost entirely on voluntary funding.

In addition to the nursing and care support, the hospices offer holistic therapy with special sensory rooms, arts and crafts rooms, soft play facilities, and hydrotherapy pools. There’s also a dedicated sibling support service, so the whole family is looked after.

If you would like to know more about the work of the hospice, each hospice offers monthly open days. These days are extremely popular and tours have to be pre-booked. For more information see www.chsw.org.uk/opendays

Source: Princetown Today

 

Firefighters raise £1,100 for Children’s Hospice South West
03 February 2016

Portishead firefightersEight crew members took on the six-hour challenge at Sainsbury’s in Portishead, raising £1,171.60 in the 
process.

Firefighter Daren Beacham said: “We recently carried out a community visit to the Children’s Hospice South West at Charlton Farm, Wraxall.

“We got to meet some of 
the staff, children and families who use the facilities and decided we would like to try and help them with some fundraising.

“In our firefighting role we have to keep fit and many of us enjoy taking part in sponsored challenges, so we thought we would adopt the charity and take part in as many events as we can over 12 months.”

Sunday’s effort was just the start of the fundraising however.

The Three Peaks Challenge, the Portishead Triathlon, the Portishead 10K and the Bath Half Marathon lay in wait over the coming weeks and months.

However the attention of Daren, Oliver Hatfield, Philip Tripp-Edwards, Neil John, Craig Williams, Abel Woodley, Matthew Higgins and Matthew Hiscocks is now focused 
on the Two Bays Tough 10 in Weston which is on February 
21.

Pauline Rayner, from Sainsbury’s, said: “We wish the firefighters good luck with their fundraising challenges. The children’s hospice is such a deserving cause.”

To sponsor the team, visit their Virgin Money Giving page.

Source: North Somerset Times

 

Rose and Crown landlords raise more than £500 for children's charity
30 January 2016

Rose and Crown landlordsThe new landlords of the Rose and Crown pub, Calverleigh, donated more than £500 to a South West children’s charity after holding a fundraising night.

Kath and Stuart Leigh presented a cheque for £545 to Children’s Hospice South West (CHSW) on January 21.

The charity night took place on December 19, 2015, and included a Christmas raffle organised by the couple. They also donated £2 from each two-course meal ordered at the pub that night.

The Exe Valley Friends of CHSW provided entertainment at the fundraiser, performing a variety of carols and Christmas songs.

CHSW community fundraiser for Little Bridge House, Barnstaple, Paula Garrett said: “It really was a super evening thanks to Kath and Stuart’s hospitality and generosity.

“It’s all about putting the fun in fundraising, that’s what CHSW is all about - making the most of short and precious lives.

Source: Mid Devon Gazette

 

Firefighters to launch fundraising campaign for children’s hospice
29 January 2016

Portishead firefightersA team of firefighters from Portishead will carry out a series of challenges to raise money for Children’s Hospice South West.

Daren Beacham, Oliver Hatfield, Philip Tripp-Edwards, Neil John, Craig Williams, Abel Woodley, Matthew Higgins and Matthew Hiscocks want to raise £5,000.

Their efforts will get under way on Sunday when they will run with breathing apparatus on for six hours, starting at 10am at Sainsbury’s.

The Three Peaks Challenge, Portishead 10k and triathlon and the Bath Half-Marathon will also be tackled during the fundraising campaign.

Source: North Somerset Times, Avon Fire and Rescue

 

Journal letters: Children's Hospice South West group amazed by generosity
28 January 2016

Little Bridge House Open Days'On behalf of the Taw and Torridge Friends Group to Children's Hospice South West I would like to take this opportunity to say a huge thank you to the people of Barnstaple, Bideford and surrounding areas who loyally supported us throughout 2015.

Your donations – whether from adding money to the buckets at your local supermarket, trying your luck at a tombola, buying a burger at one of our barbecues, adding your loose change to the collecting tin at your local shop or choosing to buy your Christmas cards or handmade craft items from us at a local craft fair – make a difference.

We are always humbled by the generosity of the people of our local communities and in particular I would like to single out the bucket collection made at Tesco Store, Rose Lane on December 18 and 19.

Our aim for this collection was to raise sufficient funds to help with the purchase of specialised equipment needed at Little Bridge House.

Your donations over the two days raised the staggering amount of £1,717.92 which exceeded all our expectations and enabled us to achieve this aim.

Our heartfelt thanks to the customers and staff at Tesco who made this possible.

With your continued support and generosity we hope 2016 will be as successful, with all donations going directly to Little Bridge House at Fremington, enabling them to continue their valuable work supporting families with life limited children.

If you would like to join our voluntary fundraising group please contact Little Bridge House, Fremington on 01271 325 270. We are always delighted to welcome new members.'

Chris Margrie,

Taw and Torridge Friends of Children's Hospice South West.

Source: North Devon Journal

 

Inspirational CEO keeps children at the heart of Bristol hospice
27 January 2016

Eddie Farwell CEO Children's Hospice South WestIt has been 25 years since Eddie Farwell launched the South West's first children's hospice. The MBE winner knows more than most the pain and anguish which is experienced by parents who are forced to watch their child die.

Two of his children, Katie and Tom, were diagnosed with a rare genetic disorder which meant they gradually lost the ability to walk and talk before dying in their teens.

Living through this horrendous experience inspired Eddie to build the first children's hospice in the region. And 25 years later, he has now established three hospices which care for hundreds of families each year.

To mark this amazing achievement the Bristol Post will be running a series of stories celebrating the vital work carried out at the city's hospice in Wraxall.

Eddie, who now works as the charity's CEO, said his children Katie and Tom only had a one in four chance of developing Sanfilippo syndrome. The degenerative illness was discovered after Katie took longer than most to achieve key milestones in her development.

"What fooled everyone at the start was she was able to remember the words of well over 200 songs from the beginning to end by memory," said Eddie. "But by the age of two years old it was obvious there was something not quite right.

"She never slept for longer than three hours. But doctors weren't sure quite what was going on.

"Just after we got Katie's diagnosis we were told we'd better have Tom, who was around six months, tested as well.

"It was very difficult to take, you know all the hope you have locked up in your child. So here I had two children who weren't going to live beyond around 20 years of life when I could have had two very healthy children."

Following the diagnosis his family attended Oxford's St Helen's House – the first children's hospice in the world – for respite care.

And it was after a trip to this charity that Eddie came up with the idea of setting up a hospice in the South West, along with his late wife Jill.

Despite being first dismissed as a 'crazy' idea, with both of them still caring for their two terminally-ill children and holding down full-time jobs, the feeling they had to do something stuck with them.

Following a lot of hard grind, in 1991 the couple launched the business along with a board of trustees. This paved the way for the first hospice in North Devon to open in 1995.

Building work begins April 2010Nearly a decade later Eddie and Jill then opened Charlton Farm in Bristol in 2004. But it was around this time that his wife sadly lost her battle with breast cancer.

Although it was an extremely dark period for Eddie he powered through to complete the work the couple had started by establishing Cornwall's Little Harbour in December 2011.

"Katie and Tom have inspired me to do this work," said Eddie. "If I hadn't have done this someone else probably would have.

"They're with me every day, they're inspiring me every day. But so is the community who make this possible. It's also the people who donate money so a family they have never met and probably will never meet can have a stay at one of our hospices.

"The UK is one of the only places in the world to have children's hospices which are largely funded through the community and that is something that makes me very proud to be British."

Children Hospice South West has three buildings in the region: Little Bridge House in Barnstaple (opened 1995), Charlton Farm in Bristol (opened 2007) and Little Harbour in St Austell (opened 2011).

It costs more than £8 million to run the three hospice sites each year and the charity relies entirely on voluntary contributions from individuals, groups, companies and trusts throughout the South West region.

Last year Charlton Farm cared for 205 life-limited children, 263 siblings, 329 parents and 147 bereaved families
It costs £30,000 a year to fund a specialist children's nurse.

The main word used by children who attend the hospice when asked to describe it was 'fun'.


Find out about our 25th Anniversary

Source: Bristol Post

 

Four GB members raise hundreds for hospice
27 January 2016

Team GBFour members of 1st Weston-super-Mare GB group have raised more than £400 for Children's Hospice South West.

The n:counta and n:spire group members, Jessica, Katie, Phoebe and Rosie, raised the money at a coffee morning and cake sale in November. Then further donations were received at the GB joint Christmas carol evening with 1st Weston-super-Mare Boys’ Brigade in December.

The young women attended an open day tour at Charlton Farm, one of the hospices run by Children's Hospice South West, on 9 January 2016, where they officially presented their cheque.

>Pictured is Jessica, Katie and Phoebe, along with GB leaders Hayley and Sarah and staff from Charlton Farm.

This story is a great example of social action - in GB terms we often refer to this as serving others, service or community service.

GB leader Sarah Lawrence says 'The girls would like to thank parents, family, friends and those from Clarence Park Baptist Church for supporting them in this great achievement!

'As this year celebrates the 25th anniversary of the hospice, the girls have agreed to accept another fundraising challenge and are busy with their plans for later in the year.'

Source: Girls' Brigade

 

University of Exeter celebrates winter graduation
26 January 2016

Eddie and FloellaCEO of Children’s Hospice South West Edward Farwell MBE was one of number of inspiring figures honoured at the University of Exeter’s winter graduation this year.

Eddie Farwell was awarded an honorary degree from the University of Exeter, the degree of Doctor of Laws honoris causa. 

More than 800 students celebrated their graduation across three ceremonies on Saturday 23 January.

Eddie was honoured alongside Olympic athlete Sally Gunnell and distinguished genomics and bioinformatics expert Professor Richard W Michelmore.

Each ceremony was presided over by the University’s Chancellor, Baroness Floella Benjamin OBE DL. In her last graduation before she retires from her role, she personally greeted each graduand and inspired them to use their education to make a difference in the world.

Eddie Farwell has lived in the South West for almost his entire life.

He was brought up in Yeovil and studied at Exeter for his B.Phil in Social Work and the Certificate of Qualification in Social Work. From 1977-2005 he worked for Devon County Council.

Eddie’s life sadly changed forever in 1983 when his eldest two children Katie (d. 1991) and Tom (d. 1998) were diagnosed with a genetically derived illness which meant that they would die in childhood. Inspired by the care his family received over many years, Eddie and his wife Jill founded Children’s Hospice South West in 1991.